Arcalyst User Reviews & Ratings

• sic...
• February 20, 2023

For Pericarditis "After having a scare of open-heart surgery at 33 years old, I took a chance and started taking Arcalyst. I have had 3 injections, and it has reduced the pericarditis by about 80 percent. I now have no need for the surgery. I hope this review can help someone else to prevent surgery for them."

• Gra...
• Taken for 2 to 5 years
• January 9, 2025

For Pericarditis "It is a miracle for my recurrent pericarditis and my need for steroids to control the disease. I could not go below 25 mg of prednisone before my first injection. I was on at least 25 mg of prednisone for over 20 years, daily. From my first injection of Arcalyst, I was able to begin weaning the pred. It has been almost 3 years. I am sustaining 2 mg of prednisone per day at this time. I have injected Arcalyst every week since that first one. I’ve had very little issue at all with pericarditis. Now my body is feeling the effects of running on prednisone for all of these years. If you have a tough case as I did, do it now! Gave me my life back."

• Nan...
• August 22, 2009

For Familial Cold Autoinflammatory Syndrome "I was introduced to a study of Arcalyst in Columbus, GA, in January of 2007. I was tested and found that I have Familial Cold Auto-inflammatory Syndrome, which I have lived with for 55 years. This has been a terrifying disease of misery and pain. But since the Arcalyst injections, from the first one, it has changed my life. I am able to work and do anything I desire, pain-free. I thank God every day for Regeneron Pharmaceutical Company for this long-time study and hard work they have put into this treatment. Everyone needs to try this. My daughter and granddaughters also have the FCAS and are doing great. Thank you for the time to express to others the importance of never giving up! Keep the faith."

• Anonymous
• October 1, 2012

For Familial Cold Autoinflammatory Syndrome "I am 31 years old and just started taking this medicine 10 weeks ago. I don't even know how to express the jail I was in before this medication. For the first time in 30 years, I don't have to worry about what the weather will be like and being embarrassed by the bumps on my face. It sometimes doesn't even matter if it is cold, just a slight breeze or air conditioning can cause it. I have been freed from jail. More exciting is I'm able to share this with my 78-year-old grandmother, my 60-year-old father, uncle, my brother, and hopefully with my kids one day. AMAZING!"

• Pat...
• May 7, 2025

For Pericarditis "This is my wonder drug having severe pericarditis for 6 months. Started Arcalyst. Since I've been on it now for 4 years, I'm doing well. My doctor is going to start weaning me off Arcalyst. My blood test is normal."

• Sus...
• Taken for 1 to 6 months
• April 15, 2024

For Pericarditis "It has changed my life"