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User Reviews for Sprycel to treat Chronic Myelogenous Leukemia

Sprycel has an average rating of 8.1 out of 10 from a total of 13 ratings for the treatment of Chronic Myelogenous Leukemia. 77% of those users who reviewed Sprycel reported a positive effect, while 8% reported a negative effect.

Sprycel Rating Summary

8.1/10 average rating

13 ratings from 10 user reviews.

Compare all 23 medications used in the treatment of Chronic Myelogenous Leukemia.

10
31%
9
15%
8
31%
7
15%
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Reviews for Sprycel

susan · Taken for 1 to 2 years February 9, 2020

“My mother took Sprycel for 18 months. It caused severe pleural effusion. She was on oxygen and had to have fluid drained 3 times. She died in 2016 by the time they realized it was the Sprycel side effect is was too late to reverse damage.”

1 / 10
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Mehul boda February 3, 2018

“2011 I started with glivec. After taking three years of glivec it has not worked. Then I started sprysel 100 mg per day. I got a good result in just 1 month, then after 2 years I started getting a lot of side effects on my body. pain , ache in my head, water, veins pressure going to high and now I take a one more tablet for water pressure.”

7 / 10
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Jeff Daniels December 20, 2017

“In January 2009, I was initial diagnosed by my PCP with a general category of having blood cancer and referred to the Dana-Farber Cancer Institute for further evaluation. The white blood cell was 175k. Then they changed the medication to Sprycel 100mg/day; within four weeks of beginning the treatment with it, my white blood cell count dramatically fell from 175k to 16K. I was fully informed of the two prominent side-effects Pain Pleural Effusion. , the medication did cause a pleural effusion to develop and needed a thorocentsis that extracted 850 milliliters offluid from the pleural cavity with reduction of the meds, from 100mg to 50mg, no pain, no more pleural effusions. Remission has remained steady throughout @ under $99.98 of the time.”

10 / 10
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Frequently asked questions

Anonymous February 17, 2009

“I am in a study using Sprycel as INITIAL treatment for chronic myelogenous leukemia (CML). When first diagnosed with CML, my white blood cell (wbc) count was 19,000. I started taking Sprycel 50mg twice a day. On my 3 month follow-up, my wbc was 5,000 and my BCR-ABL was 0.001 (Almost complete remission). Have been there for the past year with very little side effects. Just occasional headache and mild skin outbreaks. I would highly recommend it to anyone with CML.”

9 / 10
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sneakingaround · Taken for 2 to 5 years August 23, 2013

“Was diagined in November of 2008 with Chronic Myelogenous Leukemia. I opted to be involved in the Dasatinib trial. I was in remission in less that 2 months. Everything was great, few side effects, until July of 2012 when I started coughing. I was told to stop taking Dasatinib as it had caused water in my lungs, after a 7 week stop, I was put back onto Dasatinib at 1/2 my initail dose 50mg per day. Again all seemed well. In August of 2013 I could not catch my breath but had no cough. It was so bad we went to Emergency at the hospital. There I found out fluid in my lungs again. I am off Dasatinib and am no longer able to take it as my body rejected it. I won't know what medicine I will be going on until the fluid is all out of my lungs. My oncologist says 12 weeks.”

8 / 10
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Anonymous June 27, 2011

“Was on Gleevec for two years and BCR-ABL would not come down below 20%. Months after starting Sprycel BCR-ABL undetectable. I have been on Sprycel for 7 months now and so far great. Blood counts all look good.”

10 / 10
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Anonymous July 25, 2011

“I have been on Sprycel for 9 month. Previously on Gleevec for 2 years. I find Sprycel in the beginning to be wonderful, no side effects. Now 9 months since I have started, I am experiencing mild to mid level nausea as well as conjunctivitis and dry eye syndrome.”

8 / 10
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Tony H · Taken for 1 to 2 years June 9, 2013

“I was on Gleevec for nearly 3 years and had issues with leg pain and no remission. Switched to Sprycel in October 2011 and could see a big improvement. Developed fluid on the lung in December 2012. Dr. took me off Sprycel and fluid situation is getting better. Waiting to see next steps.”

8 / 10
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dapplegrey · Taken for 2 to 5 years May 11, 2016

“Achieved complete molecular remission within six months of daily 100 mg. Sprycel. Reduced dose to 50 mg a day at six months due to side effects. The longer I was on it, the worse they became. Shortness of breath caused by pleural effusion, body pain, all over itching, acne like rash on face and scalp and some hair loss at very beginning of treatment. It was a good drug to kill the cancer cells, but reduced my quality of life drastically. Have started Gleevec with few expected side effects, except for major vertigo. Taken off Gleevec for two weeks and told to restart at 200 mg. a day to rechallenge. I won't be able to live alone if vertigo is a daily side effect. Glad to be in remission, but hate side effect sickness.”

8 / 10
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April lh October 30, 2016

“I was diagnosed with CML in 2012 and started with tasigna and couldn't handle the horrible side effects the I went to sprycel with horrible side effects to Gleevec and then back to a lower dose of Sprycel! Sense then I've had mild skin irritation and my breast hurt but nothing I have become accustomed to, the worst part is the joint pain. But over all my CML is asleep and undetected in my blood as of today! So I will take the joint pain as long as I have to!”

10 / 10
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Anonymous · Taken for 6 months to 1 year February 10, 2015

“I was diagnosed in May 2014 and started taking Sprycel within the week. After 6 months I was at .01% of the BCR-ABL abnormality. Great results, right? But I felt awful. After dealing with minor side effects of acne, sore breasts, weight gain and a low mood, the severe fatigue and chest pain were enough to stop. I'm now on Gleevec and starting to experience extreme thirst and weight gain. Very grateful there are medications that treat CML but frustrated with the inevitable side effects.”

7 / 10
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Califia48 March 8, 2016

“I have had nausea, headache and body pain. The body pain has been the most difficult. I had to stop taking medications because of this medication but also seem to have hypersensitivity in smell. So far all looks good but still in early stages.”

9 / 10
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Anonymous October 31, 2016

“I m happy to be in complete remission because of this medication”

10 / 10
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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

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