Gilenya for Multiple Sclerosis User Reviews (Page 4)

• Gre...
• Taken for 1 to 2 years
• April 2, 2024

"I, like many, really hesitated starting on treatment when I was diagnosed 2 years ago. I tried 6 months of alternative therapy but felt pretty awful with symptoms and my check up MRI showed more lesions. With two kids under 5 to look after, I sucked it up and went on the Gilenya as recommended by my neurologist. The hospital admission to get started was uneventful and I drove home fine. Then I felt like total crap for about 2-3 weeks as my body adjusted to the drug. Then my symptoms and side effects (dizziness, nausea, headache) started to resolve! My latest MRI showed no new lesions! I am back riding my horse, trail running, and chasing my two kiddies around. I still get some mild symptoms sometimes but overall feel really happy on this drug. Note - I was happy to only have two kids, but definitely a consideration if you haven't completed your family."

• Mas...
• Taken for 1 to 2 years
• November 16, 2018

"I switched to Gilenya from being on BetaSeron for 15 years (which kept me without any disease progression). BetaSeron started to give me flu-like symptoms every time I took the shot, so I decided to switch to an oral med. For me, Gilenya was awful. I felt awful and I looked awful. When I see pictures of me, I can almost pick out the ones when I was on Gilenya. My first side effect was extreme vertigo, then on top of that, I just felt like my head was a 'brick.' I used to have to go home on my lunch hour and just lay there. Although it stopped disease progression (which was a plus), the side effects, for me, were miserable."

• Smi...
• Taken for 2 to 5 years
• June 13, 2024

"I have been on Gilenya for 3 years and have done well with it. Only major side effect for me has been significant nasal congestion and stuffiness. Learned to live with it. I had my first flare in 3 years."

• Joc...
• Taken for 5 to 10 years
• November 1, 2021

"Anyone loves the idea of taking a pill vs. giving themselves a shot. I have really enjoyed the ease of taking my medication as a pill, however, I have developed recurrent sinus infections over the course of 6 years. It has gotten progressively worse and is affecting my excessive absences from my job, which is undesirable. Looking into an alternative medication. Have previously been on Copaxone and Avonex. Overall, I would say that this has helped with my lesions in my brain and spinal cord. There have been new ones, and some have gotten smaller."

• And...
• Taken for 10 years or more
• April 30, 2025

"I have been on Fingolimod (Gilenya) for 10 years. My MS has been halted in its tracks. No new lesions or increase in symptoms. I am very grateful for the medical science that has led to this drug and the Australian health care system that pays for it and allows me to work and continue to support my family. My only issue is numerous warts on my hands and fingers since my use of it. I get them burnt off, but better than relapsing MS."

• dee...
• Taken for 2 to 5 years
• January 9, 2015

"Gilenya is by far the best medication so far in treating my multiple sclerosis. Easy to take and with few to any side effects. Highly recommend."

• Anonymous
• January 20, 2011

"I have been on this medication for a month and I have not experienced one side effect. SO MUCH better than the shots. We will see later if it is as effective as they say it is."

• Anonymous
• August 3, 2011

"I have been on Gilenya for 3 months now for my Multiple Sclerosis and am very impressed. I have had no side effects."

• Anonymous
• July 28, 2011

"I have been on Gilenya for 8 weeks and just recently noticed my hair has begun to thin. As I brush, numerous strands fall out. I am a 32-year-old female so this is very concerning."

• Rem...
• September 7, 2015

"Been on Gilenya for 3 months. I haven't seen any improvements! In fact, I think I got worse! But who knows what will happen, injections/pills, whatever, but make it work!!"

• AZS...
• April 15, 2012

"So far, no problems, except a sore throat. It's only been 4 days. I'll update later, as I'm expecting good things from what I've read."

• Tam...
• Taken for 5 to 10 years
• May 5, 2017

"After 5 yrs, Gilenya is no longer working for me."

• Mar...
• June 21, 2017

"Was on Rebif over 10 years, went on Gilenya for trial. Stayed on it after trial ended. Tired, slight headache sometimes. Better than taking Rebif. I will take these symptoms any day."

• Man...
• Taken for 1 to 6 months
• July 31, 2019

"I would not recommend Gilenya for MS. It made me worse. I could only take it for 5 months. Then hair thinning, heavy period, halted my walking."

• Anonymous
• Taken for 1 to 6 months
• October 4, 2017

"Hair loss, persistent headache."

• Cry...
• Taken for 6 months to 1 year
• February 12, 2020

"I have been on this medication about 8 months now and have experienced no side effects. I feel a lot better and am able to continue working and doing my everyday life activities."

• Cst...
• Taken for less than 1 month
• November 20, 2016

"The drug lowered my blood pressure after the first dose, so I was not able to continue."

• mat...
• Taken for 6 months to 1 year
• March 13, 2017

"Terrible stomach pains. How long does it last even when I'm off the med?"

• Dis...
• March 9, 2019

"I would NOT recommend Gilenya to anyone. The side effects are simply atrocious. It can cause such severe fatigue."

• Ms ...
• July 5, 2017

"Stabilized my MS symptoms and made it under control. But the medicine is already covered by my insurance so far."

• Kpo...
• Taken for 6 months to 1 year
• November 2, 2017

"I like the convenience of it being a pill. The other medications I've taken for MS have been injections. Problems I'm having are thinning hair and hair loss."