User Reviews for Fludrocortisone
Also known as: Florinef, Florinef Acetate
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Fludrocortisone.
Reviews for Fludrocortisone to treat Postural Orthostatic Tachycardia Syndrome
"I started on Florinef a few weeks ago. I'm noticeably doing better but not quite able to fully function like before. I have good days and bad days. I started on 0.2mg. Going to see if I can increase and if that will help. I'd like to be able to go back to work."
Potssux522 July 24, 2017
0 users found this comment helpful.
"Florinef has definitely helped the symptoms from POTS/Vasovagal Syncope. But what it has also done is create a steady weight gain to the tune of 25 lbs to which I'm miserable with. I've work with a nutritionist to prevent diabetes, I work out 5 times a week, and have not so much lost a pound of it. This drug has awful side effects for some of us, which for me is weight gain, and mood swings. I'm working to get off of it, assuming my adrenals don't crash from the prolonged use. These side effects of this medication for long term use are extremely dangerous and it shouldn't be on the market."
Weight Gain on Florinef December 6, 2016
5 users found this comment helpful.
"Helped little with my POTS symtoms, being transferred to midodrine"
Emma16 (taken for less than 1 month) July 11, 2016
2 users found this comment helpful.
Florinef (fludrocortisone): "I started taking florinef a few months ago and while I haven't noticed a difference, I believe it is keeping my symptoms from progressing. Before I went on it my body was on a downward fall but as soon as I started taking it everything was stable. It has made me gain about 5-10 pounds of water weight but it's not too bad. This drug along with my other medicine allows me to live my life better."
POTSie Girl June 25, 2015
7 users found this comment helpful.
Florinef Acetate (fludrocortisone): "Amazing. No noticeable effect on one 0.1mg, but docs doubled dose to 2tablets ie 0.2mg and it's amazing. Can sit up, walk, and haven't fainted since 0.2mg started. Trialed going to 0.1mg and a day and a half later, was back to dizzy, faint, tachy etc."
WheelsNZ November 15, 2014
12 users found this comment helpful.
Florinef (fludrocortisone): "Florinef has helped me out quite a bit. I'm not cured, but am better. I can walk up minor inclines without any problem. I am able to be up and active for longer periods of time."
KimC71 (taken for 1 to 6 months) September 5, 2014
14 users found this comment helpful.
Florinef Acetate (fludrocortisone): "It's my life saver, I was bed bound and in a wheel chair before using florinef! Now I can do physio and live a almost normal life!"
Sarahrazor (taken for 1 to 6 months) August 26, 2014
15 users found this comment helpful.
"This medication has helped my Postural Orthostatic Tachycardia Syndrome quite a bit. I get less flare-ups of POTS with this medication!"
Anonymous (taken for 1 to 6 months) March 12, 2013
9 users found this comment helpful.
"I have not been dizzy or fainted even once since the 4th day of taking Fludrocortisone and Sodium Chloride. Works great for me so far."
Anonymous August 21, 2011
18 users found this comment helpful.
Florinef (fludrocortisone): "I have taken this medicine along with Toprol-XL for a few years and it has helped A LOT! I think this medicine paired with Toprol-XL is great!"
Anonymous August 10, 2010
14 users found this comment helpful.
Florinef (fludrocortisone): "I developed a rash and after testing at the NY Medical College and Vanderbilt Center for Dysautonomias, we found my blood volume was not low (often the case with POTS patients) and the mechanism that florinef acts upon."
simplivin December 20, 2009
20 users found this comment helpful.
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- Drug class: mineralocorticoids
Other brands: Florinef Acetate