Ropinirole for Restless Legs Syndrome User Reviews (Page 4)

• Res...
• December 31, 2015

Ropinirole "I have had RLS since I was 14. I am now 42. RLS is a miserable existence. An annoyance beyond belief. I have gone with no sleep for 3 days at a time more than once because of my legs, or legs and arms, or even knees and a shoulder joining in to laugh at me. I have been on Mirapex most of my adult life at 1 mg, being told I could take 2 on bad nights, and it worked most nights, but most of my adult life I have taken Mirapex 1 mg, gabapentin 300 mg, trazodone 50 mg, and Tylenol #3 every night... just to go to sleep. And it took all of that just to go to sleep. A doctor might look at you like you're nuts if you ask for all that, but I'm telling you it will work. I moved, and my new doctor decided to take my Mirapex away and try me on Requip... fail..."

• Vis...
• Taken for 2 to 5 years
• May 25, 2017

Ropinirole "I've had RLS for about 5 years. I was on Nupro for about a year, and it worked well until the last month, then it was like it made it worse. I've been on Requip for almost 2 years and have had to up my dose a couple of times. I now take Requip ER in the morning around 11:00 am and take a 2 mg pill at 8:00 pm and sleep through most nights."

• Dag...
• February 18, 2012

Ropinirole "I have had restless legs syndrome since before there was any medicine or before they put a name on it. I called it shaken leg syndrome. Then finally, my Dr. put me on Requip as soon as it came out. I went up to 4 mg quickly, but I had it all over my body, so I went out searching again online and found 'NATURE'S INVENTORY.' They have an oil for RLS, and it works for moderate or less. So I use the oil when I'm out and about because Requip makes me very tired. I only have to take 2 mg Requip as long as I use the oil, too. Other side effects with Requip are: sweating, nausea. I nibble on my pill over about 2 hours and have no side effects that way. I can't imagine life without Requip."

• khs...
• Taken for 10 years or more
• January 28, 2016

"Have been taking ropinirole for probably 10 years and could not exist without it. If I forget to take it, I panic because I know my legs will start their crawling dance. As for the side effects that I read about, I have been extremely lucky to have dodged any. I shudder to even imagine this drug being taken off the market."

• Hip...
• Taken for less than 1 month
• October 30, 2019

"My doctor just prescribed ropinirole for my RLS, but after reading the experiences of most other people who are taking it, I'm terrified to try it. With PTSD, depression with anxiety, and panic disorder, this stuff just might harm me."

• Dot...
• February 22, 2013

Ropinirole "I have had restless legs syndrome for 5 years. I started Requip at 1 mg, now I am taking 2.5 mg. I have had morning sickness every day. Nothing else works. I am hoping the path will work. I am willing to try anything."

• MoM...
• Taken for 1 to 2 years
• November 20, 2015

Ropinirole "Requip was life changing for a year! But like others have commented, my RLS has been getting a lot worse. I have discovered that this is a rather common side effect of this drug. Before Requip, I used to have 3-4 bad nights a week. Now, if I don't have access to the medication, I don't sleep at all, and the medication is working less and less. I don't know if it has been worth it."

• kas...
• March 17, 2009

Ropinirole "After taking Mirapex for about a year, then developing horrible nausea and vomiting, my doctor switched me to Requip 0.5 mg at bedtime. This time, the relief from RLS only lasted about a week. After that, the nausea and vomiting returned with a vengeance, and I had to discontinue the medication immediately."

• Anonymous
• February 6, 2020

"I started taking a 3 mg dose of ropinirole at night for my restless legs. I've had horrible restless legs for the past 2 years since I had my daughter. An hour after I took this medicine last night, I was very nauseous and started throwing up. I didn't have restless legs last night, but I was very sick for about an hour. I'm trying this medication one more night to see if I can get by without getting sick. If I do get sick again, I'm going to only take half of the medication next time."

• Pat...
• April 21, 2011

Ropinirole "I have been using Requip for approximately 10 years now for severe restless leg syndrome, which affects my entire body, not just my legs. I take 4 to 5 1 mg tablets a day and don't know what I would do without Requip."

