Ropinirole for Restless Legs Syndrome User Reviews (Page 5)

• Jus...
• Taken for less than 1 month
• January 6, 2019

"Candoitoo - I read your comments on the dosage and leg tenderness on the inside of the thigh. I had that before I started using ropinirole. I was concerned and could not figure out why that strange tenderness was there. .25 mg an hour or so before bed, then 1 or 2 of the .25 mg at bedtime. It has helped with the RLS, so it has helped with the anxiety, panic, and depression that come with sleep deprivation. Glad to hear someone else is having a similar response. Bad dreams come to me with or without the ropinirole. That seems to be part of the whole condition."

• eup...
• Taken for 2 to 5 years
• October 23, 2015

"If I could do it over, I would have never started taking ropinirole almost 3 years ago. I've had lifelong RLS. It began to really disrupt my sleep a few years ago. My doctor gave me a prescription to relieve the severity of my symptoms. I began to sleep at night, and my legs were not jumping all day. However, the negative side effects creep up on you over time; they are even worse when coupled with existing depression, bipolar, anxiety, PTSD, and other mood issues. I have gained at least 30 lbs in the last 3 years (and I exercise EVERY DAY). Plus, when I run out of pills, and I can't get a refill in time, that means I cannot sleep. My new doc is helping me get off of ropinirole for good."

• BAR...
• April 19, 2016

"Knew I had something wrong with me, didn't know for the longest time that it was RLS! Doctor tried 1 or 2 other pills, worked for a minute, then stopped! Started Requip some years ago, there was a side effect adjustment to be sure! I discovered that the '3 hours before bedtime' was too long for me, and then once I took a pill, could not eat or drink, not even water, or I would throw up. Now I take a pill (4 MG) every night immediately before I get into bed, and per sleep studies, I have gone from 39 leg movements per hour to zero! And help me if I don't take a pill before bed, there will be no sleep if that happens! I always carry some in my purse in case I get stuck somewhere and need to spend the night! Thanks, Requip!"

• Mon...
• Taken for 1 to 2 years
• March 2, 2016

"Having had severe bouts of RLS going back as far as 1995, I was finally put on Ropinirole approx 1 yr ago by my primary doctor. He started me off on .25 mg. Over the past months, I have gone to 1 mg. I have experienced no restless leg for the last month. Unbelievable! What's more, no side effects! Even better! I have leveled off at 1 mg, and I am totally grateful for the results!"

• cat...
• July 5, 2011

Ropinirole "I have been taking Requip XL for a few years now. It worked great at first, but now I get rebound restless legs syndrome almost every afternoon. I also find that if I'm late taking it, or if I take it after the rebound RLS starts, that it takes hours before it helps. I usually end up taking Percocet to stop the painful twitching. It's better than taking nothing at all, but I would love to go 24 hours without the pain!"

• lin...
• Taken for 1 to 2 years
• August 11, 2018

"Helps me get the rest I need. Without rest, I hurt terribly from chronic fatigue syndrome. I tried to stop taking this for a few months, and I was exhausted and up most of the night with leg issues. A couple of times, I actually got up and marched in place for a few minutes. So frustrating to have RLS."

• Anonymous
• May 22, 2011

Ropinirole "Has anyone noticed that Requip XL has more side effects than regular Requip? My doctor has been giving me samples of Requip XL to take instead of my regular Requip (insurance will not pay for Requip XL). I take 6 mg per day and have taken it for many years. My dosage has been as much as 12 mg, but I have reduced the dosage to get down to 6 mg. I still have breakthrough restless legs even when I take my medicine on schedule, and sometimes when I do not take my medicine on time, I will have restless legs for hours after I take my dose. I am having severe nausea, vomiting, sweats, flushing, hot flashes, dizziness, tiredness, etc."

• Anonymous
• September 7, 2012

"I've suffered with restless legs syndrome since long before they came out with a name for it. Requip for me has been a wonder, and the only side effect I've ever noticed is drowsiness. But unfortunately, it seems like either the symptoms are getting worse with age or else my body is increasingly becoming immune to the medication, as for many years now, I experience daytime symptoms as bad as nighttime symptoms and am now up to taking a total of 4 mg/day (1 mg every 4-6 hrs), and it takes over an hour to produce results after taking, during which time I am standing at my desk at work working on my computer. Long drives, movie theaters, seminars, and flights are all things I can't do without loading up on the medication beforehand."

