Emgality for Cluster Headaches User Reviews (Page 2)

• Anonymous
• Taken for 6 months to 1 year
• February 20, 2023

"I have been taking Emgality for approximately 7-8 months. In the first three months of taking it, I noticed significant weight gain, and I feel bloated. I did not change my diet or take any other medications during that time, and I am generally active. Prior to taking Emgality, my weight was around 135 pounds, and now it's around 155 pounds. Although Emgality has helped with my migraines, I am hesitant to continue taking it due to the weight gain. There are other medications available that may not cause weight gain. I decided to stop taking Emgality last Friday. I am curious about how long it will take for the medication to leave my system and for my weight to return to normal. While some people may prefer to deal with extra weight rather than migraines, I prefer to try a different medication that will not cause weight gain. There are many medications on the market, and I believe it's important to find one that works well for your body."

• Lon...
• Taken for less than 1 month
• January 11, 2024

"49-year-old male. I have had episodic cluster headaches for over 30 years. Using Verapamil and oxygen treatment to maintain control over my life when 'in cluster.' As my fellow sufferers know, both have their limitations. Tried Emgality 12/18/23 and an intense cluster period (2-3 headaches per day) was halted completely within three days. With many years of experience, I can confidently say that this cluster period was nowhere near running its course naturally at this point. No significant side effects. Feels like a miracle. Thank you, Eli Lilly."

• Bra...
• Taken for 6 months to 1 year
• December 29, 2023

"I began taking Emgality in January of 2023. I had periods of nearly continuous migraines for months. I had developed migraines years earlier but had only occasional migraines. At some point 6 years ago, they became unbearable and more frequent. I began Emgality and my headaches completely disappeared within 24 hours. I have not had an actual migraine since, and it is 12-29-23. I only use the injections once every 2-3 months, keeping a box in my refrigerator. I sure wish that everyone had my success. I did not want to live anymore. My world had collapsed, and I am also a caregiver to a parent with dementia. That was living in Hell every day. Now, it is simply the hardest thing I have ever done, but I do not have to live in Cluster Headache World. Thank you!"

• Hon...
• Taken for 1 to 6 months
• November 29, 2021

"After 20 years of suffering with the devastating pain of cluster headaches, I finally found something that I can rely on and have a normal life during this 7 to 8 weeks duration of the cycle. I am very sensitive to medications, and I did not have a single side effect. I’ve used it twice. The last cycle I thought it gave me horrible insomnia and anxiety, but I realize that those are proper from cluster headaches, and this year I try to be objective, and I have not had any single side effect. I always feel something with any type of medication. And now, if I have a headache, I can easily knock that down with deep breathing and maybe half a triptan, which if it gets to a point of 4 out of 10, which is the maximum I reach. I even traveled overseas with the injections in a refrigerator lunch box with ice packs, and I had no issues. The injection is not painful if you know how to do it. You need to follow the instructions correctly and make sure you have a 45° angle when injecting it."

• kai...
• October 1, 2021

"I was skeptical at first, but Emgality has worked amazingly well for me. I'm a 50-year-old male, started getting clusters at the age of 22 and have taken all of the major preventives/abortives through the years. I was able to get off of Verapamil and Lithium when I began Emgality 2 years ago, and it's been a godsend for me ever since. Gone are the side effects I had to deal with for so many years, the constant blood work, other meds to combat the side effects of Lithium/Verapamil, and then side effects from those... Sumatriptan injections have also worked very well for me over the years as an abortive."

• Uta...
• Taken for 1 to 2 years
• July 26, 2021

"I've been a migraine sufferer for 20 years. I had both hemiplegic and cluster migraines that would, I swear, cause brain damage. Well, I know they did because I have brain lesions on my MRI. Aimovig has been a game changer. I no longer have either. I've been on Aimovig for a year. Terrible constipation, but I resolved it with Miralax. For those with side effects, I avoid those by taking Aimovig once a quarter instead of once a month. My sister, on the other hand, takes it twice a month to control her migraines. To each their own."

• Dee...
• Taken for less than 1 month
• November 11, 2021

"Have had cluster episodes for 5 years now. In Feb. 2021, my neurologist gave me Emgality, 3 injections. Within a few weeks, it worked. In May, the doctor said if no clusters, to stop. It was good until Oct. 2021, and they started again. I started Emgality about a week and a half ago. Let's hope it works this time too, these episodes are excruciating. I'm 53 years old and would rather go through labor 5 times than this. Wish me luck. Oh, and no symptoms yet, just sometimes my eyelids are itchy."

• Jon...
• Taken for 2 to 5 years
• July 8, 2023

"Had cluster headaches for 7 years for 3 weeks 3 to 4 times a year. After a period of 3 months of increasing frequency and intensity, went on Verapamil ER. The Verapamil ER stopped working after 3 years. The neurologist added Emgality. No headaches, no hint of headaches for 3 years. Stopped Verapamil ER 6 months ago, was fine for 5 months. Restarted Verapamil ER at twice the old dose 4 days ago, continuing Emgality seems to be working. The only problem I had with the Emgality was that I was sluggish with a mild headache the day after the injection."

• gkw...
• Taken for 1 to 6 months
• June 21, 2021

"10/10. I noticed improvement right away and had been suffering from cluster headaches and migraines for years, which were worsening. I had tried Sumatriptan, Verapamil, and this has brought me the most relief by far. Surprised by all the negative reviews, I would definitely recommend it."

• JoS...
• Taken for 1 to 6 months
• May 15, 2022

"It worked fine for about a month. The next month, it worked for 3 weeks. I’m on the fourth month so far, and I’ve had no side effects, however, the drug is working less every month. They have prescribed Depakote in conjunction, but that’s for migraines and seizures, so I’m not sure anything’s really working. I haven’t tried Aimovig or Ajovy. I have cluster headaches, not migraines. Left untreated, my headaches (scalp and behind right eye) last about 15-45 total minutes from onset to relief. I have an average of 3 a day. I cannot swear that anything actually works, but I have not experienced the side effects others have."

• Rob...
• January 9, 2022

"Daily clusters with migraine. I tried Emgality, and the first week was great. The second week and third week was living with 24/7 migraine/cluster all over again, like I was before I got on preventive medication. Emgality started wearing off in week four, and my clusters and migraines returned to normal while on my preventive medication. I did not try the second month of Emgality. The scientists are on the right track with blocking receptors, but the drug is the problem. The neurologist said there is an oral medication taken every other day that blocks the receptors, and I will try that next."

• JJ6...
• Taken for 6 months to 1 year
• August 26, 2023

"I started Emgality when Topiramax did nothing. I take three shots a month and take 120 mg of verapamil in the morning and 240 mg at night. I went from daily cluster headaches to almost none since I started. I take Relpax as soon as I feel one, and it usually knocks it right out."

• Bob...
• Taken for 6 months to 1 year
• October 7, 2020

"Although the medicine Emgality seems to work quite well, I do have long-lasting itchiness and swelling, along with redness at the injection site, which lasts over a week."

• Jul...
• Taken for 6 months to 1 year
• November 5, 2023

"Emgality was life-changing with zero side effects for my cluster headaches. I was taking Topamax, which wasn't helping at all. It went from having 7-9 cluster headaches per week to none."

• deb...
• Taken for 1 to 6 months
• April 3, 2024

"Dry mouth, constipation, tired, runny nose. Have had initial two injections and then a third. Pain seems to be dulled but still there."

• Eva...
• Taken for 1 to 2 years
• July 11, 2021

"Chronic cluster headaches, Emgality is the only one that has helped some. I still have them, but only 3-5 a day, and they only last about an hour each now."