Skip to Content

User Reviews for Fludrocortisone to treat Postural Orthostatic Tachycardia Syndrome

Also known as: Florinef, Florinef Acetate

Fludrocortisone has an average rating of 8.0 out of 10 from a total of 20 ratings for the treatment of Postural Orthostatic Tachycardia Syndrome. 65% of users who reviewed this medication reported a positive effect, while 15% reported a negative effect.

Fludrocortisone Rating Summary

8.0/10 average rating

20 ratings from 20 user reviews.

Compare all 11 medications used in the treatment of Postural Orthostatic Tachycardia Syndrome.

10
50%
9
15%
8
0%
7
10%
6
5%
5
5%
4
0%
3
10%
2
5%
1
0%

Reviews for Fludrocortisone

Potswarrior · Taken for 1 to 6 months May 1, 2020

“Before this medication my heartrate was in the 160s upon waking and stayed that way everyday. I had severe anxiety from the adrenal dumps and was a miserable mess. I was labeled a hypochondriac with severe depression and anxiety even though this had only been going on for 6 months. I had 4 suicide attempts because I was so miserable and nobody believed something else was wrong. Finally my new Psychiatrist said they thought I had POTS. It took three Psych hospital stays. A dozen trips to the ER and one incredible Psychiatrist to save my life. I take .01mg of Fludrocortisone twice a day. My quality of life is almost back to normal. My heart rate rests between 70-100. I'm weaning off of Xanax and am no longer pegged as a hypochondriac. My depression and anxiety are minor and I am going back to school in the fall for my Bachelor's. This medication gave me my life and my sanity back.”

10 / 10
Was this helpful?YesNo
Jenn C. July 31, 2019

“I was diagnosed with POTS (postural orthostatic tachycardia syndrome) back in 2001 it is now 2019 I have been on 0.01 milligrams of florinef and a beta blocker together ever since they have never failed me once. It's an excellent drug I have never had a side effects and I highly recommended and now my daughter is going through similar and starting to get flare-ups POTS and I'm almost hoping that they give her this medication as well because his works are wonderful day for me because her quality of life is not good at the moment”

9 / 10
Was this helpful?YesNo
Jay Dee · Taken for 6 months to 1 year June 25, 2019

Florinef (fludrocortisone): “I have been "sick" as long as I can remember. I passed out for the first time when I was 14. I've always had the "I feel like I have the flu, and I'm dying symptoms". I did not have a good quality of life. I was diagnosed with POTS and NMH (Neurally Mediated Hypotension) in April of 2018 and immediately put on medicine. The first medicine have me awful side effects, so I was switched to Fludrocortisone. This medicine has changed my life. I can not live without feeling like I'm sick all the time. The only times I feel sick now are when I forget my medicine, or I go too long between meals. The only negative side effect is, I've gained 14 pounds so far, which sucks, but it's better than the alternative.”

10 / 10
Was this helpful?YesNo
UK120 · Taken for 1 to 6 months November 25, 2020

“I experienced depression during the first week on fludrocortisone. Then the depression went away and my POTS got much better. It took about a month until I felt the full effect. I've only been on it for 5 weeks but I have not felt this good in a very long time.”

10 / 10
Was this helpful?YesNo
Weight Gain on Florinef December 6, 2016

“Florinef has definitely helped the symptoms from POTS/Vasovagal Syncope. But what it has also done is create a steady weight gain to the tune of 25 lbs to which I'm miserable with. I've work with a nutritionist to prevent diabetes, I work out 5 times a week, and have not so much lost a pound of it. This drug has awful side effects for some of us, which for me is weight gain, and mood swings. I'm working to get off of it, assuming my adrenals don't crash from the prolonged use. These side effects of this medication for long term use are extremely dangerous and it shouldn't be on the market.”

3 / 10
Was this helpful?YesNo
Mom · Taken for 2 to 5 years October 16, 2020

“I’ve been on fludrocortisone 0.1 for almost four years. It’s the only thing out there that helps me not feel like I’m about to die everyday. I suggest not taking any probiotics with it .. probiotics weakened my dose. I do have to sleep at an incline and drink extra water. Should take potassium and magnesium with it as well, to keep your heart from racing at night - POTS / Dysautonomias”

10 / 10
Was this helpful?YesNo
Ladiva · Taken for 1 to 6 months August 9, 2018

“I had been having chest pain for months. Treated it with antibiotics twice and then steroids. Finally I saw my cardiologist who felt it was my out of control POTS. I went up to 0.2 mg and the chest pain went within a week. I am now down to 0.1 mg but I miss it I get the chest pain straight back. I also feel that my head is a great deal clearer. Less brain fog even though I had not been aware of it before.”

