User Reviews for Hydroxyurea
Also known as: Droxia, Hydrea, Mylocel, Siklos
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Hydroxyurea.
|Chronic Myelogenous Leukemia||1 review||10 medications|
|Anemia, Sickle Cell||6 reviews||21 medications|
|Thrombocythemia||5 reviews||4 medications|
|Polycythemia Vera||2 reviews||1 medications|
|Not Listed / Other||1 review|
|Summary of Hydroxyurea reviews||6.2||15 reviews|
Reviews for Hydroxyurea
For Anemia, Sickle Cell: "I am 44 I used to take Hydroxyurea for many years. I stop being hospitalize as often I use too. But my nails were brittle ,my belly had bad pain inside, my hair was coming out and last my teeth in my mouth was falling out. Went to the dentist they said it's the Chemo in the drug . So I stop taken it. But my teeth are all so bad now and yet I have no dental. I am great full for not being in the hospital like I used too but my teeth are all mess up."
Avian44 (taken for 2 to 5 years) December 7, 2017
0 users found this comment helpful.
For Thrombocythemia: "Medicine takes platelets down but when pharmacy changed manufacturers my skin itches very badly. I will try to go back to old pharmacy"
kp27 (taken for 1 to 2 years) May 3, 2017
5 users found this comment helpful.
For Thrombocythemia: "I am 80 years and have been taking this drug for 7 years without problems, it kept my platelets around 600,000. Then I developed open sores on my fingers. A blister would form, pop, and then the sore would be exposed and wouldn't heal for weeks. After that I developed wounds on my ankles. I developed 3 open, non-healing ulcers on my ankles that were so painful I had to go to the hospital. All the while my hematologist, my primary doctor and all the hospital doctors shook their heads and said they didn't know what was wrong. Then my son did a google search and found that these horrible skin ulcers and sores were a rare side effect of the hydroxyurea! I am now off the drug and with a new hematologist and a new drug Jakafi."
Nick's mom May 1, 2017
9 users found this comment helpful.
Hydrea (hydroxyurea) for Chronic Myelogenous Leukemia: "I was asked by my Doctor in Mumbai, India, to take Hydroxyurea 500 for 10 days and I got this Capsules of Hydrea from the store.my platelets were 650000 to start then After taking the capsules for 10 days the platelets count came down to 570000. I was advised to further continue the capsules for another 30 days. After 30 days the platelets count was 432000. I have not experienced any side effects."
Hemendra G Desai November 28, 2016
2 users found this comment helpful.
For Thrombocythemia: "Bad side effects (or what I would consider bad side effects and not to be tolerated) - 71 year old female, 58 kgs: been taking 500 mg a day for approx 2 and a half months. Recently experienced fever, chills, headaches, muscle aches, extreme tiredness, lack of appetite - enough that I could not function and spent days in bed. Waited 5 days, took another dose and was back in the same position the next day. Decided to stop medication for next few weeks. Blood test due in 2 weeks and see Specialist in December."
Lizwon (taken for 1 to 6 months) October 20, 2016
10 users found this comment helpful.
For Polycythemia Vera: "My mom is in her 80's and was given this drug a year ago. Shortly after, she developed red (painful) nodules on one arm and then the other that would NOT go away until she was finally put on prednisone. She also has suffered from unexplained sore throat, difficultly breathing, along with no appetite. No doctor can't explain what the nodules are, not even with many, many, biopsies, blood test, cat scans ,etc. She has a feeling of overall sickness that she cannot describe, has been hospitalized multiple times over the last year due to the symptoms. Again, all doctors say it's NOT the hydroxyurea that she has to be given when her hematocrit numbers climb too high. Here we are a year later with no answers and my Mom is still sick."
Anonymous (taken for 1 to 2 years) January 6, 2016
7 users found this comment helpful.
For Thrombocythemia: "I take this for mylodysplastic/myleoproliferative neoplasm. I got a lot of nausea. Some weight gain. Overall achy feeling. It has been working like it should. Only had to do one up change on dosage. I take 1 capsule twice a day."
daleb378 November 23, 2015
4 users found this comment helpful.
