Fulvestrant and Dry Mouth: What Users Say

• Min...
• August 23, 2019

For Breast Cancer, Metastatic "I was diagnosed with metastatic breast cancer to the bones 6 years and 4 months ago. Initially, I was treated with Letrozole and Xgeva worked for me for about 4 years and 8 months, but then they found some active spots on my spine again. I had more radiation and have been on Faslodex, Ibrance, and Xgeva ever since. I don’t get bad reactions from Faslodex. If the nurse warms up the Faslodex before it is injected, it is easier for the nurses to inject and it feels better. The area of the injection is a bit tender for a couple of days, but nothing bad. My urine smells like ammonia or something for a couple of days. I really don’t get side effects from Faslodex. I have terrible dry mouth, but I take many meds. Lately, I have been horribly tired, but I see the doctor tomorrow. To anyone that has jaw pain, that is probably from your Xgeva and can be very painful and definitely something the doctor needs to know. Please call your doctor. I hope you are all doing well!"

• Hil...
• November 18, 2016

For Breast Cancer, Metastatic "I am a 4-year, 9-month survivor of metastatic breast disease to bone. The injection itself is painful, but very few side effects for me. Tiredness, pain at the injection site, and sore throat, dry mouth are the most persistent side effects. Tingling and burning sensation on the right side of the injection site."

• Anonymous
• Taken for less than 1 month
• November 17, 2020

For Breast Cancer, Metastatic "Diagnosed with metastatic breast cancer in 2015, started Ibrance in 2018 with Letrozole. No side effects, but now the treatment is Faslodex with Ibrance. Been experiencing dry mouth, slight pain in lower back, vision difference, and loss of appetite. Not intolerable, though. The injections don’t hurt because they warm it up. Hang in there, ladies, and carry on! Will update results."

• Bet...
• Taken for 1 to 2 years
• April 13, 2024

For Breast Cancer, Metastatic "I have been receiving injections of Faslodex for one year now. I have done much research on Faslodex and found that it has given me peripheral neuropathy in my foot and thigh. Not everyone will experience this condition, but I do still take the injection hoping for the best. I also have some arm pains and dry mouth. Every third week, I take Xgeva for my bones and will continue treatment until some other treatment comes my way."