Uceris User Reviews & Ratings

• joh...
• Taken for 1 to 6 months
• March 21, 2013

For Ulcerative Colitis, Active "I was excited when I 1st heard about Uceris' approval for ulcerative colitis. I started taking it, and the 1st few days I felt pretty good with minimal bathroom trips, stomach upset, etc. After about 3 days, things got worse and worse each day I took the medicine. It started as constant cramping and stomach pain, and slowly having very urgent bathroom needs. I had to stop taking Uceris because it made all my symptoms worse. So know that going in, that it can help you, but it also might make your situation worse."

• Kat...
• September 26, 2018

For Ulcerative Colitis "I have been prescribed this for microscopic colitis. I have been hesitating, and this site has convinced me to try it. I am on Medicare, and my supplemental insurance has quoted me $1,500 for this medicine for two months. My co-pay is $365 and only pays for one month. This is insane. What should I do for the second month, pay $1,500? Our world is crazy. Fortunately, my G.I. doctor has given me some samples, so I will try it. Thank you, all of you, for your comments."

• Ang...
• Taken for 1 to 6 months
• February 26, 2017

For Ulcerative Colitis "I am now on my second bottle of Uceris. It took about 2 weeks before it became effective for my microscopic colitis; in other words, when my diarrhea stopped completely. After becoming effective, I experienced 2 side effects; first, swelling of both ankles that lasted a few days, less than a week. After that, I had no ankle problem at all, except for a feeling of pins and needles on both feet, which I don't find problematic. Second, an increase in appetite, which I needed, as I had lost 11 lb. as a result of diarrhea. The appetite increase lasted about 10 days. Uceris has given me a chance at feeling well and able to live my life."

• Ole...
• Taken for 6 months to 1 year
• November 23, 2013

For Ulcerative Colitis, Active "Outstanding results after the fourth day using Uceris. Has none of the typical prednisone major side effects. Works in the lower colon. I used it for 8 weeks. Held the ulcerative colitis in remission for an additional 5 months."

• Ole...
• Taken for 6 months to 1 year
• October 22, 2014

For Ulcerative Colitis "I have fought UC for three years. Taken several meds. Most work for two or three months, then I experience a flare. Uceris has placed me in remission for 6 months! Expensive? Yes, outrageous. When you have fought the battle I've been through, expense is not the issue. What price being normal?"

• Geo...
• Taken for 6 months to 1 year
• August 25, 2017

For Ulcerative Colitis "Uceris has been the best medicine I have tried for my collagenous colitis. Everything else did not work or had too many side effects. To me, this is a miracle medicine. They say to take one 9 mg per day, but believe it or not, that actually made me constipated. For me, nothing took away the D, even when I took seven Imodium a day. So I started taking Uceris on an as-needed basis. It worked out to take one or two a week. So for me, I rated it a 10 with no side effects."

• BPa...
• Taken for 1 to 6 months
• May 20, 2019

For Ulcerative Colitis "Went through months of bloody stools and frequent trips to the bathroom with no output. Went to the hospital for the 3rd colonoscopy in 5 years to find an infection in the rectum. They put me on Uceris foam, the first two weeks it didn't lead to much relief, but around the end of the third week, everything snapped into place and the Uceris worked, and everything seemed to go back to normal. Will see if this is permanent or just a temporary fix."

• clm...
• Taken for less than 1 month
• February 17, 2018

For Ulcerative Colitis "I am now on this drug for the second time for microscopic colitis. The last time was in 2014. The drug, in itself, works great for me, but it is the drug company I have the issue with. They publicize that with their drug savings card plus your insurance, you only have to pay $25. That is untrue! When you get to the fine print, you find that the company, in the goodness of their heart, will pay the first $800 once per year for a drug costing $917.48 for 30 tablets. So, for the first script, it is a cost of $117.48 - hope don't need a second month, cause then it would be $917.48. So please know this ahead of time!!!!"

• Pau...
• Taken for less than 1 month
• May 13, 2019

For Ulcerative Colitis, Active "This drug Uceris may have initially helped, but as time went (the 2nd week or earlier) on, it caused so much cramping, gas, bloating, pain, and throwing up each day with my urgent other reasons for trips to the bathroom (and I had to have a bucket on my lap while dealing with the aftermath on both ends, being violently ill). To have so much added pain to my already active flare was horrifying. I believe the time-release part of the drug is to blame, as I’ve taken budesonide in the form of Entocort prior with decent results. I know it works for some people, and that’s great, but others can’t tolerate the time release, which was toxic to me."

