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User Reviews for Cabergoline

Condition Avg. Rating Reviews Compare
Hyperprolactinemia  
7.9
101 reviews 3 medications

Reviews may be edited to correct grammar/spelling, or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published.

Reviews for Cabergoline

Yary · Taken for 1 to 6 months · July 1, 2019

For Hyperprolactinemia: “I was trying to get pregnant for over 15 years. I went to several doctors and several treatments without any luck. When I changed my doctor he found I had prolactinoma. He put me on dostinex 0.5mg half of pill twice a week. A month later I was taking one pill 0.5mg once a week. I started to feel weird, I was sleepy, mood swings, my breasts hurt and my period didn't come when it was supposed to do I did a pregnancy test and for my surprise it came out positive. I still can't believe it. In less than 2 months of taking the medication I got pregnant after trying for so many years. I will definitely recommend it. I'm still in shock!”

10 / 10
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KB88 · Taken for 1 to 6 months · March 10, 2020

For Hyperprolactinemia: “I was diagnosed with hyperprolactinoma about 4 months ago after 8 months of missed periods. I was put on Cabergoline. I read so many scary reviews about how horrible people felt on it. I have to say this drug is miraculous. Within 3 days of taking it, my period came back, and my depression, anxiety and mental fog lifted within a week. People with high prolactin levels develop anxiety and mental fog but it happens so gradually you dont realize it until you actually start to feel well. As far as symptoms go, the first two weeks I felt a little lightheaded right after taking the pill, and a slight stuffy nose. But that was it, and by the third week my body was used to it and I was symptom free. I have also lost about 10 lbs since I began taking it. Apparently high prolactin levels are responsible for stubborn hormonal weight gain particularly in the belly area. I feel like my old self again and i couldn't be happier with this drug.”

10 / 10
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Squish · Taken for 5 to 10 years · September 1, 2020

For Hyperprolactinemia: “I started Cabergoline in 2014. I’m a female and had irregular periods my entire life. FINALLY my primary thought to check my prolactin levels (at age 33). My libido immediately went through the roof. I cheated on my ex-husband and went through a divorce. I don’t consider this a negative side effect as I didn’t realize how unhappy I was until I actually had a sex drive (although it was absolutely impulsive behavior for me..). This decreased over time. Aside from that, I have lost 120lbs over the past several years. There is no way this is a coincidence. I could not lose weight my entire life otherwise despite various diets and exercise. With Cabergoline the weight just fell off. I have not been on the med for several months now, and no symptoms have returned although my libido has decreased a bit. My weight has not increased. Cabergoline changed my life, but for the better.”

9 / 10
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Jazmine · Taken for 1 to 6 months · August 15, 2020

For Hyperprolactinemia: “Im a 23yo female, I just recently found out about the tumor 4 months ago & was prescribed cabergoline. Before I started this medication , I was good with my life , happy & stabled but now that I have started this journey , I am depressed again but this time it’s worst. I can’t control my emotions at all & when I mean at all I literally mean at all. I’ve been crying every single day heavily for a whole day , I’ve been treating the ones I love wrong because of my mood swings & how fast I switch up for no reason at all. I’ve been more tired than normally. I get hot flashes & cold sweats left & right. I feel nauseous all the time & bloated & I honestly just don’t feel like myself anymore. I feel like I’ve lost myself so badly. The only good thing about this medication that I am thankful for is getting my periods back. Other than that this medication & the journey I’m on with it still is really really rough & I’m just tired of all of it.”

4 / 10
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kentwoman · September 1, 2020

For Hyperprolactinemia: “Husbands got pituitary tumour (prolactin 30,000) been on Cabergoline 2 half tabs since oct 19, NO COUNSELLING WHATSOVER FROM DOCS. He's a split personality. Found him on dating website Oct 19, been chatting women up in shops, neighbours. March 20, paid for dating websites, been chatting to women, chatting up women, getting phone no's. Wants to wear younger clothes, get tanned, haircuts, talks endlessly about past, can remember more now about last 50 yrs. Wants me to wear tarty clothes, makeup etc. Wants sex 24/7. Is lusting after anything with boobs when we go out. I feel a real spare part. He's buying printed T shirts all the time. Spent £100's on dating websites. We've been married 46 yrs, I'm here as a sex toy, cleaner etc till he decides that he's found someone younger and more up for sex than me. I AM OVER HIM AND WANT TO MOVE OUT! Upside is the prolactins levels down to 300!”

