Acthar User Reviews & Ratings

• Hon...
• Taken for 1 to 2 years
• September 20, 2018

For Sarcoidosis "Been taking Acthar for 1 year. I wasn’t able to be up before I started taking Acthar. In 3 months, I was able to stay up almost all day. In 3 more months, I’m able to be up all day. Do things around the house. Now I go to the grocery store and church. I still don’t have a lot of energy. But have more energy, less pain than I had before."

• App...
• Taken for 1 to 2 years
• June 1, 2019

For Sarcoidosis "This medication has given me a better quality of life. Before, I was unable to do simple things like walking, talking, or even maintaining my home. Because of this medication, I feel as though I have been given a second chance in life. I have my off days, but they are much fewer than before. Been on medication now for 2 years."

• Clu...
• Taken for 6 months to 1 year
• September 25, 2014

For Rheumatoid Arthritis "I have been on Acthar for about a year. It has been the first medicine since my diagnosis (12 years ago) that has helped me. My only concern is the long-term side effects, which are not known. It is expensive, but I have not had to pay anything out of pocket with the help from the Chronic Disease Fund and my insurance."

• Chr...
• February 23, 2012

For Multiple Sclerosis "I've used this twice for a flare-up as it was thought that I was allergic to steroids. This medication is a gel, injected. It's about a 2-week course (2 vials) and slowly stimulates your own steroid production to help with flare-ups. My own experience is that I felt very ill during the first week. As steroid production amps up, you get the typical steroid feelings. It is very expensive, but my insurance paid for this."

• kil...
• May 25, 2013

For Multiple Sclerosis "I am allergic to steroids, and we used this once in my first flare-up after a year of relapse. The initial results were great, but the episode returned in less than two weeks after the treatment ended. The worst side effect was a huge increase in blood sugar. The cost of the medication is outrageous, even with great insurance."

• Anonymous
• January 10, 2018

For Multiple Sclerosis "This medication works great for me, it knocks out my optic neuritis quickly. It takes about a week to calm down my other relapse symptoms. It has allowed me to work during my relapses. The drug company paid my copay, so it cost me nothing."

• Kil...
• Taken for 1 to 2 years
• February 26, 2022

For Allergies "Given this for nephrotic syndrome. Bloating to extreme edema. Allergic reaction? Prescribed as prednisone replacement. Daily dose to begin therapy, then twice a week. Doctor did therapy in reverse. Complete immune loss. After administering therapy for over a year, my wife died. It was downhill all the way."

• Kat...
• Taken for less than 1 month
• December 24, 2020

For Multiple Sclerosis "This product costs a fortune and did not work for me. I’ve had double vision for 11 weeks due to an MS attack. I had so much faith in it from what my doctor told me it would “fix” all of me. It did not. Definitely would not recommend to any MS patients."

• Sah...
• August 13, 2017

For Juvenile Rheumatoid Arthritis "Been on this medicine for 12 weeks, and at first, it was great, and then here come the side effects. Raised blood sugar, increase in sweating, bruising, skin discoloration at the injection site, itching at the injection site, abdominal weight gain. Then, of course, the price of the medication. Insurance and the Acthar Foundation covered the cost, but still, yikes."

• Jul...
• Taken for less than 1 month
• March 22, 2021

For Multiple Sclerosis "After five injections, I developed thrush. I’m wheezing now, possibly due to pneumonia or an upper respiratory infection. I didn’t have any of these symptoms prior to this drug. I will discontinue immediately. The medicine stopped pain and stiffness from MS, but it’s not worth the side effects for me."

• Ano...
• Taken for 1 to 6 months
• November 14, 2020

For Polymyositis/Dermatomyositis "I tried the Acthar gel injections for dermatomyositis, and it did nothing for me. I did have a mild rash side effect on and around the injection sites, but other than that, I felt no difference."