Dasatinib and Bone Pain: What Users Say

• Nad...
• March 9, 2017

For Chronic Myelogenous Leukemia "I've been very happy with Sprycel for more than three years now. However, these last few months I've been experiencing various symptoms which I believe are related to this medicine. I have bone pain that no doctor is explaining, I often have some difficulty breathing, and I feel tired all the time. Nevertheless, I would not choose to change Sprycel; I have tried four types of medications, of which this was the only one I faced no side effect troubles with."

• Anonymous
• November 28, 2011

For Chronic Myelogenous Leukemia "I was on Gleevec for 6 months for CML, and the side effects were horrendously painful, so my oncologist switched me to dasatinib (which I have been on now for 10 months). I give it a '9' rating because there is no doubt about its effectiveness in killing the leukemia cells, but I didn't give it a '10' because of the side effects I am experiencing (which is more than others from what I understand). I have frequent headaches, bone pain, nausea, muscle pain and aches, gastrointestinal problems, occasional dry eye syndrome, constipation, severe anal sphincter pain, vertigo, extreme loss of energy and lightheadedness/dizziness, abdominal pain, gastritis, musculoskeletal pain, and perhaps others that I do not yet recognize."

• Rsa...
• Taken for 2 to 5 years
• August 7, 2017

For Chronic Myelogenous Leukemia "Diagnosed late 2005. Started Gleevec, sick as a dog, got over that but was very hard on my stomach. In remission 2007. Bone and joint pain bad. Cramps in ribs. 2013 started Sprycel. No nausea but bone and joint pain. 2015 at doctor complaining short of breath. Tests all normal. 2017 in hospital twice from getting a severe infection from other immunos for PsA. Resting saturations high 80s low 90s and pleural effusion. Second time effusion worse than the month before. Not enough to drain but still short of breath, low saturations at rest. Finally decided it's the Sprycel, so back on Gleevec. Been off Sprycel for a month. I am feeling much better but saturations still very low. If any of you had low saturations, how long after stopping Sprycel before you got better?"