• Anonymous
• Taken for 1 to 6 months
• July 8, 2019

For Ulcerative Colitis, Active "I didn’t notice a difference until the 5th week on Uceris. My symptoms finally went away, and it looked like I was heading into a remission after a year of an active flare. I finished my 6th week of meds and then stopped the foam (since I was prescribed the foam twice a day for 4 weeks and once a day for 2 weeks). After one week off the med, symptoms returned. The doctor has me taking it every other day now. My symptoms are gone. We will see if this is another bandaid or if I’m able to get into a healthy remission."

• Anonymous
• Taken for less than 1 month
• June 27, 2014

For Ulcerative Colitis "Been using Balsalazide 3x3 for 9 years or so, with occasional flare-ups I could resolve with slight overdosing. Could not resolve the present flare-up. After a month of 4 bowel motions a day, blood, diarrhea, the doc started me on Uceris. Next day, change to 1 bowel motion, no blood, slight diarrhea. Now, 1 week later, pretty normal 1 bowel motion per day, with occasional nausea in the abdomen. I think pretty good for a week. But the price is outrageous, and even my copay is $75 a month. Doc insists on giving it to me for 3 months."

• Dan...
• Taken for less than 1 month
• November 30, 2018

For Ulcerative Colitis, Active "I’ve been using this for almost 2 weeks, 2 times a day. Will continue for 4 more weeks, once a day. Diagnosed with UC 15 months ago; was in remission 8 months and then daily bleeding and pain for the past 5 months. CANASA hasn’t worked; hydrocortisone suppositories have not worked, and so far, the Uceris foam seems to have reduced the number of trips to the bathroom, but still active daily bleeding. Hoping that the next 4 weeks will show that this is effective. Terrified of taking biologics, which would be the next step... 61-year-old female who was in perfect health prior to UC."

• Chi...
• Taken for less than 1 month
• February 2, 2018

For Ulcerative Colitis, Active "I’ve battled this illness off and on for 16 years and have pretty much tried it all. I’m usually in full remission when I’m just on Remicade and Lialda (unsure how effective this really is), but I recently was forced to postpone my scheduled bi-monthly Remicade and promptly fell ill. I was able to get the Remicade at about week 11, but by then was in a full-blown flare, so it didn’t throw me back into full remission as I was still bleeding, had rectal pain, and frequent trips to the bathroom. I was prescribed this foam, and within 2 days noticed a substantial improvement without all the side effects of oral steroids like prednisone (horrible drug). Highly recommend this if your pain and inflammation is in your rectum/sigmoid. You can ask for lidocaine lubricant too to apply on the applicator for peace of mind."

• Rox...
• June 15, 2020

For Ulcerative Colitis "I have had UC for over 20 years. Been on Remicade, Humira, Xeljanz, Asacol, prednisone. You name it, I tried it. I am now strictly on Lialda and have been in a flare for about a month. I was prescribed Uceris, and the problem I have is, since I have severe urgency, it is hard to keep the foam from wanting to come back out. My UC is in the lower colon, and I go to the bathroom between 10 and 20 times per day. It is very painful to try to hold in the foam. Suggestions?"

• kkr...
• May 16, 2016

For Ulcerative Colitis "My physician prescribed budesonide originally for my Ulcerative Colitis, but I felt the out-of-pocket price for this RX was out of the ballpark. So, after contacting my physician again, they gave me a RX for Uceris and sent me information to assist in the cost. But after my insurance coverage and the $600 that the 'coupon' that was sent to me, the total still came to over $200.00 for 30 days. I have a copay of only $20.00, but since some entity seems to have the cost of this RX, I have not been able to afford it and see what help it is."

• Hop...
• Taken for less than 1 month
• December 31, 2014

For Ulcerative Colitis, Active "I have faithfully taken 4 Lialda 1.2 mg every day for 8 years. I tried all medicines such as Asacol, 6-mp, etc., and had to discontinue due to side effects. I also use the Rowasa enemas/suppositories temporarily, and when stopped, the rectal bleeding starts again and worsens every day. I have never been in remission with Lialda. I started the Uceris on 12/04/14, and I felt better than I had ever felt since the diagnosis in 2003. Two weeks into Uceris, legs and ankles swelling. Continued Uceris and praying swelling was temporary, then had shortness of breath and fluid buildup in my chest. The swelling was unbearable. I stopped the Uceris; swelling subsided in 5 days. I do not want Remicade or Humira due to side effects. Why Lialda; no remission for 8 yrs."

