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Gilenya and Flu-Like Symptoms: What Users Say

Flu-like symptoms: mentioned by 3 users (3.1%)

Based on user experiences from 96 Gilenya reviews, the following table shows the most commonly mentioned side effects.

All user comments are moderated by Drugs.com. Each review is verified for relevance and screened for inappropriate content. Side effects are user-reported and not clinically verified.

fatigue 13.5%
dizziness 12.5%
headaches 10.4%
tiredness 10.4%
hair loss 8.3%
nausea 6.3%
anxiety 4.2%
depression 3.1%
flu-like symptoms 3.1%

Reviews for Gilenya

Showing 3 reviews tagged with "flu like symptoms". Clear filters to view all 96 reviews.
Commonly mentioned side effects
  • Jus...
  • Taken for less than 1 month
  • May 2, 2013

For Multiple Sclerosis "I just started Gilenya through a research study (or I couldn't afford it) a week ago. I had minor flu-like symptoms the first 72 hours and then increased energy the past several days. I have experienced hot flashes at night sometimes. I have never been on any meds since being tested for multiple sclerosis in 2005. I am thankful I don't have to take the injections. Tired and oddly depressed today. Hoping that goes away soon and isn't a lasting side effect."

3 / 10
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  • Anonymous
  • Taken for 6 months to 1 year
  • November 6, 2013

For Multiple Sclerosis "I have been taking Gilenya for close to 10 months now. I was on Rebif and suffered horrible side effects that never did go away (flu symptoms, migraines). I had a very severe relapse where I lost the ability to walk for months. I started the new pill medication and have had no side effects whatsoever. What a relief! I can't tell if it's working, I guess time will tell and if I ever relapse again. It's a very expensive medication, thankful my extended benefits cover it. I would recommend this if Tysabri is not for you (JC virus positive). A few laughs in light of a serious health problem... I am a mad cow! lol. And those of you who are JC positive - you will know what I mean."

7 / 10
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  • Mas...
  • Taken for 1 to 2 years
  • November 16, 2018

For Multiple Sclerosis "I switched to Gilenya from being on BetaSeron for 15 years (which kept me without any disease progression). BetaSeron started to give me flu-like symptoms every time I took the shot, so I decided to switch to an oral med. For me, Gilenya was awful. I felt awful and I looked awful. When I see pictures of me, I can almost pick out the ones when I was on Gilenya. My first side effect was extreme vertigo, then on top of that, I just felt like my head was a 'brick.' I used to have to go home on my lunch hour and just lay there. Although it stopped disease progression (which was a plus), the side effects, for me, were miserable."

3 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.