Hydrea (hydroxyurea) for Anemia, Sickle Cell: "Im 18 years old and even though I wasnt a sickle cell patient who had many pain crises , my doctor had still been suggesting me take hydrea since I will be starting college soon ( I guess just to be safe). Since taking it, I havnt had any severe pain crises, but I swear everyday it feels like my back is in a small pain crises. Which is scary because I never know if it's going to become a full blown crises. Im always having to take pain meds, or missing school because of this. Im thinking about if I should stop taking it for a while to see if the hydrea is whats causing this pain. because it can be my birthcontrol pills causing it but I highly doubt it. I wish there were more reviews on hydrea so I could know if it was just me."
BreeM January 19, 2014
15 users found this comment helpful.
For Anemia, Sickle Cell: "When I first started taking Hydroxyurea it made me a little sick. Yet, after about 2 weeks I noticed a slight increase in energy and went from having a hospitalization crisis every 2-3 months to about ONCE a year. I still take pain meds for the smaller pains but my lifestyle had gotten MUCH better. I would recommend it to any person with sickle cell. "
JayDub76 January 20, 2013
13 users found this comment helpful.
Hydrea (hydroxyurea) for Thrombocythemia: "I am on Hydrea due to Ediopathic Thrombocytopenia with platelet counts over 2 milion. I am very young (21) and taking Hydrea for 1 year and a half now. Though it has sinked my platelets I have recurrent anemia and infections (most recently in the lungs). In the beginning I was very tired, legs shook, skin would easily bruise, drugged up feeling from time to time, depressive, muscle pain, burning in legs which was severe and decreased after 5 months, brain fog, stomach pain (still common). Most common symptom would be enlarged spleen with pain. I've had brutal neurological side effects that have been decreasing slowly with time. Nevertheless, Hydrea compared to Anagrelid and Interferon is by far the medicine I tolerate better. "
Meredes Anna January 4, 2012
42 users found this comment helpful.
Hydrea (hydroxyurea) for Anemia, Sickle Cell: "Hydroxyurea significantly improves the frequency of sickle cell crisis, but it has a long list of adverse effects. But if the dose is monitored properly and complete blood count of patient is done on regular basis, than some of the adverse effects can be easily identified and managed accordingly."
dr_solanki August 2, 2011
24 users found this comment helpful.
For Anemia, Sickle Cell: "I've been taking this medicine for about six weeks or so and the problem so far has been that my nail beds are turning black. A little freaked out right now but surprisingly I've been feeling a lot better."
nosilla48 March 30, 2010
14 users found this comment helpful.
Hydrea (hydroxyurea) for Anemia, Sickle Cell: "Haven't been hospitalized since I started taking it. But I did gain a little weight."
gabonance December 14, 2009
29 users found this comment helpful.
For Not Listed / Other: "I have been taking varying doses of Hydrea for over 9 years to control Essential Thrombocythemia following a thrombotic event directly related to the ET. At the time of diagnosis, my platelet count was over 1,000,000 however under regular monitoring and occasional dose adjustment, I have been able to maintain a stable and normal ranged platelet count. Side effects have been negligible to date."
HydreaET September 20, 2009
65 users found this comment helpful.
For Polycythemia Vera: "I have had Polycythemia vera for 25 years. I was started on hydroxyurea two months ago and recently developed severe petechial hemorrhaging. I was admitted to the hospital with a platelet count of 9,000. I received a six pack of platelets and over seven days (being off the medication) my platelet count had climbed to 74,000. As of Sunday, July 5th, it was at 139,000 (off the medication for ten days). I was given the medication to help prevent the POTENTIAL of developing a blood clot. I have managed my Polycythemia vera pretty well without medication for 25 years (I do take baby aspirin) and wish I had never taken this."
Terri47 July 8, 2009
86 users found this comment helpful.
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