Cromolyn for Systemic Mastocytosis User Reviews
Brand names: Gastrocrom
Cromolyn has an average rating of 7.2 out of 10 from a total of 9 reviews for the treatment of Systemic Mastocytosis. 56% of reviewers reported a positive experience, while 11% reported a negative experience.
Reviews for Cromolyn
- Clair...
- Taken for 5 to 10 years
- September 27, 2017
"My daughter has been using this for her Mast Cell Activation Disorder (MCAD) since 2010, and it is a miracle! She gained 30 pounds in 6 months because she was finally able to absorb her food, thanks to the Gastrocrom. She is on a lot of different medications, but Gastrocrom was the one that finally tied everything together and started her on stable path."
- JMano
- Taken for 1 to 2 years
- August 16, 2018
"This has been a great Rx for me in controlling my Medium-chain acyl-CoA dehydrogenase (MCAD) deficiency symptoms. The main one it has controlled is the stomach troubles. One thing I do notice is, when I started and whenever I increase my dosage I get a terrible stomach ache. This only lasts for the first couple days though and then it subsides. Good luck to you."
- MSAS
- Taken for less than 1 month
- March 24, 2021
"I experienced a severe and lengthy (over 8 hours!) food reaction my second day on this medication taking only one - half vial two times daily 30 minutes before a meal; along with severe migraines, persistent nausea, sinus pain, congestion, itching, edema, extreme fatigue... flu-like symptoms - for four days. I had to stop taking it. I’m very frustrated and disappointed."
- Anonymous
- Taken for 1 to 6 months
- March 12, 2023
"This helped me immediately. I use one oral dose 30 minutes before a meal. Stopped the itching right away. It's very hard to remember to take it before meals. Price needs to be lowered for anyone to use it regularly."
Are you taking this medicine?
- haggis
- Taken for 10 years or more
- May 16, 2023
"Absolutely essential for normal breathing. My son has struggled with constant breathlessness since Intal Forte inhaler was discontinued. The tablet form. He needs the active component delivered directly to the lining of his lungs."
- MCAS
- Taken for 1 to 6 months
- February 9, 2022
"Even in micro doses it made me very sick and didn’t help any Mast Cell Activation Syndrome (MCAS) symptoms. However, I found using it topically rather than orally, helps my MCAS related eczema."
- Irro
- August 1, 2013
Gastrocrom (cromolyn) "This has been a great medication and has made me feel much better. If you take too much at one time it can upset your stomach. "
- nickim
- April 19, 2016
Gastrocrom (cromolyn) "This drug did not work for me. It was bothersome to take as you had to remember to take it 30 minutes before each meal."
- Anonymous
- Taken for 1 to 6 months
- February 19, 2017
"My abdominal discomfort & diarrhea improved some. However I've had much more flatulence, rash, & edema (even in cold winter weather)."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
More about cromolyn
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- Reviews (28)
- Side effects
- Dosage information
- During pregnancy
- Drug class: mast cell stabilizers
- Breastfeeding
Patient resources
- Cromolyn sodium drug information
- Cromolyn sodium inhalation
- Cromolyn (Inhalation) (Advanced Reading)
- Cromolyn (Oral) (Advanced Reading)
- Cromolyn Capsules
- Cromolyn Oral Concentrate
Other brands
Gastrocrom, Intal, Intal Inhaler
Professional resources
- Cromolyn (Systemic, Oral Inhalation) monograph
- Cromolyn Sodium (FDA)
- Cromolyn Sodium Inhalation Solution (FDA)
Gastrocrom (cromolyn) "Had to reduce to 3x a day every 6 hrs, to 2 x a day severe headaches and uneasy feelings in stomach and some nausea and diarrhea not as often but still awful . I'm reducing to 1x a day will get off of it after 2-3 years on it. It did not do much as I live in hot climate inflammation everywhere saw no real diff. I have Idolent systemic Mastocytosis for 3 decades if I get worse after stopping I'll take it again everyone is different . Hope this helps someone as there isn't much info since the 90’s"