10 / 10
Was this helpful?YesNo
WheelsNZ November 15, 2014

Florinef Acetate (fludrocortisone): “Amazing. No noticeable effect on one 0.1mg, but docs doubled dose to 2tablets ie 0.2mg and it's amazing. Can sit up, walk, and haven't fainted since 0.2mg started. Trialed going to 0.1mg and a day and a half later, was back to dizzy, faint, tachy etc.”

10 / 10
Was this helpful?YesNo
POTSie Girl June 25, 2015

Florinef (fludrocortisone): “I started taking florinef a few months ago and while I haven't noticed a difference, I believe it is keeping my symptoms from progressing. Before I went on it my body was on a downward fall but as soon as I started taking it everything was stable. It has made me gain about 5-10 pounds of water weight but it's not too bad. This drug along with my other medicine allows me to live my life better.”

7 / 10
Was this helpful?YesNo
simplivin December 20, 2009

Florinef (fludrocortisone): “I developed a rash and after testing at the NY Medical College and Vanderbilt Center for Dysautonomias, we found my blood volume was not low (often the case with POTS patients) and the mechanism that florinef acts upon.”

6 / 10
Was this helpful?YesNo
Anonymous October 26, 2020

“I started using ludrocortisone for my POTS about 4 months ago and it has worked wonders for my POTS. On the contrary, it has made my hair fall out and break off. I’ve also got some acne now. I have never had acne before until this medicine.”

2 / 10
Was this helpful?YesNo
Potssux522 July 24, 2017

“I started on Florinef a few weeks ago. I'm noticeably doing better but not quite able to fully function like before. I have good days and bad days. I started on 0.2mg. Going to see if I can increase and if that will help. I'd like to be able to go back to work.”

7 / 10
Was this helpful?YesNo
SallyS · Taken for 1 to 6 months July 21, 2021

“I am still on a low dose of this medication, so I can't say yet whether it is going to help my orthostatic intolerance (OI) and suspected low blood volume. In the meantime, I wanted to report the side effects on my sense of taste. In the first two weeks, I had a metallic taste in my mouth. In the second two weeks, I had a bicarb taste in the back of my throat/nose. Now I am also getting a reduction in my sense of taste. I can't taste sweet or umami very well. Orange juice and roasted vegies are okay, but everything else tastes cardboardy. I really hope that this side effect goes away, or the fludrocortisone starts working. Being unwell and also being hit with side effects and no benefits is hard. If the tablets were fixing my OI, I could probably live with the hypogeusia.”

5 / 10
Was this helpful?YesNo
Sarahrazor · Taken for 1 to 6 months August 26, 2014

Florinef Acetate (fludrocortisone): “It's my life saver, I was bed bound and in a wheel chair before using florinef! Now I can do physio and live a almost normal life!”

10 / 10
Was this helpful?YesNo
KimC71 · Taken for 1 to 6 months September 5, 2014

Florinef (fludrocortisone): “Florinef has helped me out quite a bit. I'm not cured, but am better. I can walk up minor inclines without any problem. I am able to be up and active for longer periods of time.”

9 / 10
Was this helpful?YesNo
Karen · Taken for less than 1 month November 17, 2018

Florinef Acetate (fludrocortisone): “I been on the .01mg for about a month so far been great I haven't had anymore more dizziness”

10 / 10
Was this helpful?YesNo
Anonymous August 21, 2011

“I have not been dizzy or fainted even once since the 4th day of taking Fludrocortisone and Sodium Chloride. Works great for me so far.”

10 / 10
Was this helpful?YesNo
Anonymous · Taken for 1 to 6 months March 12, 2013

“This medication has helped my Postural Orthostatic Tachycardia Syndrome quite a bit. I get less flare-ups of POTS with this medication!”

9 / 10
Was this helpful?YesNo
Anonymous August 10, 2010

Florinef (fludrocortisone): “I have taken this medicine along with Toprol-XL for a few years and it has helped A LOT! I think this medicine paired with Toprol-XL is great!”

10 / 10
Was this helpful?YesNo
Emma16 · Taken for less than 1 month July 11, 2016

“Helped little with my POTS symtoms, being transferred to midodrine”

3 / 10
Was this helpful?YesNo

This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.