Avacopan for Granulomatosis with Polyangiitis User Reviews
Brand names: Tavneos
- Gri...
- Taken for 1 to 6 months
- April 9, 2025
"Tavneos helped me achieve remission. I was on Tavneos for 6 months and not on any type of steroid along with it, just the Tavneos. No other side effects except increased blood pressure and increased blood creatinine (my GFR went from 89 to 44). My doctor started me on losartan for the BP and is just going to monitor how the blood creatinine/GFR is doing. There seems to be no study info on how and if patients' blood creatinine comes down after stopping the Tavneos. I am off the Tavneos and will begin Truxima infusions every six months to hopefully keep me in remission. I am now ANCA negative with no antibodies detected! YAY."
Are you taking this medicine?
Your review helps others make informed decisions.Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.
Learn more about Granulomatosis with Polyangiitis
Care guides
Symptoms and treatments
More about avacopan
- Check interactions
- Compare alternatives
- Reviews (2)
- Side effects
- Dosage information
- During pregnancy
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
"I was a study patient given Tavneos for 12 months. The drug failed to induce remission after 6 months and increased the rate of kidney damage based on my GFR, BUN, and creatinine blood levels. It did cut my prednisone dose by 1.5 mg. The trade-off wasn't worth the risk. Be careful, the company is hyping the phase III study data out of context and beyond the FDA approved label."