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Tavneos User Reviews & Ratings

Tavneos has an average rating of 5.5 out of 10 from a total of 2 reviews on Drugs.com. 50% of reviewers reported a positive experience, while 50% reported a negative experience.

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  • ANC...
  • Taken for 1 to 2 years
  • May 24, 2022

For Granulomatosis with Polyangiitis "I was a study patient given Tavneos for 12 months. The drug failed to induce remission after 6 months and increased the rate of kidney damage based on my GFR, BUN, and creatinine blood levels. It did cut my prednisone dose by 1.5 mg. The trade-off wasn't worth the risk. Be careful, the company is hyping the phase III study data out of context and beyond the FDA approved label."

2 / 10
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  • Gri...
  • Taken for 1 to 6 months
  • April 9, 2025

For Granulomatosis with Polyangiitis "Tavneos helped me achieve remission. I was on Tavneos for 6 months and not on any type of steroid along with it, just the Tavneos. No other side effects except increased blood pressure and increased blood creatinine (my GFR went from 89 to 44). My doctor started me on losartan for the BP and is just going to monitor how the blood creatinine/GFR is doing. There seems to be no study info on how and if patients' blood creatinine comes down after stopping the Tavneos. I am off the Tavneos and will begin Truxima infusions every six months to hopefully keep me in remission. I am now ANCA negative with no antibodies detected! YAY."

9 / 10
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