Gilenya and Hair Loss: What Users Say

• Ell...
• December 16, 2013

For Multiple Sclerosis "I've been on Gilenya for quite some time now. At first, I had no side effects at all. Lately, however, I've been getting random symptoms and not sure if they're directly related. My hair has gotten thinner, my eyes' sensitivity to light is a bit off, I've gotten gingivitis and been getting mouth ulcers a lot. I'm getting a bit worried, but so far haven't had an attack since I started taking the medicine."

• Amm...
• October 23, 2016

For Multiple Sclerosis "I have been taking Gilenya for the past six years. It has been the only medicine I have been on for MS. I thought it was a great option for the first few years with very few side effects and only one relapse per year. Then my hair started thinning and the headaches and fatigue got really bad. Now it no longer seems to be working. Last MRI showed several new lesions, and my doctor said the drug is doing little to nothing for me. He wants me to switch to Tysabri, but hearing the risks for that terrifies me."

• Bio...
• August 5, 2015

For Multiple Sclerosis "I have been taking Gilenya for almost a year, and it's improved my quality of life because the side effects have been more tolerable, as they have been far less frequent. I'm not happy about my hair thinning or the risk of cardiology problems. But when weighing them against the possible worsening of MS putting me in a wheelchair, it was an easy choice."

• Anonymous
• July 28, 2011

For Multiple Sclerosis "I have been on Gilenya for 8 weeks and just recently noticed my hair has begun to thin. As I brush, numerous strands fall out. I am a 32-year-old female so this is very concerning."

• Man...
• Taken for 1 to 6 months
• July 31, 2019

For Multiple Sclerosis "I would not recommend Gilenya for MS. It made me worse. I could only take it for 5 months. Then hair thinning, heavy period, halted my walking."

• Anonymous
• Taken for 1 to 6 months
• October 4, 2017

For Multiple Sclerosis "Hair loss, persistent headache."

• Kpo...
• Taken for 6 months to 1 year
• November 2, 2017

For Multiple Sclerosis "I like the convenience of it being a pill. The other medications I've taken for MS have been injections. Problems I'm having are thinning hair and hair loss."

• Kpo...
• Taken for 6 months to 1 year
• November 2, 2017

For Multiple Sclerosis "I like the convenience of it being a pill. The other medications I've taken for MS have been injections. Problems I'm having are thinning hair and hair loss."