User Reviews for Fludrocortisone
Also known as: Florinef, Florinef Acetate
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Fludrocortisone.
Reviews for Fludrocortisone to treat Postural Orthostatic Tachycardia Syndrome
"Florinef has definitely helped the symptoms from POTS/Vasovagal Syncope. But what it has also done is create a steady weight gain to the tune of 25 lbs to which I'm miserable with. I've work with a nutritionist to prevent diabetes, I work out 5 times a week, and have not so much lost a pound of it. This drug has awful side effects for some of us, which for me is weight gain, and mood swings. I'm working to get off of it, assuming my adrenals don't crash from the prolonged use. These side effects of this medication for long term use are extremely dangerous and it shouldn't be on the market."
Weight Gain on Florinef December 6, 2016
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Florinef (fludrocortisone): "I started taking florinef a few months ago and while I haven't noticed a difference, I believe it is keeping my symptoms from progressing. Before I went on it my body was on a downward fall but as soon as I started taking it everything was stable. It has made me gain about 5-10 pounds of water weight but it's not too bad. This drug along with my other medicine allows me to live my life better."
POTSie Girl June 25, 2015
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Florinef Acetate (fludrocortisone): "Amazing. No noticeable effect on one 0.1mg, but docs doubled dose to 2tablets ie 0.2mg and it's amazing. Can sit up, walk, and haven't fainted since 0.2mg started. Trialed going to 0.1mg and a day and a half later, was back to dizzy, faint, tachy etc."
WheelsNZ November 15, 2014
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Florinef (fludrocortisone): "Florinef has helped me out quite a bit. I'm not cured, but am better. I can walk up minor inclines without any problem. I am able to be up and active for longer periods of time."
KimC71 (taken for 1 to 6 months) September 5, 2014
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Florinef (fludrocortisone): "I developed a rash and after testing at the NY Medical College and Vanderbilt Center for Dysautonomias, we found my blood volume was not low (often the case with POTS patients) and the mechanism that florinef acts upon."
simplivin December 20, 2009
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