Rituximab for Non-Hodgkin's Lymphoma User Reviews

• Anonymous
• October 3, 2011

Rituximab "After the first round of chemo with Rituxan, my lymphoma lump was completely gone to the touch. Yes, I did have a mild reaction the first time Rituxan was administered, but it was easily resolved with a little Benadryl and a slow down of the Rituxan drip. I did not have any allergic reaction of the subsequent two rounds of chemo. After only three rounds of chemo, I had another PET/CT scan and was deemed in total remission. Almost a year later and still no return of the lymphoma, and I feel great. It is amazing what medical science can do today to treat and cure people of cancer."

• Dua...
• March 30, 2011

Rituximab "Extremely important medicine for me with Lymphoma low grade stage 1 under my right eyelid. Very rare location for lymphoma. The first time I did 4 sessions with Rituxan in Jun/2010 and now March/2011 the second time. The pictures show my eyes before and after and big difference this medicine made. Thanks doctors and nurses for brilliant work. Itchy was my first side effect and second time no side effects at all. Highly recommended."

• jmb...
• Taken for 5 to 10 years
• May 14, 2013

Rituximab "In 2009, after 6 rounds of R-CHOP chemo, then BCNU chemo in the hospital, and a bone marrow transplant, I had 3 years of remission. In Oct. 2012, I was rediagnosed out of remission and started on 6 rounds of bendamustine and Rituxan. The 6th month was skipped due to a low WBC of 2.4. I will continue on Rituxan for maintenance. I began my journey at stage 4E. I was rediagnosed after a fall in May and was back to stage 4 by October 2012, so the combination of bendamustine and Rituxan has done good. I will receive Rituxan every 3 months or sooner as a precautionary measure."

• rlh...
• December 4, 2010

Rituximab "Just finished my sixth round of chemo treatment. I had Follicular B-cell Lymphoma. One on my right shoulder, one on my neck, and two on my chest. After the fourth round and a PET scan, the doctor diagnosed me as being in 100% remission. I will do more research on the Rituxan maintenance program recommended by my oncologist. I had a reaction to the Rituxan during my first treatment, but did not have any other problems with the medicine. Highly recommended."

• exa...
• October 21, 2011

Rituximab "I had Rituximab treatment over four weeks for a lymphoma on my newly (three months) transplanted kidney. The result was total remission, which truly amazed me. It's almost three years now, and I often think about what situation I'd be in if it hadn't been detected purely by chance."

• Suz...
• Taken for 1 to 6 months
• February 25, 2017

Rituximab "After 6 rounds of chemo (2 drugs, 2 days - Bendamustine & Rituximab), I had Stage 3 B-cell lymphoma, I am cancer-free. My oncologist wants me to do a maintenance program of the Rituximab every 2 months for 2 years. Is the maintenance necessary?"

• why...
• December 11, 2008

Rituximab "This is my second round with Rituxan (3 and 1/2 years ago and now). Two years ago, I had Bexxar. The first infusion helped shrink the nodes and spleen but only by 1/2. The Bexxar brought them to normal size. I'm trying Rituxan again because two nodes popped up 2 and 1/2 years after the Bexxar. It is hoped that the Rituxan will operate as maintenance to remission. If so, the two enlarged nodes will be radiated to keep growth in check."

• Nee...
• Taken for less than 1 month
• November 16, 2019

Rituximab "I had my first treatment two days ago for NHL, and other than flu-like symptoms once or twice a day, I feel good for at least 6 hours, and then I will take Motrin and feel good another 6 hours. I feel great in the morning and go downhill in the afternoon. What's odd is that my hip and leg pain on my left side is going away. I don't know if Rituxan can work that fast, but I feel better already. I have the infusion once a week, so we'll see how I continue to do. But so far, I'm only missing one day a week of work, and that's my infusion day. The next day is a little tough from feeling so tired, but then I feel back to my old self for a few hours."

• Anonymous
• Taken for 1 to 6 months
• April 3, 2016

"I had three treatments of bendamustine and rituximab for indolent follicular lymphoma. It seemed to work well on the lymphoma, which has not completely gone, but after the third treatment, I developed shortness of breath. It took doctors a month to diagnose it as rituximab-induced lung disease (bronchiolitis obliterans). I am now permanently and severely disabled, unable to walk more than 10 feet, extreme difficulty in caring for myself. I am 55 with no other medical conditions, three months ago, I could run, ski, and enjoy life. This drug destroyed the quality of my life and created complications for fighting lymphoma. The doctors said it was safe. I was not told about the serious and potentially fatal side effects."

