Nilotinib and Muscle Pain: What Users Say

• Sam...
• Taken for 2 to 5 years
• April 15, 2020

Nilotinib for Chronic Myelogenous Leukemia "Started Tasigna a little over 4 years ago. Have taken a 200 mg dose twice a day ever since. Brought me from 56% cancerous white blood cells to 2% in just a few months, molecular remission within about 1 year and has kept me there. Still suffer from insomnia, bone and muscle pain, but rashes went away after a couple of years. Neuropathy in feet and toes, but I worry that peripheral artery disease is occurring also... Even with breaks (1-2 weeks), I never feel any better, so the breaks are hardly worth taking. Novartis patient assistance program took care of me for the first year and the Medicaid ever since with nothing out of pocket, thank God. TASIGNA HAS KEPT ME ALIVE..."

• Fat...
• Taken for 2 to 5 years
• October 24, 2014

For Chronic Myelogenous Leukemia "I've been diagnosed with CML in March of 2012. I've been on Tasigna ever since. The results were great, but a few side effects have been bothering me, such as hair loss, abrupt mood swings, depression, bone pain (especially my back), muscle pain, and blurred vision sometimes. The ones that are tiring me are my hair loss and the bone pain."

• RLM...
• Taken for 5 to 10 years
• October 1, 2021

Nilotinib for Chronic Myelogenous Leukemia "I have been on Tasigna for several years after 1 year of Sprycel (fluid in lungs with Sprycel). Tasigna has kept me at 0.00 PCR test for many years. Hardest part is the food schedule, 12 hours apart, 2 hours after and 1 hour before food, 2x150 mg two times a day. I use a Sharpie to date the blister pack to help keep track of days. Small amount of muscle pain, but easy to bear."