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User Reviews for Onfi

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Onfi Rating Summary

User Ratings
10
   
29%(2)
9
   
0%(0)
8
   
15%(1)
7
   
0%(0)
6
   
0%(0)
5
   
15%(1)
4
   
0%(0)
3
   
15%(1)
2
   
0%(0)
1
   
29%(2)
5.4/10 Average Rating
7 Ratings with 7 User Reviews

What next? Compare all 12 medications used in the treatment of Lennox-Gastaut Syndrome.

Reviews for Onfi to treat Lennox-Gastaut Syndrome

"A caregiver review. Started our adult daughter on Onfi for LGS (Lennox-Gastaut syndrome). In my opinion, there is an interaction between ONFI and Psych medication. It appears that the interaction amplifies many of the Onfi side effects (physical and behavior). Since ONFI was the only new variable in her medication regime what we observed was more than mere coincidence. Please carefully read the FDA listed side effects of the medication. Onfi is the Neurology team’s new and favorite drug. They can’t or won’t acknowledge that the list side effects are from the result of Onfi. Neurology will go out of their way to blame everything else under the sun."

   
5.0

nyc1962 (taken for 1 to 6 months) March 27, 2018

1 users found this comment helpful.
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"It has an opiod effect. I forget words I've know all my life. I am more fatigued. My doctor prescribed it for me "because". I haven't noticed any effect. Coming off the drug, my foot and upper leg get shaky. It is also a very expensive drug."

   
3.0

Harry 6000 November 20, 2017

1 users found this comment helpful.
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"Justin became very shaky, weak, lost stability that he has not gained back. He went into massive seizures when on the drug. After two hospitalizations, we took him off. It has been over a year and he continues to have difficulty with standing up in the mornings and walking all the time."

   
1.0

Lynne Y July 21, 2016

14 users found this comment helpful.
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"The worst of 32 tried over the past 41 years."

   
1.0

STex April 20, 2016

6 users found this comment helpful.
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"This has been the best medicine for Lennox-Gastaut Syndrome in our sons 11 years. It was tough going for about 6 months of severe highs and lows of crying to laughing hysterically. But getting through that has been amazing. He's more vocal, his pupils are not staying dilated and he seems to understand more. I would tell any parent looking for help to please give this medicine a try."

   
10

Caleb's mother February 9, 2014

28 users found this comment helpful.
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"Worked really well for several months, then breakthroughs. Adding Banzel now."

   
8.0

MimiMax'sMom January 18, 2014

14 users found this comment helpful.
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"Great."

   
10

alex tham (taken for 1 to 6 months) January 16, 2013

12 users found this comment helpful.
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