• UCW...
• Taken for 1 to 6 months
• January 22, 2019

For Ulcerative Colitis, Active "This is my last week using the Uceris foam. I have not noticed any significant differences over the past 6 weeks while using this. So unfortunate because I thought since the foam was going right to my ulcers, it would really heal them, but instead I’m still going to the bathroom 6-10 times a day with fresh blood, painful gas, and pressure. Doctor said my next choices are switching my diet drastically, prednisone, or a biologic. Scared of biologics but think prednisone and a different enema will really help. Wish me luck!"

• Ean...
• November 2, 2018

For Ulcerative Colitis "I felt like I was going into a UC flare, so my doctor told me to take Uceris for two months. We wanted to avoid the harsh side effects of pred. (Just found out I have osteopenia at 23 because of my pred usage.) Within a week of me taking it, I started having extremely watery stool... I would go 10-15 times a day and dealt with this for the two months (the duration of the Uceris course). My doctor finally tested me for C-Diff, and I was positive! I can’t imagine I got the C-Diff from anything BUT using this medicine because it happened a week after I started. I’ve never had C-Diff in the past. It was a NIGHTMARE! Because I got the infection, it put me back in a horrible flare-the combo sent me into the hospital for a week. I’m currently doing the Uceris rectal foam, and that is working WONDERS for me!! My affected area tends to be in my lower colon, so the foam put me into remission after about two weeks! Zero side effects."

• 12...
• Taken for 1 to 6 months
• March 9, 2017

For Ulcerative Colitis "I have UC for 12 years. I was in remission for a few years, and then all of a sudden, I had a flare-up. I have been on this medication for almost 2 months. When I first started on it, it helped for like a week or so. I had swelling in my face and joints, sore muscles, and headaches. My doctor told me to stick with it so my body could adjust properly, and it helped but didn't stop my issues. For the last week, I have been going to the bathroom 10 times a day. My doctor and I are now trying to figure out the next step."

• Wpa...
• Taken for 2 to 5 years
• July 9, 2021

For Ulcerative Colitis, Active "A Mayo doc prescribed Uceris foam in April 2019 after several months of severe tenesmus controlled primarily with Bentyl. The medicine started working rather quickly, and all was good for about a year. Experience told me I had another attack coming a year after first use, and I had the doctor prescribe another round of treatment in May of 2020. It knocked out the symptoms again quickly. Here I am again about 14 months later, and I think the symptoms are coming back. I will try again, as it beats getting on the infusion treadmill for the rest of my life."

• Fpg...
• August 14, 2021

For Ulcerative Colitis, Active "I have been on Asacol, then switched to Lialda, the past 10 years. I have ulcerative colitis. When I first got diagnosed, I was in very bad shape. Everything was inflamed. Two months ago, I had a colonoscopy. I had put it off for 10 years, so I was fearing the worst. Anyway, only a small area was active, huge improvement. My doctor recommended that I try Uceris. I said sure, so I started it. After the third week of taking the medication, I called my doctor, and we decided to stop it as I had no firm bowel movements. Since my colonoscopy, five days after stopping the medication, I returned to my normal bowel movements. The medication did not work for me. It made me have urgent bathroom needs. I can see the medication does what it says, it sounds good to me, just it didn't work for me. I was hoping it would."

• Pau...
• Taken for 2 to 5 years
• February 13, 2021

For Ulcerative Colitis "Terrific drug. I use the rectal foam every other day. My life is now completely normal. The drug, however, is expensive, costing $600 and up for a month's supply on the open market. My insurance company considers it a specialty drug. The last time I paid ca. $100 for a two-month supply. But the actual amount of the drug in the box of two cylinders may last as long as three months if the drug is taken no more than three or four times a week."

• Sar...
• January 22, 2021

For Ulcerative Colitis "It works really well for me when I'm not in too bad of a flare. I have been on it now for just over a year while I try all the different biologics, unable to get off of Uceris without flaring again. It takes a bit longer than prednisone to work, so give it a couple of weeks. It's been great for me while I try all of these biologic meds since they all take forever to see if they're going to work. I haven't had any side effects other than I started getting a ton of stretch marks for the first time in my life (I'm 37), and they kept coming even when I had stopped gaining weight. It's also been very difficult to lose much weight. I gained a ton while on prednisone a bunch over the past few years. I take the generic."

• Nik...
• Taken for less than 1 month
• July 22, 2016

For Ulcerative Colitis, Active "Had bleeding, diarrhea, frequent trips to the bathroom... Started to notice a difference within a day and a half of taking this. Not as many bathroom trips... actually starting to feel normal again."

• Lau...
• Taken for less than 1 month
• October 11, 2018

For Ulcerative Colitis "No. I will never take this again. It has caused nausea, stomach pain, fatigue, broken sleep, and whatever else wasn’t already bad enough with my flare."