Cromolyn for Systemic Mastocytosis User Reviews

• Anonymous
• Taken for 2 to 5 years
• March 4, 2021

Cromolyn "Had to reduce to 3x a day every 6 hrs, to 2x a day severe headaches and uneasy feelings in stomach and some nausea and diarrhea not as often, but still awful. I'm reducing to 1x a day and will get off of it after 2-3 years on it. It did not do much as I live in a hot climate, inflammation everywhere, saw no real difference. I have indolent systemic mastocytosis for 3 decades. If I get worse after stopping, I'll take it again, everyone is different. Hope this helps someone as there isn't much info since the 90’s."

• Roa...
• Taken for 1 to 6 months
• October 15, 2024

"This medicine has completely changed my life. I have been living with Mast Cell Activation Syndrome for 5 years with no real treatment, making my condition worsen over time. When I started this medication, it was an immediate game changer. I could feel my flare-ups being kept at bay, my bowels finally returned to normal, I no longer have asthma attacks, and I can eat any food without producing severe amounts of acid. I have had zero side effects with this medicine. I am on a dosage of 2 vials in the morning and 2 vials at night. I can finally exercise again and do things normally without the concern of flaring up."

• Cla...
• Taken for 5 to 10 years
• September 27, 2017

"My daughter has been using this for her Mast Cell Activation Disorder (MCAD) since 2010, and it is a miracle! She gained 30 pounds in 6 months because she was finally able to absorb her food, thanks to the Gastrocrom. She is on a lot of different medications, but Gastrocrom was the one that finally tied everything together and started her on a stable path."

• MSA...
• Taken for less than 1 month
• March 24, 2021

"I experienced a severe and lengthy (over 8 hours!) food reaction my second day on this medication, taking only one-half vial two times daily, 30 minutes before a meal; along with severe migraines, persistent nausea, sinus pain, congestion, itching, edema, extreme fatigue... flu-like symptoms for four days. I had to stop taking it. I’m very frustrated and disappointed."

• JMa...
• Taken for 1 to 2 years
• August 16, 2018

"This has been a great Rx for me in controlling my medium-chain acyl-CoA dehydrogenase (MCAD) deficiency symptoms. The main one it has controlled is the stomach troubles. One thing I do notice is that when I started and whenever I increase my dosage, I get a terrible stomach ache. This only lasts for the first couple of days, though, and then it subsides. Good luck to you."

• Anonymous
• Taken for 1 to 6 months
• March 12, 2023

"This helped me immediately. I use one oral dose 30 minutes before a meal. Stopped the itching right away. It's very hard to remember to take it before meals. The price needs to be lowered for anyone to use it regularly."

• hag...
• Taken for 10 years or more
• May 16, 2023

"Absolutely essential for normal breathing. My son has struggled with constant breathlessness since the Intal Forte inhaler was discontinued. The tablet form. He needs the active component delivered directly to the lining of his lungs."

• MCA...
• Taken for 1 to 6 months
• February 9, 2022

"Even in micro doses, it made me very sick and didn’t help any Mast Cell Activation Syndrome (MCAS) symptoms. However, I found using it topically rather than orally helps my MCAS-related eczema."

• Irr...
• August 1, 2013

Cromolyn "This has been a great medication and has made me feel much better. If you take too much at one time, it can upset your stomach."

• nic...
• April 19, 2016

Cromolyn "This drug did not work for me. It was bothersome to take as you had to remember to take it 30 minutes before each meal."

• Anonymous
• Taken for 1 to 6 months
• February 19, 2017

"My abdominal discomfort and diarrhea improved some. However, I've had much more flatulence, rash, and edema (even in cold winter weather)."