Cannabidiol for Lennox-Gastaut Syndrome User Reviews
Brand names: Epidiolex
- Gal...
- Taken for less than 1 month
- August 8, 2023
"My son, 9, has recently started on 60mg BD and keeps dropping off to sleep throughout the day. This has not happened before. Seizures are slightly better. It's still early days, so it's hard to tell if this medication will be a game changer."
- Anonymous
- Taken for 6 months to 1 year
- May 16, 2023
"My daughter lost her appetite, and her behavior changed completely. She was irritated all the time and unbearable with everything around her."
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.
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"My daughter began using this medication in conjunction with the ketogenic diet and Lamictal. It seemed to help at first with startle seizures, but then other small daily seizures began occurring, and the startles have come back somewhat milder. I was very happy to try CBD covered by insurance, but I’m very unhappy that this medication contains sucralose. I am trying to improve my daughter’s gut health, which has a strong link to all her health conditions, and sucralose is terrible for gut health. They need to make this med with clean ingredients. No wonder a main side effect is diarrhea."