Pentosan polysulfate sodium and Swelling: What Users Say

• gou...
• October 24, 2007

For Bladder Infection "I was put on Elmiron. I rapidly developed swelling, weight gain, and blinding headaches. My doctor said headaches were seldom from the drug... he also said the weight gain/swelling were not associated with the medication. I went off the medication for five months, all problems went away. I went back on a trial of it and gained 5.5 lbs in two weeks and had headaches, as well as swelling, again!"

• Unc...
• November 28, 2014

For Bladder Infection "I was on this medication 8 months ago. The first three months were okay, no obvious side effects. After a problem at the pharmacy, I didn't have access for 3 weeks and then continued on it for another 3 months, and I am having the bad abdominal pain and swelling yet again. This time it feels like a radiating infection type of pain. Sharp pains in the front where I suspect my bladder is. I am now having this bloody mucus instead of bowel movements. I have also been experiencing hair loss in great amounts during showers. This medication seems to work at first and then begins to wreak havoc in other areas after extended use. I am on a strict IC diet, so I know that that is not the contributing factor."

• 4Ju...
• May 12, 2010

For Interstitial Cystitis "I have had improvement on issues like frequency and pain, but the medicine causes fatigue, headache, nausea, weakness, and swelling in my limbs."

• Anonymous
• July 30, 2019

For Interstitial Cystitis "My tongue swelled up twice the size, I'm allergic to it. Had to be taken by ambulance to the ER."

• lid...
• July 19, 2014

For Bladder Infection "It gave me an allergic reaction, swelling, hives, tight chest, and wheezing."