Rilonacept for Familial Cold Autoinflammatory Syndrome User Reviews

• Nan...
• August 22, 2009

"I was introduced to a study of Arcalyst in Columbus, GA, in January of 2007. I was tested and found that I have Familial Cold Auto-inflammatory Syndrome, which I have lived with for 55 years. This has been a terrifying disease of misery and pain. But since the Arcalyst injections, from the first one, it has changed my life. I am able to work and do anything I desire, pain-free. I thank God every day for Regeneron Pharmaceutical Company for this long-time study and hard work they have put into this treatment. Everyone needs to try this. My daughter and granddaughters also have the FCAS and are doing great. Thank you for the time to express to others the importance of never giving up! Keep the faith."

• Anonymous
• October 1, 2012

"I am 31 years old and just started taking this medicine 10 weeks ago. I don't even know how to express the jail I was in before this medication. For the first time in 30 years, I don't have to worry about what the weather will be like and being embarrassed by the bumps on my face. It sometimes doesn't even matter if it is cold, just a slight breeze or air conditioning can cause it. I have been freed from jail. More exciting is I'm able to share this with my 78-year-old grandmother, my 60-year-old father, uncle, my brother, and hopefully with my kids one day. AMAZING!"