• Bri...
• November 4, 2013

Ropinirole "I'm on 4 mg of ropinirole, and that used to be enough, but lately it is not. I was told by my doctor not to take any more than 4 mg per day. But I can't take it. The past two days I have taken 5 mg per day. Does anyone else take more than 4 mg per day?"

• rfi...
• Taken for 2 to 5 years
• December 21, 2018

"ADHD all my life, but RLS started after back surgery after a 40 mph bicycle accident. I was 62 then and am now 70. The symptoms start in the late afternoon or early evening and preclude anything like sitting quietly, reading, or watching a movie. At night, it was impossible to sleep, and I was getting depressed to the point of crying and having thoughts of ending it all. I'm now taking 3 mg at 8 pm (3 hrs before bed) with 30 mg of THC orally. Prior to the THC, the Requip would only afford me about 4 hrs of sleep a night. The THC helps with the nausea, hot flashes, and helps me get to sleep and stay asleep. Now I get 8+ hrs of sleep most nights. If anyone pursues this course of action, BE ADVISED, start out with 5 mg THC and increase as needed OVER WEEKS OR MONTHS! This combo has saved my life. Comments I've read here have brought me to tears. I hope this will help some of you. One person mentioned that it helps with ED. I can verify that. However, it does nothing for libido."

• Jen...
• Taken for 1 to 6 months
• April 13, 2019

"So I started Ropinirole 1 mg for restless leg syndrome, and it helped so much with my legs. After I took it, though, it made me very tired. Like I was in bed asleep by 8 pm. I slept awesome, best sleep in years. Then after a while, my doctor increased it to 2 mg because it seemed to not last all night. In 2-3 hours after taking 2 mg, I threw up everything! Took it with food, without, tried... but it was ridiculous how much I was getting sick. Reading people's experiences, I've also had increased muscle aches, cramping in legs, and neck stuffiness, so I'm thinking this isn't right for me."

• Sha...
• March 11, 2017

"This medication has been a lifesaver for me. Sometimes I would lay awake for 4 hours, miserable. Walks, hot showers, I researched for 4 hours looking for a solution. As soon as I started taking this medication, I noticed a very big improvement. There is one downside to it. When I take this, I am asleep within 30 minutes. I am on the 4 milligrams. I am feeling very blessed to finally have a solution to the restless nights."

• Bev...
• Taken for 6 months to 1 year
• May 26, 2013

"My Restless Legs Syndrome developed after a back injury, where I was diagnosed with 3 bulging disks and degenerative disk disease about 12 years ago. At first, it was only occasional, and popping my back would sometimes help. The last 3 years, it developed into an every-night hell. The last 6 months, I've been on ropinirole 3mg (worked up to the 3mg), and it was working perfectly! But the last month or so, I have started getting RLS during the day. I'm considering asking my Dr. to increase my dose to 4mg to see if that will keep it at bay. Whether I do or not, I will keep taking it every night because I would rather have RLS during the day when I can walk around than when I'm trying to sleep at night."

• Wal...
• May 21, 2014

"This medicine is a godsend! I've suffered from restless legs syndrome for the past 15 years. On the worst nights, I found myself laying on my stomach, beating my legs against the mattress, literally! My ankles just wouldn't stop twirling! I would cry and pray all night long for just a tiny moment's peace, just long enough to fall asleep! Well, until this medication, it never happened! I take 4 mg a few hours before bedtime, and my legs (and most of the rest of my body) are so calm, I am asleep within 10 mins! I have also tried Mirapex, but did not get such results as with Requip. Good luck!"

• sal...
• February 17, 2012

Ropinirole "Requip was effective, and I thought that I couldn't live without it. However, after about 10 years of increasingly disturbing nightmares, one dangerously extreme nightmare made me realize that something was very wrong. After stopping the Requip, problem solved. Now I take one Aleve one hour before bedtime, and most nights sleep okay. I have heard that some doctors believe that RLS is actually a spinal disc problem, and since I do have a bulge in a lower back disc, this could be my problem."

• Gen...
• August 4, 2010

Ropinirole "I have been using ropinirole for about 2 1/2 years now. I finally can get a good night's sleep. I take it nightly; I can't forget to take it because my legs start getting restless. I have had to increase the dosage to 2 mg, and I have never experienced any side effects to my knowledge."

