User Reviews for Desmopressin
Also known as: DDAVP, Nocdurna, Noctiva, Stimate, Minirin, DDAVP Nasal, DDAVP Rhinal Tube
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
|Nocturia||1 review||2 medications|
|von Willebrand's Disease||4 reviews||11 medications|
|Primary Nocturnal Enuresis||4 reviews||5 medications|
|Diabetes Insipidus||18 reviews||16 medications|
|Summary of Desmopressin reviews||9.5||27 reviews|
Reviews for Desmopressin
For Nocturia: "After having prostate cancer and radiation treatments it affected my bladder. I was peeing 3 to 4 times nighty like a newborn, so I went to my Doctor who prescribed the nasal spray Desmopressin. Close to bedtime I cut back on water, I use one spray and about 15 min I get sleepy and ONLY wake up ONE time a NIGHT..YES...But I don't know why I wake up with a headache???? Although I still use Desmopressin.."
For Diabetes Insipidus: "I started desmopressin nasal spray in February this year after taking chlorpropamide and hydrochlorothiazide for 35 yrs. It has worked wonderfully....never wearing off. I would almost forget I had a problem but then the pharmaceutical Mylan stopped production and here I am again. I was disappointed that they stopped making the rhinal tube and I couldn’t get regulated. I’ve switched to the tablets and trying to adjust the dose to last 12 hours. I’m finding that I have loose stools and now a bladder infection that I haven’t had in decades. I’m disappointed that the pharmaceutical companies only cater to profit as there aren’t many of us. I’ve searched all over for my previous meds including Canada without luck. My last meds of over 30 yrs gave me a very normal life."
For Diabetes Insipidus: "Been on 0.1 mg Desmopressin at bedtime for initial treatment. Had been drinking 2 gallons of water a day and still thirsty, urinating almost every 20-30 minutes literally destroying my life. Muscle cramps set in started in legs and spread to arms, hands and feet. Then I started having electric shocks in head which is quite alarming I'm sure I would have had seizures if I hadn't started treatment. Tremendous difference after first night I did not get up once to drink water or urinate. By morning cramps were 90% gone and no head shocks it was wonderful. Have to be careful how much water I drink couple hours before taking med at bedtime or my face will bloat figured this out after couple bad nights. Now working with neuroendo on whether I could benefit from second dose or splitting current dose in two. This is a nasty disease destroys lives I'm grateful I got diagnosed and treated but it was a long, hard road."
DDAVP Nasal (desmopressin) for Diabetes Insipidus: "Been taking DDAVP nasal for over 15 years. Controls my CDI very well. Took Minirin before and pitressin tannate suspended in peanut oil before that. Was diagnosed with diabetes insipidus over 40 years ago."
DDAVP Nasal (desmopressin) for Diabetes Insipidus: "This is like a miracle drug to me. It works very well."
DDAVP Rhinal Tube (desmopressin) for Diabetes Insipidus: "This is the easiest ddavp to individualize. The spray only delivers .1 ml at at time, not good for people who only require .05ml. The pill does not work....Period!. Sadly the manufacturer is discontinuing making the rhinal tube which is devistating to people like me who will now face illness due to wrong dosing or inadequate dosing."
For von Willebrand's Disease: "It works wonders for my son with von willebrands disease if he has a bleeding episode but is hard to obtain from our local pharmacies on the down side."
For Primary Nocturnal Enuresis: "I can remember the first time I wet the bed and for years it was almost every night and I could never get rid of it. When I was around 15 or 16 I got this medicine and it immediately stopped and only once or twice did it happen again but after I was finished with my prescription, I never needed it again and I haven't wet the bed ever since."
DDAVP (desmopressin) for Diabetes Insipidus: "I've been on this since 1989. The generic pill form works best! Before DDAVP I went to the bathroom around the clock and drank tons of water. The nasal spray was difficult at first since they didn't have my dosage right which I ended up in the hospital with my sodium at 119. But after the Drs got the dosage down and with the pills now, I've had no problems. Thank goodness for DDAVP."
For Diabetes Insipidus: "Been on this medicine since I was 6 years old. Started on the nasal spray before the pill was invented. Found it hard to travel with because it needed to be refrigerated. Once the pill came out, I switched and never noticed a difference. Now that I am older and have a liver condition, my doctors told me to stop the medicine because it was helping my body to retain water. Now I get very little sleep and drink like a fish even though I'm on a fluid restriction. Also this med lowers my sodium levels as well due to the water retention. So if your having some of the same symptoms, please see your endocendocrinologist for help."
