Venetoclax for Chronic Lymphocytic Leukemia User Reviews
Brand names: Venclexta
Venetoclax has an average rating of 8.9 out of 10 from a total of 11 reviews for the treatment of Chronic Lymphocytic Leukemia. 91% of reviewers reported a positive experience, while 0% reported a negative experience.
Reviews for Venetoclax
- Susy
- May 1, 2020
Venclexta (venetoclax) "This is the best drug I've been on for CLL. I never upped it to 400. I stayed at 100, and it's done everything. I was at 464,000 on white blood cells when I started. It quickly brought me down to normal range, like in 2 months. Only side effect has been chronic UTI."
- Herb
- May 20, 2023
Venclexta (venetoclax) "Venclexta has worked wonderfully for me. When my Ibrutinib stopped working, and my counts began to increase, I was moved to Venclexta with a 6 month infusion cycle of Rituximab. I have completed that cycle now, and am back to 3 month followups with the Dr. My counts are absolutely normal, and have been almost since I started taking it."
Frequently asked questions
- Is Venclexta (venetoclax) chemotherapy?
- How effective is Venclexta?
- How long do you take Venclexta for?
- Can Venclexta be used for Multiple Myeloma?
- Anonymous
- Taken for 1 to 6 months
- January 17, 2023
Venclexta (venetoclax) "I am on cycle 4 of Gazyva and Venclexta. I have experienced zero side effects and feel great. The Venclexta reduced the size of large lymph nodes from day one and they are now non-palpable. I take the medication with my evening meal and can't even taste it. Hoping it continues to work so smoothly."
- Lou...
- Taken for 6 months to 1 year
- May 26, 2024
"I am just ending month 11 of venetoclax, teaming it up with obinutuzumab for the first 6 months. My blood work has been normal for 6 months. A bone marrow biopsy showed no CLL cells last week. I experienced sore joints, sore muscles, and a cumulative (worsening) lack of energy and exhaustion. It seemed to be worse month after month. I also gained 60 pounds over the 11 months of treatment. I worked up to 400 mg daily. I am looking forward to stopping venetoclax and hope these troublesome side effects dissipate."
Are you taking this medicine?
- Arrow...
- Taken for 6 months to 1 year
- March 14, 2024
"So far, pretty unremarkable as far as side effects. Minor headache, nausea, more noticeable is muscle aches at night. Knee pain, difficulty getting comfortable when lying down. But I’ll take these minor inconveniences for the results that I’ve experienced so far. 1 year plan, 6 months in!"
- Julian
- Taken for 2 to 5 years
- September 20, 2023
"I have Chronic Lymphocytic Leukemia for many years. From 2020, September, I started to take these pills: 2 pills (2x100) = 200 mg every day till now, Sept/20/2023. What you need to know is that this medication has side effects, such as tiredness, joint pain, constipation, etc. Besides that, this one makes me feel very good and enjoy my life as much as I can. When I started to take it, I started with 50mg for a week, then 100mg, 200mg, 300mg, and now 400mg. My doctor, who is a very good Oncologist, has successfully treated me for more than 11 years. This medication is the second one I've tried since 2020, and I'm very happy because my body reacted well to the medicine, in conditions that I did not expect. Thank you to everyone who was and still is around me,"
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- Liz
- Taken for 6 months to 1 year
- September 19, 2024
"Finished my venetoclax / obinutuzumab year-long treatment in May. Excellent drugs. Little or no side effects. Could continue with my life as usual for the duration. Some mild tiredness, but nothing else. With the exception of weight gain, it's been win-win. Don't hesitate. It's literally life-changing."
- BNW
- Taken for 1 to 6 months
- September 8, 2024
"Still ramping up, max dose of 400 mg expected this week. Have found the tablets quite easy to swallow and thank you for coating them, as I have some difficulty in swallowing non-coated ones. Can’t understand, however, why there isn’t a 200 mg tablet, as the top dose of 4x100 for the next 12 months is a bit hard to swallow along with my other meds. Side effects have been limited to mild headaches at times, medium constipation, with restlessness a lot of the time. Along with the infusions, hematologist believes it has contributed to a strong response/reduction to my cancerous nodes."
- Jonfr...
- Taken for 6 months to 1 year
- May 23, 2023
Venclexta (venetoclax) "Worked on fixing blood counts but caused side effects over time and had to stop. I had extreme muscle pain and gained about 20 pounds in about a year. Previously had FCR chemo and then ibrutinib."
- j alt...
- August 26, 2024
Venclexta (venetoclax) "It is keeping my white cells under control. 100 mg pill is easy to take. I hope it does not cause any problems with any other organs?"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Venclexta (venetoclax) "Easy! I combined my venclexta treatment with gazyva infusions. I was improving almost immediately. No side effects except mild fatigue occasionally. Never got sick during year long treatment. Hoping for a deep and long lasting remission!"