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Desmopressin for von Willebrand Disease User Reviews

Brand names: DDAVP, Nocdurna, Minirin, DDAVP Nasal DDAVP Rhinal Tube

Rating: 9.5

Desmopressin has an average rating of 9.5 out of 10 from a total of 4 reviews for the treatment of von willebrand disease. 100% of reviewers reported a positive experience, while 0% reported a negative experience.

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  • Eas...
  • July 2, 2011

Desmopressin "My daughter is 16 and was diagnosed with Von Willebrand's when she was 13. I have found that it is the only thing that stops her menstrual bleeding. We have tried birth control pills to prevent her from having menstruation, but that didn't work. Without Stimate, she had bled for 7 weeks straight. She reports no side effects to me."

10 / 10
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11 Report
  • Anonymous
  • August 25, 2010

Desmopressin "From my experience, it's worked amazingly well for my Von Willebrand's disease. It makes your face flush and heat very quickly, but it's not that bad of a side effect. The first time I used it, I was out of it for about 15 minutes, and after that, it never happened again."

10 / 10
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8 Report
  • Sti...
  • June 5, 2009

Desmopressin "Stimate has been very effective with my 2 children in stopping a bleed quickly. It is our first line of defense when a severe bleed starts. Check with your doctor and have them test the effectiveness before using."

10 / 10
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5 Report

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Frequently asked questions

  • mam...
  • Taken for 5 to 10 years
  • February 13, 2017

"It works wonders for my son with von Willebrand's disease if he has a bleeding episode, but is hard to obtain from our local pharmacies on the downside."

8 / 10
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0 Report

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