Benlysta and Nausea: What Users Say

• PAC...
• Taken for 2 to 5 years
• August 25, 2020

For Lupus "I have been on Benlysta almost 4 years, and it has worked great for my systemic lupus erythematosus. Before that, I was taking hydroxychloroquine, which made me so nauseous and caused stomach cramps that I had to stop taking it. Benlysta is very well tolerated, just very fatigued the next day. The first infusion really hit me hard with flare-up symptoms, but then I got so much better after that. No longer need a wheelchair. Only need a walker if I overdo it. The swollen, painful joints are gone, and the energy significantly improved (unless I overdo it). I am still careful to respect my physical limits and avoid my triggers."

• Bea...
• Taken for 1 to 6 months
• October 25, 2014

For Lupus "I was one of the first patients in the United States to take Benlysta in June 2011. I had to slow the infusions down to three hours instead of one and a half hours. I experienced nausea and a mild sort of asphasia (a sort of muddled thinking) and a headache. I was also tired after the infusions. Each time I had an infusion (6 total), my temperature would rise about a degree and I felt discomfort in the abdominal/bladder region. The discomfort only occurred after the Benlysta infusions! Eventually, it did turn out to be serious, and this is why I'm writing this review. Though rare, the medicine lowered my immunity."

• ABe...
• Taken for 6 months to 1 year
• November 11, 2021

For Lupus "Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."

• Ros...
• Taken for 6 months to 1 year
• February 24, 2025

For Lupus Erythematosus "I’ve had no side effects until this last one. I’ve been having monthly infusions for a year. It really helped limit my flares, and I felt better than I had in a long time. I have SLE lupus and tumid lupus. Thursday, after my infusion, I started breaking out with rashes and welts. I used my steroid cream to calm it down, but then I felt nauseous and like I was getting sick and extremely fatigued. Today is a little better. I hope it’s nothing. I don’t want to stop the infusions."