1 / 10
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catesennui · Taken for 6 months to 1 year · November 13, 2020

For Hyperprolactinemia: “It's been almost one year since discovering a pituitary microadenoma and starting the treatment with cabergoline, 1 mg/week. Haven't taken any blood test since then to check on the prolactin levels, but next year will do so in order to establish if the tumor has shrunk or if I need to take the meds for another 1 to 3 years. My initial side effects were sleepiness, a stuffed nose, anxiety and panic attacks. But it hasn't made changes in personality at all. No increased sexual drive (my boyfriend would've loved that), no urges to buy stuff, no depression or clouded thinking. Nowadays, I rarely get a stuffed nose and haven't had an anxiety attack in months. I believe that every person experiences this treatment differently, but don't be afraid to take it. For the majority, myself included, taking cabergoline is a good experience, the chances of you having a negative reaction to it is possible, but minimal.Take care and I wish all of you good health and good luck in your endeavours.”

10 / 10
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MEHAK ji · August 26, 2019

For Hyperprolactinemia: “On august 8 th I was diagnosed with prolactin level of 54.6 after consuming two dosages i.e one tab each week. I thought I should do a test again to check the levels and on 25th August I got it checked and my levels were 16ng/ml in just 17 days. I was happy...medicine is very effective but I will continue it till my doctor will recommend me to stop or reduce. ”

10 / 10
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Addy · Taken for 1 to 2 years · March 8, 2021

For Hyperprolactinemia: “I’ve been taking cabergoline for 2 years on and off again. I say on and off because of the extreme side effects. If I don’t get a proper nights sleep and drink plenty of water, I’m a different person. I’m angry, I’m anxious, I’m sad, tired and so very tired. I wake up feeling like I’ve spent the last 5 years in a desert with very limited water. I’m not myself and I can't handle this medicine. I wish there was something else..”

1 / 10
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C · March 2, 2021

For Hyperprolactinemia: “I've been on Dosintex for three months now. In the first two weeks, I noticed a boost in my mood and energy levels. It was as if a fog of depression had been lifted from me. I had mild headaches and a slight loss of appetite. Longer-term, the headaches and nausea subsided and my mood leveled out. My PMS symptoms (mostly mood-related) have decreased substantially. My emotions and mental health are more stable now than they have been for years. My periods, which were unpredictable or absent previously, have returned to normal. Prior to taking Cabergoline, I experienced constant slight lactation due to the elevated prolactin. After about a month on the medication, the lactation stopped completely and my breasts have shrunk about half a cup size. My libido and sleeping patterns remain unchanged. I've lost about 5 pounds of body weight. I have noticed that if I consume alcohol I become more easily disoriented and a bit dizzy.”

8 / 10
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Deejay389 · Taken for less than 1 month · February 28, 2016

For Hyperprolactinemia: “I was put on this medication because my prolactin levels were 76 and they retested and they were 54 which was still high and I also have pcos....I have been on cabergoline for 2 weeks and has absolutely NO side effects!!! My cycles have been extremely irregular and I haven't had a period since December 2015 after being on cabergoline for a week my period came out of nowhere! It seems to be doing its job and hopefully it will help me in my journey of trying to conceive!”

10 / 10
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Ada · Taken for less than 1 month · June 18, 2020

For Hyperprolactinemia: “First week on cabergoline, I had dull vision and weakness and needed to sleep all day till whenever. Sleep was not enough. And I had bloated stomach, weakness and tasteless tongue. This drug is also expensive and very strong. Taken 2 twice weekly. God help us all and give us sweet miracle”

10 / 10
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At · Taken for less than 1 month · October 10, 2018

For Hyperprolactinemia: “I took a single dose of 0.25mg ( 1/2 of my prescribed weekly dose). I felt very depressed with a lack of motivation the following day in a way that is unusual for me and I'm considering contacting my doctor to change the medication. Does anyone has a similar experience? Is it possible for the side effects to come so fast?”