• Jim...
• September 2, 2017

"I started this treatment for Chronic Fatigue Syndrome. However, since my first treatment, my fatigue has become debilitating. I don't have enough energy to do any of the things I normally do. I had 4 treatments in May, then 4 more infusions in August. The fatigue lingers like a fog that will not lift. My sleep pattern has changed. I wake up 3 to 5 hours after going to sleep feeling wide awake. I cannot stay in bed, though I am still sleepy. I have dreams that are so realistic that I participate in them or act them out. My attention span is shot. I can't concentrate on what I am trying to do and end up jumping from one thing to another."

• Wai...
• Taken for less than 1 month
• February 12, 2022

"Had first round yesterday. Midway, had a reaction of extreme chills and shakes. Benadryl and reduced drip to counter. I should have waited longer after treatment to walk. Got just outside building and dropped like a rock. Spent next eight hours in E. All my fault. Have another scheduled in one week. Will take snacks along and wait longer after treatment to become ambulatory."

• Tor...
• Taken for 2 to 5 years
• May 27, 2024

"Well tolerated, appears effective. Seems to cause moderate to severe muscle pain at times during my 3-month cycle. But I am VERY active, cycling 20+ miles at competitive speeds, playing fast ice hockey, and skateboarding often. There are a few weeks per cycle when I experience substantial muscle pain, including many more trigger point knots than usual. Massage and NSAIDs help tremendously."

• Llo...
• Taken for 1 to 2 years
• April 30, 2024

"My first infusion was difficult in that I experienced severe itching. The pharmacist on my case prescribed medications to help get me through the initial infusion. I was able to tolerate subsequent infusions more easily. After my infusions, I did have asymptomatic periods where my lymphoma did not cause as much fatigue, and my complete blood count levels did improve."

• vip...
• Taken for less than 1 month
• January 18, 2024

Rituximab "I had my first infusion last Friday and was premedicated with Benadryl, Tylenol, Pepcid, and a steroid. It was started slowly, but after being bumped up the second time, I became short of breath and dizzy, feeling like I was going to pass out. It was stopped and I was given more Benadryl & Steroid through my IV, waited an hour, and started again but got a headache and body aches. It was stopped, and I was told to go back on Monday to try again. I was given the same starting meds plus the injection of steroid prior to starting, and I had no reactions and was able to finish the entire infusion. I am hopeful the next three over the next three weeks continue to go well. The nurses said most people they have seen have a reaction to the first infusion but then do well after that. I do feel like I have more energy already, but that could be from all of the steroids."

• hat...
• Taken for 6 months to 1 year
• October 21, 2012

"I had chills, shakes, and low blood pressure at my first infusion. Subsequent infusions were easier, but still difficult. I think it's 8 out of 10 due to side effects, and I know it works well for many people. Not for all, though."

• Sun...
• Taken for 2 to 5 years
• June 3, 2024

Rituximab "Really hurts doing injections in lower arm. After last one, I was really tired for about 2 weeks. Been taking injections every 2 months but changed something before last one. Maybe the manufacturer. Also, heart problem showed up and had to have a stent about 2 months later. Don't know if the drug had anything to do with that or not."

• Din...
• Taken for 1 to 6 months
• January 31, 2025

"First chemo (mini R-CHOP due to age of 81). Rituximab given via IV. No side effects at all. Second chemo, Rituximab given in the stomach area subcutaneously. Two days later, struggled to walk when getting out of bed. No pain. Just very clumsy and wobbly. Never any trouble walking like in my 81 years. Dissipated some after an hour, but remained to a lesser degree. Will see what happens tomorrow."

• Anonymous
• February 29, 2012

Rituximab "I am doing maintenance with Rituxan for Non-Hodgkin's Lymphoma. My last chemo was in March 2011. This medicine saved my life, and continues to do so."

• Lt_...
• September 21, 2008

Rituximab "I thought this was a spectacular medicine, very quick-acting, engorged lymph nodes were reduced within about 7 days. I am now in remission and doing maintenance."

• Chr...
• Taken for 2 to 5 years
• May 6, 2016

"2 years on maintenance rituximab after 8 cycles of RCVP. 15 months later, 5 lymph nodes biopsied in breast. Think it has grown again. I was stage 4B. I went into partial remission."

• Ano...
• Taken for 6 months to 1 year
• April 11, 2025

"Amazing results for splenic marginal zone lymphoma."