Belimumab for Lupus Erythematosus User Reviews
Brand names: Benlysta
- tak...
- Taken for 1 to 2 years
- July 13, 2024
"It has changed my life. I have SLE which affects mostly my joints, skin, and energy levels. I have been on belimumab for nearly 2 years now and I am so much more functional. My lupus facial rash resolved and hasn’t returned. My joints still hurt in the morning and after sitting still for a while, but I am not seeing swelling and redness anymore. My fingers are permanently swollen but less sore than before. Most importantly, my labs have been normal for the past year, and my energy levels are so much better. I was receiving monthly infusions but I have just switched to the home autoinjector, which makes my life easier."
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Belimumab "I’ve had no side effects until this last one. I’ve been having monthly infusions for a year. It really helped limit my flares, and I felt better than I had in a long time. I have SLE lupus and tumid lupus. Thursday, after my infusion, I started breaking out with rashes and welts. I used my steroid cream to calm it down, but then I felt nauseous and like I was getting sick and extremely fatigued. Today is a little better. I hope it’s nothing. I don’t want to stop the infusions."