• Jac...
• Taken for less than 1 month
• September 6, 2019

"So I am now 46 years old and have severe RLS, which is getting worse over at least 20 years. I started on ropinirole, and I was very sick at first on 1 mg, I stuck with it, and after 5 days, it stopped. I was taking 2 mg per day, but after a couple of months, I started getting worse - I suffer from bad legs and arms, and then my whole body gets taken over by this disease! So I am now on SLOW RELEASE 4 mg, however, I feel awful every night - like I am full of the flu, feeling sick. I wondered if the fact it's a different brand may make a difference... Anyone else have this issue?"

• KSM...
• Taken for 1 to 6 months
• May 31, 2016

"So thankful my sleep doc suggested Requip. It has worked amazingly well! I am so relieved. Just the thought of having to go without it is horrifying. I was in the top 5% with symptoms. It does not last a full 8 hours for me. I also take Ambien right at bedtime. I now sleep 5.5 to 6.5 hours a night. Longest time in my whole life! I am 58. I drive a lot for work. In the evenings, I have to stop and get out to walk for a couple of minutes. Sometimes more than once. Small price to pay. No nausea. Just a couple of nights with weird symptoms."

• Who...
• December 23, 2015

"After being on high doses of Percocet for over two months due to kidney issues, I quit my pain meds cold turkey. My RLS went from irritating restless legs to insanity-causing restless body. Opiate detox can apparently cause RLS to greatly intensify if you cold turkey off your pain meds. My Requip now does absolutely nothing for me. It was hard enough remembering to take one dose at 5 pm and a second dose an hour before bed to begin with. Now that it's stopped working, I've reverted back to taking pain meds at night just to help the RLS. Unfortunately, pain meds don't help me sleep, but at least I can lay still and stare at the ceiling."

• She...
• Taken for 5 to 10 years
• October 5, 2015

"Began taking ropinirole 0.5 mg in 2010, 1 mg in 2012, and 2 mg in 2014. Worked really well. Began causing side effects such as agitation, anxiety, and worsening restless leg syndrome. Took it at 11 pm before bed, started having symptoms again at 8 am. Can't sleep without it though. Ugh."

• Res...
• February 26, 2017

"I have been on Requip for 3 days now. 1 mg total. It's done nothing. I'm exhausted and want to sleep, but the RSL keeps me up. I average about 4 hours of sleep a day now. I spend hours in my chair with my arms and legs shaking. It's pure hell. Sometimes I feel like taking a chainsaw to my limbs."

• Nic...
• December 5, 2015

Ropinirole "I was taking amitriptyline for years, but started losing memory, then I started losing time. With Alzheimer's strong in family history, I had to make a change to my medication. I tried Horizant, 300 mg for a while, then bumped up the mg to 600/night. It still wasn't helping. My legs got worse and worse. I was taking Benadryl just to sleep, and sometimes even that didn't work. Fed up with crying and writhing in pain, I called my doctor who put me back on Requip. 3 mg to start. It was terrible! Incredible nausea, vomiting, sweats, syncope.... worst night of my life! I thought I was going to die! Luckily, my fiancé is a medical assistant, otherwise, I probably wouldn't be able to write this."

• Bag...
• Taken for 1 to 2 years
• October 6, 2019

"I'm on 4 mg. It works, but I have terrible side effects from it. However, RLS is incurable and is worse, so I still need to take it. 45 minutes after taking it, I get nausea, fever chills, and body aches. It makes me tired, which is fine by me."

• Jwr...
• Taken for less than 1 month
• February 15, 2017

"Unfortunately, I couldn't handle this medication for even a week. I was on 0.25 mg once a day (at night). I was plagued by nausea that would last ALL day. I developed moderate muscle cramping, and I had extreme daytime sleepiness that not even caffeine could help with (400 mg of caffeine not helping fatigue is more than unusual). I fell asleep in the bathtub while taking a bath. When I woke up, my head was nearly fully submerged, the water line was literally at my mouth. Unfortunately, I had to discontinue. The nausea was the worst part. Feeling like I want to puke all day long is terrible. It might work for other people, but this med is definitely NOT for me."

• pep...
• August 19, 2017

"I have had RLS for a good 15 years. I have taken about everything there is for it, and one thing I have found is no one thing works for everyone. Ropinirole has worked the best, but even that I will have a night now and then when they get really bad. The side effects of ropinirole are tiredness. I call it tired, but it is really total fatigue. I can usually keep going for a time when I am tired, but with fatigue, you have to give up and lay down. I don't go to sleep usually as I am not sleepy, but have to lay down. I sleep pretty well at night, but wake up in the morning feeling like I haven't rested at all. There is no describing RLS unless you have it really bad, and thank God most that I talk to don't."

