Imatinib and Cramps: What Users Say

• ter...
• September 7, 2008

Imatinib for Chronic Myelogenous Leukemia "I am so thankful for Gleevec! I did have some side effects, but prior to Gleevec, taking interferon and hydroxyurea led to much more severe side effects. I had aching limbs, and I now have a skin reddening/rash-like rosacea on my cheeks, and my upper arms are reddish-like a mild sunburn. I have tummy issues now-gurgling, diarrhea, cramping, etc., but they are easily managed with Imodium. Gleevec has extended my survival, and I had the honor of meeting Dr. Druker, who developed the drug, at Oregon Health and Science University. He was absolutely wonderful, as was the care I received there."

• Luc...
• October 10, 2011

Imatinib for Chronic Myelogenous Leukemia "Taking since early clinical trials in 2000. CCR within about 1 year and steady for the last ~10 years. Had the usual side effects at first, but now all gone except I find I cramp easily (can't tell if Gleevec is the cause). Biggest problem with nausea went away as soon as I switched to the 100 mg tablets in place of one 400 mg."

• Cee...
• Taken for 5 to 10 years
• July 4, 2019

For Gastrointestinal Stromal Tumor "Taking 400 units daily since 2010. Monitored every 6 months for potential recurrence. So far, there is no evidence of recurrence. I tend to retain fluids, suffer from intense hand and foot cramps, and have brain fog after taking imatinib. Medications and diet modifications help with the first two side effects. Timing of taking the med helps with the third. Glad to be alive and credit Gleevec/imatinib for 8 years of good living."