• whi...
• Taken for 5 to 10 years
• July 14, 2018

"I suffer with restless legs, I have for years. I suffer with this 24/7. I have gotten to the point where I have thought of taking an overdose. It is ruining my life. I can't stand much more of it. I've been to the doctor again, and he has prescribed me Ropinirole 25 mg, which has made me worse - stomach pains and very bad nausea the next day. I can't take this no more. I take Temgesic 400 mg, 4 to 5 a day, dissolve under my tongue, which helps me a lot, but I cannot now sleep for more than an hour, which is making me very ill. I do not know what to do anymore. The hospital believes it was nerve damage in my lower legs. The pain in my calf muscles is unbelievable, from top to bottom, my muscles flinch terribly. I am finding it very hard to cope with it now."

• Rio...
• August 26, 2016

"I have had RLS since I was a teenager, and the older I got, the more severe it became. I have had many serious and extremely painful surgeries on my back and spinal cord, but nothing is as bad as RLS. I have been on Requip for almost a dozen years now. For me, it has been a miracle drug. I can barely even compare my life before to after Requip. Started off at 0.5 mg and am currently at 7 mg. Each year I had to increase it little by little. Recently, it has stopped working well even on such a high dose. I am barely sleeping at night and getting miserable again. I knew the day would come, but I sure wish I could get a bit more time on it, but the writing is on the wall, I will have to try another treatment, I suppose."

• mst...
• November 3, 2015

Ropinirole "Was on Clonazepam 1 mg as needed. Doctor found out that it causes Alzheimer's and dementia, so they took me off it. I tried Requip, but it made me feel crappy. When I stood still, I felt like I was going to fall, I completely lost my appetite, and other things."

• Pha...
• Taken for 5 to 10 years
• September 5, 2015

Ropinirole "I have been on Requip for about 6 years and have a severe case of RLS. My leg spasms have worn out many sheets. I would have to say I have a love/hate relationship with Requip. I take a 5 mg tablet 1 hour before bed. Almost like clockwork, 22 to 25 minutes later, I feel miserable with a constant feeling of the need to puke, but I don't. I have always had insomnia, which got worse on Requip. I have been able to address the insomnia with trazodone, and it works well. I have read others' posts, and I think I am going to talk with my doctor about spreading it out in 3 different times to take it. In the past 6 months, I have begun to have twitching in my arms, shoulders, and wrists."

• Lin...
• Taken for 10 years or more
• November 1, 2016

"I have had RLS for perhaps 35 years or so. It would start and stop. But about 5 years ago, I started on 0.25 mg of ropinirole. It takes an hour to work, so I took it at about 8 PM. But over the years, the dosage crept up to 0.50 mg once at 4:30 PM and once at 6:30 PM, and I was good for the night. Some nausea and some sleepiness, which were okay. Then the two pills turned into an additional pill of 0.5 mg in the middle of the night. Still okay. But then, about 6 months ago, my doctor sent me to an RLS sleep specialist. What a nightmare this began. The specialist tells me that I will just continue to take more and more, and eventually augmentation would start. This site will not let me finish my story."

• squ...
• August 28, 2011

Ropinirole "I've been on 1 Requip for a couple of months with *great* success. Last night, however, I got my first breakthrough restless legs syndrome; it lasted all night and was excruciating. I took baths, did some stretching, and even took another Requip. I got about 4 hours of sleep, but RLS woke me up again this morning, and it's the same. I've read that many people have had to up the dosage on this medicine, but this happened to me so soon after taking it; I'm sort of nervous. I don't want to increase the dosage already - it's only been a month. Thank you for mentioning that some of you have RLS breakthrough if you are dehydrated or something else."

• Jus...
• Taken for less than 1 month
• January 6, 2019

"Candoitoo - I read your comments on the dosage and leg tenderness on the inside of the thigh. I had that before I started using ropinirole. I was concerned and could not figure out why that strange tenderness was there. .25 mg an hour or so before bed, then 1 or 2 of the .25 mg at bedtime. It has helped with the RLS, so it has helped with the anxiety, panic, and depression that come with sleep deprivation. Glad to hear someone else is having a similar response. Bad dreams come to me with or without the ropinirole. That seems to be part of the whole condition."