Cabergoline and Mood Swings: What Users Say

• Yar...
• Taken for 1 to 6 months
• July 1, 2019

For Hyperprolactinemia "I was trying to get pregnant for over 15 years. I went to several doctors and had several treatments without any luck. When I changed my doctor, he found out I had prolactinoma. He put me on Dostinex 0.5mg, half a pill twice a week. A month later, I was taking one pill, 0.5mg, once a week. I started to feel weird - sleepy, mood swings, my breasts hurt, and my period didn't come when it was supposed to. So, I did a pregnancy test and to my surprise, it came out positive. I still can't believe it. In less than 2 months of taking the medication, I got pregnant after trying for so many years. I will definitely recommend it. I'm still in shock!"

• Jaz...
• Taken for 1 to 6 months
• August 15, 2020

For Hyperprolactinemia "I'm a 23-year-old female. I just recently found out about the tumor 4 months ago and was prescribed cabergoline. Before I started this medication, I was good with my life, happy, and stable, but now that I have started this journey, I am depressed again, but this time it’s worse. I can’t control my emotions at all, and when I mean at all, I literally mean at all. I’ve been crying every single day heavily for a whole day. I’ve been treating the ones I love wrong because of my mood swings and how fast I switch up for no reason at all. I’ve been more tired than normal. I get hot flashes and cold sweats left and right. I feel nauseous all the time and bloated, and I honestly just don’t feel like myself anymore. I feel like I’ve lost myself so badly. The only good thing about this medication that I am thankful for is getting my periods back. Other than that, this medication and the journey I’m on with it still are really, really rough, and I’m just tired of all of it."

• Gaz...
• February 20, 2017

For Hyperprolactinemia "I am 34 years of age, male, and for years, since 2003, when I was just 21 years of age, I started feeling really depressed and started suffering from anxiety. But prior, in the buildup to this, I had also suffered from depleted sex drive, foggy memory, mood swings, and low energy. I always needed an afternoon nap to get me through the day, no matter how much sleep I had. Anyway, I had been going to doctors for years. I was prescribed Citalopram, which did 90% eradicate the anxiety and definitely the depression, but I still suffered from the other symptoms. I always told them how I felt, had tests for diabetes, checked my thyroid, etc., all coming back clear. Long story short, I found out I had a pituitary tumor and took cabergoline, and everything cleared up. Felt great!!!!!"

• Dan...
• Taken for 6 months to 1 year
• June 19, 2019

For Hyperprolactinemia "- Male - Diagnosed with macro prolactinoma - initial levels 315,000, which was extremely high, the tumor was pressing on my skull and optic nerves. - went on 1x2.5 mg once a week and gradually increased dosage to 2x5 mg twice a week - 8 months later, levels are down to 1,200. Side effects - first was mood swings, insomnia, extreme drowsiness. - after a month or so, I noticed I felt angry quite a bit and it has caused issues with friends and family. - after a few months, my testosterone levels increased and so did sexual urges and penis length. - after 6 months, I started getting anxiety attacks, which I haven’t had for over 10 years. So for me, the side effects are quite bad, but it’s working, so I will report back in a few months. It’s been very tough for me."

• unk...
• Taken for 5 to 10 years
• April 21, 2022

For Hyperprolactinemia "My husband was diagnosed with a pituitary tumor around 7 years ago. It was about 6 months to 1 year on the med I started noticing him looking at other women. I would bring it to his attention and it was me being jealous. He has had several occasions that I found on his phone texting younger women, and a sexual harassment charge was brought against him at work. Now I find out that after the last 6 years of our marriage, he has been looking at porn and paying cam girls online. Mood changes, horrible. He says it is me, my (women's hormones) need to be checked. You cannot carry on a conversation with him unless he gets mad, and he is always right about everything. He never has said he is sorry for anything he has done in the past. We have been married 20 years, and he just came home from work 3 weeks ago and said that we have grown apart in the last 6 years. I wonder why. I had no idea this med could cause these side effects."

