Opdivo for Renal Cell Carcinoma User Reviews

• Brad
• Taken for 2 to 5 years
• September 19, 2019

"Saved my life. Been on Opdivo (Nivolumab) for 3.5 years after being told I was about to die. All my tumors have shrunk, if not disappeared altogether. No side effects! CT scans are clear. No cancer symptoms. Doctor says I could live a normal life span. Treatment consists of a monthly half hour IV drip."

• Ray
• Taken for 1 to 2 years
• July 17, 2019

"I was on drug for almost 2 years, It worked for my bone metastasis and it shrunk my tumor in right kidney. Stage IV RCC, I was able to stop and been stable over a year now without medication. Hoping it will continue to work for a while."

• Charmed...
• Taken for 6 months to 1 year
• February 18, 2023

"December 25, 2021 diagnosed with stage four clear cell renal cell carcinoma that had gone to my lungs (non small cell lung cancer). Soft ball sized tumor on my right kidney and numerous ping pong ball sized tumors in both lungs. No outward signs that I was ill. January 19, 2022 received my first infusion. Combo Opdivo with Yervoy by infusion. Two weeks into first infusion I developed a facial tumor that tested out to be clear cell renal cancer in origin. Drs wanted to start me on Cabometyx but I declined. One week later just prior to my second infusion that tumor had vanished and was only a small sub dermal bump (subsequently all evidence of that tumor was gone). I just received my 15 th infusion today ( 4 combo Opdivo/Yervoy at 3 week intervals and now my 11th Opdivo 480 mgs once a month). My tumors, both in my lungs and on my kidney, have shrunk by 60 % and I’ve had almost no side effects (slight fatigue, minor itching, some muscle/bone pain). It’s working for me."

• GCPYS
• Taken for 1 to 6 months
• February 3, 2020

"Opdivo was the end for my husband!!! The doctors had been pushing this drug at us for 2 years. My husband finally decided to try it and 7 weeks after his first infusion he passed away due to complications from the medication!!! It caused pseudo diabetic symptoms, respiratory failure and numerous other complications!!! I would not recommend this treatment for anyone!!! I feel that they faked their trial runs to get funding for their experimental treatment!"

• For...
• Taken for 1 to 6 months
• November 24, 2021

"Daddy was on this for about 6 months. Would have been longer if his cancer didn't spread to his brain. This does not cross the blood brain barrier. This was the best medicine he ever took. Took in combination with Yervoy. Daddy had CLEAR cell RCC. It was in his stomach, liver, lung, and right atrium (heart) at the time. This medicine got rid of the cancer in his stomach, atrium, and lungs. I highly recommend this medicine. Daddy was still working at an automotive mechanic while taking this medicine. Side effects were minimal. The only thing is his immune system seemed to be more weak. That was it. He also had no kidneys left from the cancer. So he was on dialysis. I wish he could have stayed on this."

• Faith
• Taken for 1 to 6 months
• April 4, 2019

"I was on Opdivo for 4 months for stage 4 RCC. Felt good with diarrhea was the only side effect until I got blurry vision in one eye. During those 4 months I had no increase in the side of the tumors."

• Melodie...
• Taken for 1 to 6 months
• December 11, 2021

"I took 4 treatments of opdivo yervoy and I have horrible joint pain in my knees, hands, shoulders . It's been a month since last treatment and still severe pain. I wouldn't recommend it to any one. Dr. Keeps telling me it will go away. Pain medications don't work!!"

• Charmed
• Taken for 1 to 2 years
• December 20, 2023

"This is a follow-up to my February 2023 posting. I've completed my 24th Opdivo infusion with no adverse side effects. I've already scheduled number 25 and 26. Yesterday, I had my first-ever PET scan. My results were totally unexpected - NED, no evidence of disease (remission). I will be meeting with my doctor to plan my future course of treatment. I believe my Yervoy/Opdivo treatments have saved my life. Stage 4 CCRCC with NSCLC is not the end, it's a starting point. Explore all your options and go forward."

• S3ano
• January 27, 2017

"I was on Opdivo for 6 months. It really set me back, I had to quit it before it killed me."

• Kim...
• Taken for 1 to 2 years
• January 29, 2023

"Renal metastatic cancer in back and lungs also worked terrific going on 6 years cancer free."

• Bob
• Taken for 2 to 5 years
• June 27, 2023

"Drug is being administered by infusion every 28 days for about two years. No sign of cancer for many months in my CT scans."

• sdwoods
• Taken for less than 1 month
• February 26, 2024

"So far, so good. I have only had one infusion and no side effects. A couple more months and I will have a PET scan. Will know more then. I also have psoriasis so some immunology difficulties."