Skip to main content

Lenalidomide User Reviews & Ratings (Page 2)

Brand names: Revlimid

Lenalidomide has an average rating of 7.3 out of 10 from a total of 36 reviews on Drugs.com. 61% of reviewers reported a positive experience, while 14% reported a negative experience.

Reviews for Lenalidomide

Commonly mentioned side effects
  • day...
  • Taken for 6 months to 1 year
  • April 27, 2024

For Multiple Myeloma "The medication has gone from 25mg to 10mg as I am now on maintenance. I have had quite a few weeks of bowel problems, but I have learned to take medication right away and am able to live a fairly normal life. It is easy to take, and so far seems to be working well. I do take my medication in the afternoon, around dinner time."

10 / 10
Was this helpful?YesNo
1 Report
  • 268...
  • Taken for 2 to 5 years
  • April 25, 2024

For Multiple Myeloma "I have been taking the drug lenalidomide since 2019. I am never sure of what drug causes what side effects. I have neuropathy in my feet that I assume is from the drug. I have 2 or 3 days a week with low energy that I assume is from the drug. I am aware of the pitfalls of this drug as it relates to handling etc. My blood test results reflect side effects from the drug."

9 / 10
Was this helpful?YesNo
1 Report
  • Shi...
  • Taken for less than 1 month
  • September 29, 2024

Lenalidomide "I am taking 20 mg Revlimid. This is only Day #6. So far, I have a cough and nasal congestion. No fever. I will have blood work in 2 days. Not sure how it’s working. After 21 days and 7 off, I will increase to 25 mg."

5 / 10
Was this helpful?YesNo
0 Report

Frequently asked questions

  • Mik...
  • Taken for 5 to 10 years
  • January 23, 2025

For Multiple Myeloma "Started on lenalidomide in 2017 after a stem cell transplant - 5 mg 21/28. This went well until early this year (2025). My main problem was chronic diarrhea and pain. I managed initially for many years with loperamide until I realized that the codeine in the Emtec I was taking for pain had a side effect of constipation. So I dropped the loperamide and take 2 to 4 Emtec 300-30 a day. It does double duty for pain relief (especially at night) and counteracts the diarrhea. Recently, my cancer specialist increased my lenalidomide to 10 mg 28/26 as a so-called maintenance dose (sic!). On Day 8 of my cycle, I started to experience chest pains (upper left) and went to emergency. Nothing could be found by cardiology or oncology, so I was released 36 hrs later (but still had occasional chest pains). I changed my intake of lenalidomide to 10 mg every other day, an effective average equivalent to 5 mg 28/28. I feel much better, it's now Day 15 of my cycle."

10 / 10
Was this helpful?YesNo
0 Report
  • fer...
  • Taken for 2 to 5 years
  • September 11, 2024

For Multiple Myeloma "On 10 mg lenalidomide capsules for 3 years, reduced paraprotein levels but now increasing. Some bowel problems but manageable. Possible side effects found: tremor, chills, depression, blurred vision. Not compatible with dexamethasone, psychological problems."

8 / 10
Was this helpful?YesNo
1 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
  • Ano...
  • Taken for 5 to 10 years
  • March 30, 2025

Lenalidomide for Multiple Myeloma "First time I took Revlimid, I also took a steroid. I was taken off the steroid when my face turned red till it finally got up to my eyes. Taking Revlimid then on, I did not have any reactions. On it for 10 years, I was taken off when my m-protein was at 0.2 standstill. Off for 6 months, I was started on lenalidomide and had terrible itchiness! I waited to be able to get the next refill of Revlimid. I had such a good response till 2 capsules of Revlimid were taken this time, I have little spots rather than the large areas I had on lenalidomide."

6 / 10
Was this helpful?YesNo
0 Report
  • Mar...
  • Taken for 1 to 2 years
  • April 1, 2025

For Multiple Myeloma "I have been using Lenalidomide to keep MM remission. The major side effects are cramps and tinnitus, besides low blood, white counts, and low platelets. The transaminases are also high, and I had to diminish the dosage."

8 / 10
Was this helpful?YesNo
0 Report
  • RTO...
  • Taken for 1 to 6 months
  • December 11, 2022

Lenalidomide for Myelodysplastic Diseases "When I started taking Revlimid I was extremely weak, tired and had no appetite. Eventually, those side effects became more intermittent. Currently, I still have required transfusions with angina and SOB."

8 / 10
Was this helpful?YesNo
0 Report
  • Dem...
  • Taken for 1 to 6 months
  • March 30, 2022

Lenalidomide for Multiple Myeloma "Worked like a miracle when first diagnosed with multiple myeloma. Was in remission in a couple of months."

8 / 10
Was this helpful?YesNo
5 Report
  • MAR...
  • Taken for 1 to 6 months
  • May 25, 2024

For Myelodysplastic Diseases "My labs are getting better. I am exhausted, lower stomach pain, shaky, no energy, broken out with little red dots and sores."

6 / 10
Was this helpful?YesNo
0 Report
  • Ano...
  • Taken for 1 to 2 years
  • April 19, 2025

For Multiple Myeloma "2 years now, paraprotein levels climbing to 15. Main side effect is breathlessness, also peripheral neuropathy."

7 / 10
Was this helpful?YesNo
0 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.