Baclofen for Cervical Dystonia User Reviews

• Anonymous
• April 22, 2009

"I take 10mg 3x daily for cervical dystonia, and it has helped me a lot. I also go for regular Botox injections in my neck, and the baclofen takes the edge away and makes it bearable on an everyday basis. No apparent side effects, although I have become forgetful."

• JD ...
• Taken for 1 to 6 months
• December 27, 2016

"After trying several muscle relaxants, with very little success, I read a monograph from NSTA noting success in a limited study. Tried it 10 mg 3x/day and it is equal to off-label benzodiazepines. NOTE: It does NOT improve pain from any underlying damage, only that directly related to the spasms! It also improved my sleep by lessening nighttime stiffness (I also take 500 mg magnesium at bedtime). Side effects are tolerable, however, do not take with narcotics or alcohol."

• Ell...
• June 10, 2016

"I have severe cervical dystonia. I was on Zanaflex for years. It helped reduce the amount of pain. Then my liver levels got high, the doctor took me off of Zanaflex. He prescribed Baclofen in its place. It's horrible. Doesn't help pain, stiffness, anything really. Huge disappointment."

• Non...
• Taken for 1 to 6 months
• September 22, 2022

"First off, I am thankful that I found the neurologist I did, who was familiar with cervical dystonia and is a Godsend. I currently receive 300 units of Botox and was recently prescribed Baclofen 10 mg 3x a day. The Botox is a game changer, and adding the Baclofen was a bonus. Neither one of these is for pain, but they certainly help with the unbearable stiffness and spasticity I experience. Every now and then, my doctor will 'toss me' some Vicodin to take the edge off, but that is rare in the current age. Of course, I'm on Gabapentin, as this seems to be the 'go to' for every medical issue of pain in current times. Planning on increasing Botox. Baclofen has given me immense relief, even though it's not a 'cure all' or 'pain med'. My twisting and contorting has lessened. Thankful for this med and finally hopeful for the future. Movement disorders are no joke and come with severe and debilitating pain."

• Haj...
• Taken for 2 to 5 years
• March 18, 2018

"I am prescribed baclofen 20 mgs 3 times a day. I had to cut that dosage back as this med causes extreme lethargy and sleepiness. It does very little for the horrific muscle spasms, but telling doctors this is like talking to a wall, so I use it as my sleep aid because doctors do not want to prescribe anything for that either. Can't win."

• CJa...
• Taken for 10 years or more
• July 4, 2018

"I take 10 mg baclofen before sleep when I need to unclench jaw muscles before sleep - it makes me sleepy also, and usually I worry less about loss of muscle control. Any more than 10 mg turns me into a forget-everything, nodding-off zombie, but thank heavens there's something that relaxes my face, if only for a little while."

• SHE...
• Taken for 2 to 5 years
• November 7, 2021

"Where do I begin? This medication actually saved me. My dystonia started getting worse, I didn't know I had it. Since 2009, the doctors brushed it off until I was referred to a neurologist. My head kept twisting to the right, I had to use my hand to keep it straight. I had arthritis in my neck, so the twisting made it worse over the years. This medication I take 20.5 x3 three times per day. If I don't take it 7 hours apart, my muscles sure let me know. My back would just spasm, but now it's my legs, feet, neck, face, head, arms, abdomen-it's my entire body but different parts at different times. I find the spasms are worse when I'm cold. I get extreme dizziness. I take Gravol. My body feels heavy and swollen, but I'm not. Extreme nerve pain. I have had steroid and Botox injections. If I get a high dosage, it works. The procedure of steroid injections is very painful. So yes, the drug is worth the effects versus management."

• Anonymous
• Taken for less than 1 month
• October 22, 2017

"The VA started me about three weeks ago for my severe neck pain, spinal issue, and I actually thought I got placebo instead. Not touching the pain, especially at night. Waiting on MRI before further meds are changed or prescribed. Been having spinal issues for over thirty years due to a fall. Had hardware installed and bone taken out."

• CDs...
• Taken for 5 to 10 years
• August 27, 2013

Baclofen "Baclofen has lessened the spasms and pain of my cervical dystonia. It does have side effects, but they are tolerable considering the relief I get."

• Jo1...
• Taken for 1 to 6 months
• February 5, 2020

"At first, it was good relief. But I started getting side effects of dizziness and nausea."

• Anonymous
• Taken for 1 to 6 months
• June 8, 2016

"Doesn't do much for the pain. Take 20 mg x 2 per day. Helps with tight muscles."

• One...
• Taken for 6 months to 1 year
• August 6, 2017

"To be considered a 'lower class' of relaxants, I found that it actually worked better than expected. And there is little to no risk of becoming dependent/addicted to this drug. Overall, very pleased."

• Kit...
• Taken for less than 1 month
• November 29, 2022

"It definitely relieved my severe spasms in my neck and radiculopathy. It really rebounded once it wore off, but after settling into a regimen of three times 10 mg per day, it is very effective."

• tyw...
• August 14, 2014

Baclofen "Start the medication at a low, slow dosage and increase as prescribed and needed."