• lif...
• Taken for 1 to 6 months
• February 6, 2018

For Hyperprolactinemia "I was on this for 3 months. I went off it because it made me feel like I had a low-level flu and was always tired. The withdrawal I had from being on this drug has been horrible! Panic attacks, mood swings, highs and lows, nausea, sleep disturbances. It's called dopamine antagonist withdrawal syndrome. I've read since people go back on it because of how bad the symptoms of withdrawal are, and how long it stays. I've been off it for 3 months now, and I am still having side effects from coming off of it. It lowered my prolactin levels into normal ranges within a month of being on it, and it's easy to use. I was on 0.5 mg once a week. I will not go back on this medication due to how it affected my mental health."

• Her...
• Taken for 1 to 6 months
• January 12, 2019

For Hyperprolactinemia "After years of being told I should lose weight for my pain and excessive bleeding, and lactating. Then the tumor was found. I have been on cabergoline for 6 months. I was diagnosed with a macroadenoma. I was prescribed 1/2 tablet twice a week. Now I take .5 tablet once a week. I approached my endocrinologist with my symptoms of nausea, headaches, mood swings, confusion, and complaint of extremely heavy bleeding, and the solution was birth control. The medicine is shrinking my tumor, but the side effects are leaving me in a horrible situation..."

• Nde...
• Taken for 1 to 6 months
• April 11, 2022

For Hyperprolactinemia "Am 30 years of age, having a high prolactin level of 39. I used bromocriptine for a month, recently, I carried out a test and it was reduced to 18. Now switched to cabergoline 0.25 mg twice a week due to the scarcity of bromocriptine and also have PCOS. I am trying to conceive for a year now, but I just started the medication. I have this constant anger, depression, and mood swings always, just so annoyed at any slight confrontation. But I am still hoping I get pregnant soon. I really want to conceive."

• The...
• Taken for 10 years or more
• July 8, 2018

Cabergoline for Hyperprolactinemia "I am 30 years old and taking Dostinex for the last 13 years since I was diagnosed with a macroadenoma. The first years, I was taking 1 mg weekly, and the last years only the half dose - 0.5 mg per week. What is really negative about Dostinex is its high price. I would like to inform users that I buy it from Bulgaria, where the price is 4 times cheaper than in Cyprus (17 EUR per 8 tablets). In regards to the side effects, I used to have depression and changes in mood, but I think it is impossible to know if it comes from Dostinex or not. I wouldn't say there are strong negative side effects on me. I can easily concentrate and memorize. I have heard Dostinex is known to stimulate concentration and develop motor skills. I don't encourage anybody to take it without reason, but I believe besides negative, there are positive side effects as well."

• Jul...
• June 23, 2017

For Hyperprolactinemia "28-year-old female. I was first diagnosed with a 13mm prolactinoma, which was later figured out to be a non-functioning pituitary tumor. Turns out, after seeing an expert surgeon, it is a Rathke's Cleft Cyst on the pituitary stalk. After no results of improved hormone levels with 4 months of Bromocriptine, I started Cabergoline .5 mg, 2 times a week. Symptoms such as extreme dizziness and lightheadedness occurred, but after nearly 6 months on the medication, it's not as bad. Mood changes and depression began after a couple of months, and I hope to have my dosage decreased next week. All of my hormone levels were normal within 2-3 months, but I'm not sure I can deal with mood swings and depression. RCCs don't normally shrink with medication."

• Jul...
• June 23, 2017

For Hyperprolactinemia "28-year-old female. I was first diagnosed with a 13mm prolactinoma, which was later figured out to be a non-functioning pituitary tumor. Turns out, after seeing an expert surgeon, it is a Rathke's Cleft Cyst on the pituitary stalk. After no results of improved hormone levels with 4 months of Bromocriptine, I started Cabergoline .5 mg, 2 times a week. Symptoms such as extreme dizziness and lightheadedness occurred, but after nearly 6 months on the medication, it's not as bad. Mood changes and depression began after a couple of months, and I hope to have my dosage decreased next week. All of my hormone levels were normal within 2-3 months, but I'm not sure I can deal with mood swings and depression. RCCs don't normally shrink with medication."