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User Reviews for Remodulin

The following information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Condition Avg. Rating Reviews Compare
Pulmonary Hypertension 5.7
4 reviews 22 medications

Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.

Reviews for Remodulin

Juls · Taken for 1 to 2 years September 10, 2020

For Pulmonary Hypertension: “Well I tried Remodulin for 1.5 years and tried real hard to stay on it. The side effects I had was pain throughout my body which became intolerable ie.jaw pain,, headaches, total pretty much every thing. I am sure this medication will work for some but definietely need to be aware this is no joke on the side effects. When they say a lil diarrhea this is a very much under exageration. Just fyi you've been warned. Best of luck on your journey”

4 / 10
Llporter72 · Taken for 1 to 6 months August 13, 2020

For Pulmonary Hypertension: “I take this Remodulin sub q and it has greatly increased my breathing. I lost weight and I have a lil diarrhea. I have no appetite. Headaches can be painful when titrating. Site pain is there until it falls asleep. Generally takes 7 days once new port is put in place. You change out every 6 weeks or longer or shorter. I suggest good pain management for the bad week (the 7 days waiting on site to go to sleep). Gabapentin with Acetaminophen-Hydrocodone cut my hell week to 4 days. With improvement I'll be able to take the pull form I hope. I hear the IV version is not painful as sub q.”

9 / 10
Jed 12345 February 3, 2018

For Pulmonary Hypertension: “The doctors in my area had given me two months at the most. I was taken by ambulance hospital on the verge of death ,unable to breath , kidneys shutting down , When I got there it was not looking good for me. They diagnosed me with Pulmonary Hypertension and started me on remodulin intraveneously which had to be increased gradually over a period of six weeks. The symptoms were pretty bad usually after an increase which was done every two days. But I started improving after a couple of weeks I was totally off of the oxygen and the cough I had for almost a year went away . Before leaving the hospital I had to learn how to mix the remodulin and how to change the pump- something I have to do every other day . Its compact it is just always attached to me However by wearing coveralls to conceal the tubing and keeping it in my pocket I have been able to return to work . I feel so much better occasionally have trouble sleeping , but not a lot of side effects”

Red7iris · Taken for 1 to 6 months May 9, 2017

For Pulmonary Hypertension: “I found it to have horrible side effects that caused me to have to take several other meds to deal with the side effects i.e. Jaw pain, nerve pain in legs , site pain, migraines , dizziness, nausea , confusion and depression. I did find my chronic cough was almost completely gone and I was starting to be able to walk further . I stopped after 1 month because the side effects were unbearable”

4 / 10