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Benlysta User Reviews & Ratings (Page 3)

Benlysta has an average rating of 7.8 out of 10 from a total of 65 reviews on Drugs.com. 66% of reviewers reported a positive experience, while 9% reported a negative experience.

Reviews for Benlysta

Commonly mentioned side effects
  • Sta...
  • Taken for 1 to 6 months
  • October 20, 2023

For Lupus "I'm in week 5 and I can tell a huge difference in my energy levels! I do have a sinus infection, but this could be due to the weather as it changes from summer to autumn. I'll be watching to see if they become frequent. Otherwise, I have hope that this will continue to help and get even better over time."

9 / 10
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4 Report
  • cin...
  • Taken for 1 to 6 months
  • December 8, 2023

For Lupus "I have been getting infusions of Benlysta for about 6 months. I haven't seen any difference in my lupus symptoms, except less severe rashes on my arms. I just contacted my Rheum. because I haven't started any other new drugs, but I have been having weird dreams consistently & exhaustion from lack of good night's sleep. He recommended I skip the next infusion for now."

4 / 10
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4 Report
  • App...
  • March 19, 2021

For Lupus "I was taking Benlysta for three years. I started with the infusion for about a year. Then I was put on the injection once a week. It does burn a lot the first 6 treatments, but then it eased up a lot. But about 7 months in taking the injectable Benlysta, my legs started to feel very weak and heavy. I told my rheumatologist. She told me to stop it for a few weeks. But I started back on Benlysta. I changed my rheumatologist and stopped taking the drug. But the leg weakness never left. My legs hurt all the time."

3 / 10
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8 Report

Frequently asked questions

  • ABe...
  • Taken for 6 months to 1 year
  • November 11, 2021

For Lupus "Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."

10 / 10
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5 Report
  • Sha...
  • Taken for 1 to 6 months
  • June 30, 2025

For Lupus "I have spent 10 years from one doctor to another. Finally, I got a rheumatologist who is experienced with lupus at Marietta Memorial in Athens named Melissa Burris. I had nasty lesions all over my face and arms. She suggested I try Benlysta. Thank God, because after only 3 infusions, my skin is amazing. Now I find myself staring in the mirror a lot, admiring how smooth and nice my skin is. I no longer feel embarrassed to go out, and I feel so much better about myself."

10 / 10
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0 Report

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  • Dan...
  • June 8, 2015

For Lupus "Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"

9 / 10
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48 Report
  • PaG...
  • June 29, 2014

For Lupus "I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."

8 / 10
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39 Report

More FAQ

  • Gr8...
  • Taken for 1 to 2 years
  • October 26, 2013

For Lupus "This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"

9 / 10
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41 Report
  • ilt...
  • Taken for 2 to 5 years
  • April 25, 2023

For Lupus "Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."

10 / 10
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8 Report
  • Smi...
  • Taken for 1 to 2 years
  • May 17, 2018

For Lupus "I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."

8 / 10
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19 Report
  • Dma...
  • Taken for less than 1 month
  • April 9, 2018

For Lupus "Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."

1 / 10
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24 Report
  • RKG...
  • Taken for 1 to 2 years
  • March 25, 2025

For Lupus "I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."

7 / 10
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1 Report
  • Arc...
  • Taken for 1 to 2 years
  • January 31, 2025

For Lupus "Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"

10 / 10
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1 Report
  • Dug...
  • Taken for 1 to 2 years
  • October 3, 2024

For Lupus "Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."

3 / 10
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1 Report
  • Nad...
  • Taken for 1 to 2 years
  • March 16, 2024

For Lupus "I love it. Benlysta has changed my life for the better."

10 / 10
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1 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.