• Can...
• Taken for 10 years or more
• March 17, 2018

"I have experienced RLS for the past 10 years and started with .25 mg of Ropinirole about two hours before bedtime. Now I am up to .50 mg at dinner time and .25 mg at bedtime. I realize I can be taking a higher dose, but since I don't have the issue during the day, my doctor would like me to stay at a total of .75 mg. However, as several people have indicated, it seems as time goes on, you need more of this product to keep the RLS at bay. Most nights it works, but some nights there is no relief unless I take another .25 mg. Makes me sleepy, yes, but that is a good trade-off. I have also found that when the RLS acts up, I have a very tender spot on my leg just above the knee and towards the inside of the thigh. Using a vibrating massager on this area seems to help calm the RLS. Once the RLS is under control, the tenderness is less severe and even goes away. Wonder if anyone else has experienced this? Anyway, thank goodness for the meds, at least something helps most of the time."

• jen...
• November 29, 2008

Ropinirole "I have chronic kidney disease that can cause RLS. It was wonderful at first when they started me on 0.5 mg. As side effects go, I got a nice relaxed feeling with nausea. Then I started to get the RLS again and had my dose upped twice. Now I take 2 mg of Requip with 1 mg Klonopin. Still can get a little restless. Still looking for the perfect pill. For those of you like me on dialysis, I don't think there is much hope but prayers. Sometimes they work, sometimes they don't."

• Hea...
• Taken for 1 to 6 months
• March 2, 2018

"I found this medicine to be a lifesaver. I wasn’t getting any sleep whatsoever and was up all night crying with my legs jumping all the time and a feeling of tickly legs. I had to take vitamin B12 and iron tabs three times a day, then this medication once at night. The instructions say to take 1-2 hours before bedtime, but I find that after I've taken this, I’m asleep within half an hour. I don’t feel myself drift off to sleep, I’m awake one minute and out the next. It made a huge difference to my life and comfort at night."

• Tho...
• January 1, 2011

Ropinirole "It took over 5 years before I was able to find out what I had in my legs, and behold, it was Restless Legs Syndrome. They gave me Requip, and it was great for about a month or so, no pain when I sat down, which was when I always felt the pain. But like some other users, I would wake up and dry vomit, or vomit, depends on how long it was since my last meal. It was not worth the morning sessions, so I stopped taking it. I hope this works for other people, but I am waiting for a better option. I would like to point out also my legs didn't hurt after I threw up, but it just was not worth it."

• Ezy...
• August 18, 2016

"Been dealing with restless leg syndrome for about 2 years. It kept me from falling asleep. First, they gave me Flexeril, and it did nothing. Then a miracle came about, and I was prescribed Ropinirole, and my legs haven't twitched since. Amazing drug, I must say. My sleep has improved greatly."

• Lau...
• January 2, 2015

"I am 34 and have had restless legs syndrome since I can remember, back probably to 3 and 4 years old. I started in 2006 when it was still brand, and the nausea took some getting used to but generally went away within 2 weeks or so. I stopped it after a year and was placed back on it last winter. I don't know if it's something about the generic or what, but the nausea this time has been horrible, to the point I have actually vomited and have to be ready to get in bed and fall asleep before the nausea kicks in. The thing is, it WORKS. I am prescribed 1 mg but can only really tolerate 0.5. I wonder if going back to brand will help."

• Kas...
• Taken for 2 to 5 years
• January 18, 2017

"Was officially prescribed codeine for restless leg syndrome. The first night I slept like a well-fed and burped baby. Awesome, but it didn't last. Was then prescribed ropinirole 0.25 mg at night. Worked well, but 2 years later, the dosage has had to be increased to 2 mg. Works well, but I'm experiencing awful nausea, loss of appetite, and the thought of food makes me want to vomit. I hope this will pass."

• lbf...
• Taken for 10 years or more
• May 2, 2012

Ropinirole "I started with the Requip Starter Kit about 14 years ago. I remember this medicine being a life-saver. Without Requip/ropinirole, I would have no life - I can't imagine this medication not working for me any longer. That is something I dread, but I have been very, very lucky, this medicine saved my quality of life with no side effects!"