Benlysta and Lightheadedness: What Users Say

• Tam...
• November 16, 2015

For Lupus "I have battled lupus since 2009. I went into remission and had a flare in 2012. My doctors have tried everything and finally talked to me about Benlysta. I was very skeptical, more than anything, afraid of what this would do to my body. I have been on Benlysta now for 1 year. I have no joint pain at all, and my blood tests are improving. Unfortunately, there are side effects of the actual drug. My heart has randomly started beating insanely, and I went to the emergency room twice. They say I am fine and send me home. At the end of May this year, I have started feeling this lightheaded feeling in my head, and to this day, I don't feel normal. I had dizzy spells when going to bed, where I would jump up and be out of breath."

• Lup...
• October 27, 2016

For Lupus "I have SLE and have been on Benlysta for 1-1/2 years now. I could barely walk or function prior to my diagnosis, SLE lupus, RA, and Hashimoto's. I felt better during the first 3 months of infusions than I do now. I had one really bad 3-month flare this year, but my rheumatologist kept on top of it. I felt the drug go through my entire body for the first 8 infusions. No kidding. Lightheaded, metallic taste in my mouth, and a little woozy. I always drove myself to and from infusions and went directly home to rest afterwards, as it made me very groggy within an hour. If you are sensitive to drugs, have someone drive you. I experienced diarrhea a few hours after infusions for the first year. You must take an antihistamine before being infused."

• Lup...
• October 27, 2016

For Lupus "I have SLE and have been on Benlysta for 1-1/2 years now. I could barely walk or function prior to my diagnosis, SLE lupus, RA, and Hashimoto's. I felt better during the first 3 months of infusions than I do now. I had one really bad 3-month flare this year, but my rheumatologist kept on top of it. I felt the drug go through my entire body for the first 8 infusions. No kidding. Lightheaded, metallic taste in my mouth, and a little woozy. I always drove myself to and from infusions and went directly home to rest afterwards, as it made me very groggy within an hour. If you are sensitive to drugs, have someone drive you. I experienced diarrhea a few hours after infusions for the first year. You must take an antihistamine before being infused."