For Not Listed / Other: "My son is 13 and is an extreme bed wetter. 1 spray of this spray and he is dry each morning - it is so good and such a relief for my son"
DDAVP (desmopressin) for Diabetes Insipidus: "Works great but you need to take it on time."
DDAVP (desmopressin) for Diabetes Insipidus: "I couldn't have a normal life without it!"
DDAVP Nasal (desmopressin) for Diabetes Insipidus: "I love this medication, it works a lot better than the pill! I can go about 18 hours or so whereas the pill will last only a few hours, if that!"
For Primary Nocturnal Enuresis: "December 6th I was finally able to sleep through the night and only woke twice to void. This is compared to sometimes every half hour or 20 mins, which I had been experiencing for the past six months or so. I was exhausted. Other medicines were ineffective but Desmopressin has been a God send. The only challenge I've had other than the face flushing, is having to decrease my liquid intake despite needing the fluids due to the pain medicines I'm taking for metastatic breast cancer. I've noticed when I've ingested too much liquid, the Desmopressin doesn't work and I'm back to voiding upwards of 10 times a night but just for that night. I'm very happy with the speed at which Desmopressin works as well."
For Primary Nocturnal Enuresis: "My dad has been able to sleep again during the night, not up 6 or more times to the toilet, voiding large amounts. Back to normal. He is very happy. All blood tests normal."
Stimate (desmopressin) for von Willebrand's Disease: "My daughter is 16 and was diagnosed with Von Willebrand's when she was 13. I have found that it is the only thing that stops her menstrual bleeding. We have tried birth control pills to prevent her from having menstruation, but that didn't work. Without Stimate, she had bled for 7 weeks straight. She reports no side effects to me."
For Diabetes Insipidus: "I've been using Desmopressin Acetate injection for about 30 years and it has been a life saver. The tablet form does not work as well as the injection but it easier to carry with me when traveling. The injection type must be kept the in refrigerator but it is much more effective. I prefer to use the injection."
For Diabetes Insipidus: "I have been on DDAVP since 2004. I recently changed over to the tablet form. It is much more convenient to carry with me, but I have found that I have trouble having regular bowel movements and also I am having trouble losing weight. How can I lose the water weight while still staying hydrated on the DDAVP? I have heard that maybe I should limit my fluid intake. "
Stimate (desmopressin) for von Willebrand's Disease: "From my experience's its worked amazingly well for my Von Willebrands disease. It makes your face flush and heat very quickly but its not that bad of a side effect. The first time I used it I was out of it for about 15 minutes and after that it never happened again."
DDAVP (desmopressin) for Diabetes Insipidus: "I was diagnosed with diabetes insipidus a little over a year ago. This medication is absolutely a life saver. I love this medication and it's the only reason that I can live a semi-normal life!"
DDAVP (desmopressin) for Diabetes Insipidus: "I love this medication. It works fast and more efficiently than the pill form. After pituitary surgery I struggled for 8 months trying to get my bladder activity under control. I could not control my urine flow with the pills and if I was standing in line at the grocery store there was nothing I could do but face the embarrassment of having urine stream down my legs. With the nose spray I can dose right there when the urge hits and it sustains me for a few minutes until my situation is more condusive to taking care of things. The nose spray is way more predictable then the pill. Thank God I have it no matter what it costs."
DDAVP (desmopressin) for Primary Nocturnal Enuresis: "My daughter is 8 years old now. She has suffered from bed wetting for the past 2 years. We have tried everything under the sun to help with the problem. She was so embarrassed when she would go to sleep-overs and had to wear a "pull-up". I felt awful for her. I took her to the doctor and he referred her to a urologist soon after. Her urologist put her on DDAVP almost 3 weeks ago. She takes 0.2 DDAVP every night about an hour before she goes to bed. We have been dry every since, except the first night of taking the DDAVP. I believe this medicine is a God send. My daughter is so happy, she is no longer embarrassed about wetting. We went yesterday for a follow up with the Doctor, and everything is going great."
Stimate (desmopressin) for von Willebrand's Disease: "Stimate has been very effective with my 2 children in stopping a bleed quickly. It is our first line of defense when a severe bleed starts. Check with your doctor and have them test the effectiveness before using."
For Diabetes Insipidus: "I have been on this for 19 years, spray first and now tablets. The generics are not as good no matter what form or brand."
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