1 / 10
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RogerMoore · Taken for 6 months to 1 year · February 15, 2020

Dostinex (cabergoline) for Hyperprolactinemia: “Taking Dostinex (UK) Prolactin levels prior were 29,000! now around 300. after 5 months. 0.5mg tablet taken in two doses (half tablet a week. Pituitary has shrunk, no face ache on laying down, nose/sinus is not blocked now. Had extreme sexual desire, thinking about sex 24/7, bit better now. Having virtual reality dreams, like LSD effects. Feel like a 20 year old male (I'm 64) like a teenager again! Having a lot of memories coming back from years ago. Wife feels like my girlfriend instead, like I'm young again. Going swimming now. She says I'm like Jekyll and Hyde, odd moods. Pituitary team Monday so hopefully can stop it.”

6 / 10
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"Ed" · August 8, 2020

For Hyperprolactinemia: “Male, upper 40's. Currently taking 3mg/week of cabergoline. Diagnosed in lat 2018 with a macro-prolactinoma. Tumor was 3.2cm x 3.1cm x 2.9cm in size. Prolactin levels were 5,250 ng/Ml, now 5.3. My advise to anyone taking this drug is to be very open in discussing issues with your doctors, and your partner. Do not be afraid to ask for help from trusted friends/coworkers around you. Find an outlet for stress. Oh, and avoid alcohol. :) After a year of taking the drug my tumor was reduced in size by 30%. Sex drive went through the roof. Handled that extra energy/stress with exercise, went to a low carb diet , take Levothyroxine for thyroid, added supplements including DHEA. I lost about 100lbs, and 12" off my waist. Two years out, the tumor is growing again. I'm going to have surgery. Working out like mad. I biked over 100 miles this week. My sex drive is crazy, but I feel like I'm in more control. No infidelity, but temptations are daily for sure.”

9 / 10
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ChristopherN · Taken for 1 to 6 months · March 31, 2019

For Hyperprolactinemia: “I am a 29 yo male, went to Urologist after consistently low libido and erectile dysfunction. Blood tests revealed hyperprolactinemia and low testosterone, subsequent MRI was consistent with microprolactinoma. Was put on 0.25 mg Cabergoline twice a week. After around 10 weeks of taking it, my prolactin is now down to 29 ng/ml from initial ~120 ng/ml at time of diagnosis, and testosterone is up from 250 ng/dl to 350 ng/dl. My libido and erectile function have improved significantly. I consistently take the drug at night after dinner and I am experiencing virtually no side effects. Very happy with this drug so far.”

10 / 10
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Danny AU · Taken for 6 months to 1 year · June 19, 2019

For Hyperprolactinemia: “-Male - Diagnosed with Macro Prolactinoma - initial levels 315000 which was extremely high, the tumour was pressing on my skull and optic nerves. - went on 1x2.5mg once a week and gradually increased dosage to 2x5mg twice a week - 8 months later levels are down to 1200 Side effects - first was mood swings, insomnia, extreme drowsiness. - after a month or so I noticed I felt angry quite a bit and has caused issues with friends and family. - after a few months my testosterone levels increased and so did sexual urges and penis length. - after 6 months I started getting anxiety attacks which I haven’t had for over 10 years. So for me the side effects are quite bad but it’s working so will report back in a few months. It’s been very tough for me.”

8 / 10
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Rach100 · October 18, 2017

For Hyperprolactinemia: “I've been on Cabergoline 0.25 for 2 weeks now for hyperprolactinemia caused by a Microadenoma. Before I started taking it I came on here for reviews and almost said no to it because all these comments about the side affects made me so nervous. I'll sit here and be the one to say this medication gave me next to NO side effects. I had a pretty bad headache for the first 2 times, after that I have no side effects at all. No idea if my prolactin level is any lower, but I feel my vision coming back slowly and less frequent dizziness. Hoping a few more weeks I can get back to my regular routine.”

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ashley6923 · October 7, 2015

For Hyperprolactinemia: “My son was diagnosed with a pituitary tumor in 2011, he was given this drug 2 times a week and in 6 weeks the tumor had shrunk over 50%. He continued to take this medication for the next 3 1/2 years under the care of his neurosurgeon. Last month he had to have open heart surgery at the age of 22 for a condition called constrictive paracarditis directly related to this drug. Please read the inserts of your medication. just because they are doctors and neurosurgeons doesn't mean they don't make mistakes.”

