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User Reviews for Niraparib to treat Fallopian Tube Cancer

Also known as: Zejula

The following information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Reviews for Niraparib

Marie · Taken for 1 to 6 months July 2, 2020

Zejula (niraparib): “I was diagnosed with stage Iii-A Fallopian tube serous carcinoma in 2018. After de bulking surgery & chemo I started taking 300mg Zejula in January this year. Was debilitating until exhausted & my platelets & WBC became very low after a month. Took a month off then started taking 100mg a day. Pulse rate high but controlled, occasionally very tired. My CA-125 which was initially 29 is now 3.2. Couldn’t be happier or more relieved. Thrilled that I am able to take this promising drug!”

9 / 10
Marie · Taken for 1 to 2 years February 9, 2019

Zejula (niraparib): “I have been on Zejula since May 2017. I was put on Zejula after a reoccurrence of a Stage 4 Fallopian Tube Cancer. I started with 300 mg, but experienced severe platelet issues after 5 weeks. The dose was reduced to 200mg, but again had platelet problems after 4 months. I have been on 100mg since November 2017 and have had no significant issues. I sometimes experience minor joint pain and fatigue. My Ca125 remains at 8-9. I continue with all my daily activities, including water aerobics, walks (4-6miles), and busy family and social life. For now, Zejula is effective and without significant side effects.”

9 / 10
BA · Taken for 1 to 2 years November 16, 2018

Zejula (niraparib): “I have been on this drug now for a year after chemo as a participant in clinical trial. I started out at 300 mg then dropped to 200 mg after 6 months and now steady at 100 mg. I am not a large person so they tell me that one of the findings in the test is to now dose by weight. When I first started I took the drug in the morning and had nausea so I started taking before bed time which solved that issue. The biggest side effect for me has been WBC drop at higher dose so now just waiting to see if I can remain stable with WBC on the 100 mg. I am BRCA neg and CA 125 stays around 4. I am thankful there are clinical trials out there to try and keenly understand that each person differs in drugs reactions.”

9 / 10
creeker · Taken for 1 to 2 years October 5, 2018

Zejula (niraparib): “I was diagnosed with stage 4 fallopian and peritoneal cancer (BRCA1 positive) with an initial CA125 of 3490. After chemo I was in remission for 2 years and then had more chemo for a recurrence. Afterwards I went on Zejula and have taking it for about 16 months. The initial dose of 300 mg per day gradually caused numerous side effects including fatigue, weakness, sleeplessness, increased blood pressure, back pain and then finally I had to have a blood transfusion and go off the drug for a month. I resumed at 100 mg per day and all the side effects disappeared except the sleeplessness and blood pressure, and even those side effects were less severe. For the last 6 months I have been on a dose of 100 mg just 3 times per week. We moved to Canada and Zejula is not available here so I have been stretching out my supply. Throughout the 16 months , my CA125 has remained steady in the 7 - 8 range. I will soon be changing to changing to Lynparza which is available in Canada.”

9 / 10

Learn more about Fallopian Tube Cancer

IBM Watson Micromedex

Symptoms and treatments