Lenalidomide User Reviews & Ratings (Page 2)

• day...
• Taken for 6 months to 1 year
• April 27, 2024

For Multiple Myeloma "The medication has gone from 25mg to 10mg as I am now on maintenance. I have had quite a few weeks of bowel problems, but I have learned to take medication right away and am able to live a fairly normal life. It is easy to take, and so far seems to be working well. I do take my medication in the afternoon, around dinner time."

• 268...
• Taken for 2 to 5 years
• April 25, 2024

For Multiple Myeloma "I have been taking the drug lenalidomide since 2019. I am never sure of what drug causes what side effects. I have neuropathy in my feet that I assume is from the drug. I have 2 or 3 days a week with low energy that I assume is from the drug. I am aware of the pitfalls of this drug as it relates to handling etc. My blood test results reflect side effects from the drug."

• Shi...
• Taken for less than 1 month
• September 29, 2024

Lenalidomide "I am taking 20 mg Revlimid. This is only Day #6. So far, I have a cough and nasal congestion. No fever. I will have blood work in 2 days. Not sure how it’s working. After 21 days and 7 off, I will increase to 25 mg."

• Ano...
• Taken for 5 to 10 years
• May 22, 2025

For Multiple Myeloma "When the MM was first diagnosed, I took 1 x 10 mg daily. I came out in a red rash over my arms and body. The lenalidomide was reduced to 1 x 10 mg every second day and I have no skin complications. I have lived for 6 years and 3 months since the diagnosis. At the initial diagnosis, I was having night sweats, leg pain, and had lost 5 kg in 2 weeks."

• Mik...
• Taken for 5 to 10 years
• January 23, 2025

For Multiple Myeloma "Started on lenalidomide in 2017 after a stem cell transplant - 5 mg 21/28. This went well until early this year (2025). My main problem was chronic diarrhea and pain. I managed initially for many years with loperamide until I realized that the codeine in the Emtec I was taking for pain had a side effect of constipation. So I dropped the loperamide and take 2 to 4 Emtec 300-30 a day. It does double duty for pain relief (especially at night) and counteracts the diarrhea. Recently, my cancer specialist increased my lenalidomide to 10 mg 28/26 as a so-called maintenance dose (sic!). On Day 8 of my cycle, I started to experience chest pains (upper left) and went to emergency. Nothing could be found by cardiology or oncology, so I was released 36 hrs later (but still had occasional chest pains). I changed my intake of lenalidomide to 10 mg every other day, an effective average equivalent to 5 mg 28/28. I feel much better, it's now Day 15 of my cycle."

• fer...
• Taken for 2 to 5 years
• September 11, 2024

For Multiple Myeloma "On 10 mg lenalidomide capsules for 3 years, reduced paraprotein levels but now increasing. Some bowel problems but manageable. Possible side effects found: tremor, chills, depression, blurred vision. Not compatible with dexamethasone, psychological problems."

• Ano...
• Taken for 5 to 10 years
• March 30, 2025

Lenalidomide for Multiple Myeloma "First time I took Revlimid, I also took a steroid. I was taken off the steroid when my face turned red till it finally got up to my eyes. Taking Revlimid then on, I did not have any reactions. On it for 10 years, I was taken off when my m-protein was at 0.2 standstill. Off for 6 months, I was started on lenalidomide and had terrible itchiness! I waited to be able to get the next refill of Revlimid. I had such a good response till 2 capsules of Revlimid were taken this time, I have little spots rather than the large areas I had on lenalidomide."

• Ano...
• Taken for 6 months to 1 year
• June 16, 2025

For Multiple Myeloma "I'm on a clinical trial and lenalidomide is part of the medication for my study. At that time, I was taking (25 mg) capsules once a day, but now I'm taking (10 mg) capsules. I have not had many of the listed side effects, but I have had some including: neuropathy in the fingers and toes, persistent sore throat, mood changes. However, now that my condition is in remission (thank God!), I'm taking this as a maintenance drug as I go throughout my days normally."

• Mar...
• Taken for 1 to 2 years
• April 1, 2025

For Multiple Myeloma "I have been using Lenalidomide to keep MM remission. The major side effects are cramps and tinnitus, besides low blood, white counts, and low platelets. The transaminases are also high, and I had to diminish the dosage."

• RTO...
• Taken for 1 to 6 months
• December 11, 2022

Lenalidomide for Myelodysplastic Diseases "When I started taking Revlimid I was extremely weak, tired and had no appetite. Eventually, those side effects became more intermittent. Currently, I still have required transfusions with angina and SOB."

• Dem...
• Taken for 1 to 6 months
• March 30, 2022

Lenalidomide for Multiple Myeloma "Worked like a miracle when first diagnosed with multiple myeloma. Was in remission in a couple of months."

• MAR...
• Taken for 1 to 6 months
• May 25, 2024

For Myelodysplastic Diseases "My labs are getting better. I am exhausted, lower stomach pain, shaky, no energy, broken out with little red dots and sores."

• Ano...
• Taken for 2 to 5 years
• June 13, 2025

Lenalidomide for Multiple Myeloma "I have been fortunate in the four years that I have taken Revlimid for multiple myeloma to have not experienced any significant side effects."

• Ano...
• Taken for 1 to 2 years
• April 19, 2025

For Multiple Myeloma "2 years now, paraprotein levels climbing to 15. Main side effect is breathlessness, also peripheral neuropathy."

• Ano...
• Taken for less than 1 month
• May 20, 2025

"I'm having nausea, dizziness, shortness of breath, extremely tired, headache."