10 / 10
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Mafalda · Taken for 6 months to 1 year · April 20, 2021

For Hyperprolactinemia: “I was diagnosed with an 9 mm prolactinoma and I've been on Cabergoline for 8 months now, after 30 days prolactin levels were normal (tumor size wasn't re-evaluated yet). I was never a very sex driven person and I did feel in the first 3 months a considerable (abnormal) increase in libido, that was normalised. Also lost 7 kg (in the year previous to the diagnose - and 1 of the symptoms that set me to search medical help - I had gained 15kg). The only side effect that persisted this far are very (VERY) painful and abundant menses. Overall it I'm very happy, it saved my life (15kg gain where just one of the symptoms.) How Prolactinoma was affecting my thyroid somehow - some hormone wasn't being produced enough of and I felt tired, it was hard to walk as my achilles tendons hurt, and more.”

9 / 10
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Nicegirl06 · Taken for less than 1 month · July 18, 2017

For Hyperprolactinemia: “I have been on Cabergoline for about a month now, after being diagnosed with ridiculously high prolactin levels, and all sorts of problems from lactating to extreme fatigue. After reading all of the reviews listing horrific side effects, I was really nervous about it, and was considering holding out for surgery instead. However, I'm pleased to report that I'm able to give a positive review. I have had no side effects at all (apart from mild constipation in the couple of days immediately after taking each tablet). I am more focussed, I am less fatigued and I've even had a period (very light). I know that it's early days, and I've got follow up appointments in the coming weeks, but I am glad to be able to report a positive experience.”

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amykakes · August 17, 2010

Dostinex (cabergoline) for Hyperprolactinemia: “I've used Dostinex for years now, to treat high prolactin hormone levels. When I was younger they had me take Propranolol which made me so sick to my stomach! Dostinex has really no side effects that I've experienced and I only have to take it twice a week!”

10 / 10
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Louiset · Taken for 1 to 6 months · March 13, 2014

For Hyperprolactinemia: “This medicine has worked wonders for me, my prolaction levels are down, my periods back to normal and also I have lost 8lbs only been taking it for 6 weeks, also my sex drive is fabulous. I feel normal again I feel like myself. There is one downside, my nose is always blocked, but all the positives out way the negatives. 0.5 twice a week.”

10 / 10
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G · Taken for 1 to 6 months · July 23, 2019

For Hyperprolactinemia: “I was prescribed with this medication before and now again due to recurrent high prolactin (twice the normal). Before this I was feeling a bit depressed but it was manageable, U can recover right away. But this time I'm taking it with visanne due to endometriosis at the same time and the side effect is so magnified I feel so depressed all emotions are overwhelming. I'm still on 1/2 tab 2x per week and I'm taking it for more than a month now and can't sleep, I feel tired always, I can't find happiness and severing my relationship with others due to uncontrolled emotions. I feel like I'm going crazy I ask about the nurse regarding my feelings and she told me to just bear a little cause it is really the side effect and not me.”

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Candy · Taken for less than 1 month · December 1, 2019

For Hyperprolactinemia: “Recently (week 2) started this drug of .5mg twice weekly. Was very iffy about taking it due to the reports of the side effects but I must say I have not experienced any side effects with this medication so far. The first day, I did feel like I took a bunch of muscle relaxers and little headache but since then, nothing.”

10 / 10
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Gaz888 · February 20, 2017

For Hyperprolactinemia: “I am 34 years of age male and for years since 2003 when I was just 21 years of age started feeling really depressed and started suffering with anxiety but prior in the build up to this I had also suffered from depleted sex drive foggy memory moods swings low energy always needed an afternoon nap to get me through the day no matter how much sleep I had. Any way I had been going docs for years I was prescribed Citalopram which did 90% eradicate the anxiety and definitely the depression but I still suffered with the other symptoms. I always told them how I felt had tests for diabetes checked my thyroid etc all come back clear. Long story short found out I had a pituitary tumour and took Carbegoline and everything cleared up felt great!!!!!”

10 / 10
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This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.