Gilenya and Depression: What Users Say

• Jus...
• Taken for less than 1 month
• May 2, 2013

For Multiple Sclerosis "I just started Gilenya through a research study (or I couldn't afford it) a week ago. I had minor flu-like symptoms the first 72 hours and then increased energy the past several days. I have experienced hot flashes at night sometimes. I have never been on any meds since being tested for multiple sclerosis in 2005. I am thankful I don't have to take the injections. Tired and oddly depressed today. Hoping that goes away soon and isn't a lasting side effect."

• Chr...
• Taken for 1 to 6 months
• September 2, 2018

For Multiple Sclerosis "I was on Copaxone for close to 4 years. MS since the late 1980s. I liked Copaxone, but the radiologist said 2 lesions in my c-spine increased. I've been on Gilenya since the last week of June. It was okay for the first month, then I became weak, depressed, and extremely fatigued. I'm still on it but taking it every other day. Had to call out on disability again. I'm hoping the extreme fatigue and weakness leave soon."

• Ama...
• December 26, 2020

For Multiple Sclerosis "I was diagnosed with RRMS in April 2020 at the age of 49. My neurologist started me on Gilenya, and it has worked wonders for me. Most of my life, I was tired easily and slept a lot, and now that I’m on Gilenya, I have more energy than I ever can remember having. I was devastated when I got the news that I have MS, but I had always known something wasn’t right. I was an athlete and played basketball in college, so I didn’t live a sedentary lifestyle, but I slept a lot. Unfortunately, now I have trouble falling asleep, but I’m not sure if it’s from the MS or the anxiety. I have dealt with depression since my twenties, but I would prefer that over anxiety any day. My boyfriend passed away in August from COVID, and that’s when the anxiety and PTSD kicked in overdrive. To anyone who is considering Gilenya, I would recommend it because I’ve not had any negative side effects and haven’t dealt with MS relapses either."