Budesonide for Inflammatory Bowel Disease User Reviews (Page 2)

• Tum...
• Taken for 2 to 5 years
• October 16, 2021

"Taken this 3 times over the course of 3 years, as well as Entocort and Prednisolone, each one for several months. I found this does work for the first week or two, but then gets less effective, and my symptoms come back with a vengeance after that time. Also noticed that on all 3, my levels continued to rise in stool tests, despite colonoscopy showing nothing visual, so I would say it can work but not in all cases. Side effects of the first two drugs were a weakened immune system, tiredness, and headaches in the later cycles."

• JEH...
• April 30, 2023

"I have been on this drug for 3 months. Went through a regimen and weaned off. Began to have diarrhea immediately. Went back on one budesonide 3 mg pill. I have no appetite, have weakness, and nausea. Going to get off this pill and see if I can get to feeling better. I don’t think you are supposed to stay on this steroid."

• Ano...
• Taken for 1 to 6 months
• June 1, 2025

"I have been prescribed budesonide as a help to contain inflammation in my lower GI. It worked almost immediately on my pain, so I was given a second 90-day supply. Now I am experiencing a lot of bruising on my legs and extreme dryness in my nose. I will tell my GI doctor, but pain management in my stomach area is worth it."

• Ano...
• Taken for 1 to 6 months
• July 10, 2025

"Horrifically negative experience. Dose regimen: 3 mg caps, 3 cap PO q am. Sig: take x 60 days, then dec. to 2 cap PO q am x 60 days, then 1 cap PO q am x 60 days. By approximately day 7, began to notice Sx. Nighttime awakenings: sudden, abrupt, first occurring @ 2 am, then usually 2-3 more times during the night. Each episode approx. 2 hours apart. Feeling hot (room temp was cool), like a sympathetic nervous system response. Severe xerostomia, inability to make saliva, eye sockets painfully dry w/ fine crystal formation: upper and lower lid, required use of finger to move the eyelid open or close. Severely dry conjunctival sac. No history of (h/o) this in lifetime, leading to horrific fatigue. Also back, joint pain."

• Ros...
• June 15, 2025

"I have been on budesonide for 3 years off and on. It works sometimes quickly and sometimes it takes 4 or more weeks. My gastro suggested I take Imodium with it. That helps if it is continued for 2 times a day. I hope this helps some of you."

• Ano...
• Taken for less than 1 month
• June 5, 2025

"Helped immediately to reduce the number of diarrhea episodes per day. Started at 3 caps (3 mg) per day and felt like developing constipation, so lowered to 1 per day until BM. Then upped the dose to 3 caps per day again and experienced severe leg and foot muscle cramps during the night, so lowered the dosage to 2 caps per day, with good success and no side effects."

• Dre...
• Taken for 1 to 6 months
• June 25, 2015

Budesonide "Did not work. Severe psychological and physical side effects requiring hospitalization."

• Pun...
• Taken for 1 to 6 months
• August 9, 2020

"I have also had very good results with Budesonide EC3 mg for IBS. Went off after 2 months seven months ago, now back using. Wondering if I will ever be able to live normally without it."

• Kaz...
• February 24, 2020

"Unfortunately, I came off this after a week. The side effects were too much. I had anxiety, low mood, stomach cramps."

• Ger...
• Taken for less than 1 month
• September 24, 2020

"I have been taking budesonide for 6 days now. Had a few days of good bowels, and yesterday and today not good. How long should it take to get back to normal? I have IBS."

• Dee...
• Taken for less than 1 month
• July 12, 2021

"Been on it for almost 3 weeks. Still having flare. Not as bad, but still have flare."

• Ray...
• August 8, 2021

"After the sudden onset of IBD and enteropathic arthritis, Entocort helped with the nausea within hours. Alleviation of colon and body pain over days."

• Ano...
• Taken for 1 to 2 years
• May 2, 2025

"I have found this drug to be highly effective against my symptoms of colitis. However, the side effects of raised blood pressure and sinus infections are making it not worth taking."