Lenalidomide and Tremors: What Users Say

• Big...
• April 27, 2018

Lenalidomide for Multiple Myeloma "I have been on Revlimid for about 5 years. Initially, one 25 mg for 21 days with 7 days off and repeating 28-day cycles. For the first 3.5, I also took dexamethasone with it but stopped that with no ill effects. After one more year, my doctor cut the dose to one every other day with no negative result. So far, so good, all this followed a transplant about 14 years ago. While the Revlimid leaves my hands a bit shaky, there is no real loss in quality of life."

• fer...
• Taken for 2 to 5 years
• September 11, 2024

For Multiple Myeloma "On 10 mg lenalidomide capsules for 3 years, reduced paraprotein levels but now increasing. Some bowel problems but manageable. Possible side effects found: tremor, chills, depression, blurred vision. Not compatible with dexamethasone, psychological problems."

• MAR...
• Taken for 1 to 6 months
• May 25, 2024

For Myelodysplastic Diseases "My labs are getting better. I am exhausted, lower stomach pain, shaky, no energy, broken out with little red dots and sores."