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WHAT YOU NEED TO KNOW:
A nonepileptic seizure (NES) is a short period of changes in how you move, think, or feel. It is sometimes called a nonepileptic event or episode. A NES looks like an epileptic seizure, but there are no electrical changes in the brain. Epilepsy medicine will not stop or prevent a NES. A NES is a serious condition. Early diagnosis and treatment are needed to prevent more problems.
Call 911 for any of the following:
- You have chest pain, tightness, or pressure that may spread to your shoulders, arms, jaw, neck, or back.
- You are having breathing problems and your lips, fingernails, or face turn blue.
- You had a seizure that continued for more than 5 minutes.
Return to the emergency department if:
- You feel like fainting or are lightheaded or too dizzy to stand up.
- You were injured during or after a seizure.
- You think about hurting or killing yourself or someone else.
Contact your healthcare provider if:
- You are depressed and feel you cannot cope with your illness.
- You are confused or cannot think clearly.
- You have new symptoms that you did not have at your last healthcare provider visit.
- You have questions or concerns about your condition or care.
You may need any of the following:
- Medicines may be given to treat a physical cause, such as blood sugar or blood pressure problems. Medicines may instead be given for severe mental stress if that is the cause of your NES. You may need antianxiety medicines to help keep you calm and relaxed. Antidepressants help decrease depression.
- Take your medicine as directed. Contact your healthcare provider if you think your medicine is not helping or if you have side effects. Tell him or her if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.
What you can do to manage NES:
- Ask what safety precautions you should take. Talk with your healthcare provider about driving. You may not be able to drive until you are seizure-free for a period of time. You will need to check the law where you live. Also talk to your healthcare provider about swimming and bathing. You may drown or develop life-threatening heart or lung damage if you have a seizure in water.
- Tell your friends, family members, and coworkers that you have had a seizure. Give them written instructions to follow if you have another seizure. Your healthcare provider can help you create a list that is specific to your signs and symptoms.
- Keep a seizure diary. This can help you find your triggers and avoid them. Write down the dates of your seizures, where you were, and what you were doing. Include how you felt before and after. Possible triggers include illness, lack of sleep, hormonal changes, alcohol, drugs, lights, or stress.
What you can do to prevent a NES:
You may not be able to prevent every seizure. The following can help you manage triggers that may make a seizure start:
- Set a regular sleep schedule. Try to go to sleep and wake up at the same times each day. Sleep problems can trigger a NES. Talk to your healthcare provider if you have trouble sleeping.
- Exercise as often as possible. Exercise can relieve stress and help you sleep better. You may feel better with 30 minutes of exercise most days of the week. Your healthcare provider can help you create a safe exercise plan.
- Limit or do not drink alcohol. Alcohol can trigger a NES. Ask your healthcare provider how much alcohol is safe for you to drink. A drink of alcohol is 12 ounces of beer, 1½ ounces of liquor, or 5 ounces of wine.
- Do not use illegal drugs. Drugs can trigger a NES. Talk to your healthcare provider if you use illegal drugs and need help to quit.
- Manage stress. Breathe deeply and slowly when you feel stressed or anxious. Relax each part of your body one at a time. Try activities that you find relaxing, such as yoga or a short walk. Music can help you relax. You may also want to join a support group so you can talk with others who have NES. Talk to someone you trust about your feelings.
- Do not smoke. Nicotine and other chemicals in cigarettes and cigars can make stress and anxiety worse. Ask your healthcare provider for information if you currently smoke and need help to quit. E-cigarettes or smokeless tobacco still contain nicotine. Talk to your healthcare provider before you use these products.
Follow up with your healthcare provider as directed:
Your healthcare provider may refer you to a therapist or psychologist. Write down your questions so you remember to ask them during your visits.
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The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.