Azathioprine for Autoimmune Hepatitis User Reviews
Brand names: Imuran, Azasan
Reviews for Azathioprine
- CAB...
- Taken for 1 to 2 years
- June 4, 2023
"Diagnosed with AIH in March 2021, started on prednisone, once liver enzyme levels stabilized, I was placed on AZA. No major side effects other than excessive fatigue in the beginning that would come on suddenly. I would be doing well, and then fatigue would hit me out of nowhere. Learned to pace myself, listen to my body, and rest when I needed to. I also started to do low-impact exercise and get 20 minutes a day, which helped a lot. Fast forward, my numbers have been stable the whole time while taking AZA. I just had a liver biopsy, which showed no inflammatory activity. I am tapering the medication and will see my liver doctor in 3 months to recheck labs. The healing process has been a hard journey, it’s not just taking the medication to heal your body, it’s also healing your mind, spirit, and soul. Making changes to honor yourself. I pray that everyone who has been diagnosed with this condition is restored and healed."
- Ccm...
- Taken for 10 years or more
- December 6, 2020
Azathioprine "I have been on azathioprine for over 20 years, along with prednisone when I have a flare of autoimmune hepatitis. A couple times the Dr tried to lower my doses, and each time I flared. Azathioprine has been a life saver."
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- Ebb...
- Taken for 10 years or more
- March 14, 2016
Azathioprine "I've been taking Imuran for 18 years, also prednisone. Stopped prednisone 3 years ago and started on allopurinol with Imuran for the last 3 years. Have now stopped allopurinol because I've got urticaria, they think it's allopurinol. This has been for 6 weeks, just started it again 2 days ago and the rash is back, very painful. Not sure what I will take with Imuran now, if anything. Don't understand. Also take Lipitor, Zoloft. I'm a diabetic also and take metformin and insulin: Novolog and Lantus. Also aspirin. I'm 50 this year, and it's worrying."
- Big...
- Taken for 2 to 5 years
- October 2, 2018
"I was diagnosed in 2015. Prednisone until levels came under control, and they added the azathioprine to 'keep me there.' Worked great, levels always in line, made a general conversational comment about getting older-almost 60-and feeling a little 'foggy' on name recall. They took me off immediately out of concerns around memory loss. I don't know if an actual side effect or just getting older. But now, struggling to find a replacement. My experience positive until recently, but I think I want to give it another try and just monitor more closely. I had no side effects from the azathioprine other than that potential."
Are you taking this medicine?
Your review helps others make informed decisions.- Lee...
- Taken for 5 to 10 years
- September 28, 2019
"Was on azathioprine for 4-5 years, it got my liver numbers down and kept them down. But into the 5th year, I asked to try weaning off or lowering the dosage, I was constantly getting sick. It seemed that I was being knocked down at least once a month from a cold or just complete fatigue. I also noticed if I went into highly public areas, stores or restaurants, I would be laid up the next two days. I did good at a lower dosage, then stopped taking altogether for almost 2 years. I sustained knee injuries and required pain medication until then, along with lidocaine patches, my numbers spiked to the 300s, and quickly, so I’m back on the azathioprine. Hopefully, I will be able to go off again after healing or something that won’t over-suppress my immune system to the point I cannot be out in public will come along."
- j-r...
- Taken for 5 to 10 years
- January 2, 2023
"I have been on azathioprine 50mg since January 2015. For the first 6 months, I took prednisone, which once my numbers leveled out, they took me off. I have stayed with azathioprine, and my numbers have always been great. I had a scan in 2022, and I was still at the same level 1 when I began taking azathioprine."
- PEW...
- Taken for 5 to 10 years
- September 16, 2024
"I have been on azathioprine for 5 years with success in keeping the autoimmune hepatitis under control, but was sick at my stomach for years. I followed up with a GI doctor for my stomach issues. The NP checked my pancreas and found the lipase elevated. I found out that I had pancreatitis due to this medication. My doctor had not been checking my lipase/amylase for the 5 years I was on this medication. I wish I had known this so I could have advocated for myself to have my pancreas watched while on this medication."
- Val...
- Taken for 2 to 5 years
- May 13, 2025
Azathioprine "While taking chemotherapy for breast cancer, my liver failed. I heard about Imuran but was scared because it turned off my immune system. I had no idea it was hereditary, my mother's was so bad she needed a liver transplant. It was passed on to me (who knew). 40 mgs of Prednisone and 75 mg of Imuran was horrible. I had horrible side effects, cried but kept going. It's been 3 years now. I'm cancer-free and so thankful for 50 mgs of Imuran daily. I have no side effects because I take my Imuran at night before bed. I'm so thankful my copay was manageable ($0.00, my hospital helps me) and so happy to still be alive. I'm off the Prednisone now and still trying to go on remission. Absolutely love Imuran, it was my savior."
- Kka...
- November 28, 2019
"Was diagnosed with autoimmune hepatitis in '06. Been on azathioprine for 12 years. No problems, no side effects."
- Ccm...
- Taken for 10 years or more
- March 30, 2022
"Have been on Imuran 100 mg for over 20 years, and it has been a lifesaver. Dr. tried to lower several times, which caused my liver counts to go up. Can't live without Imuran."
- Ccm...
- Taken for 10 years or more
- April 4, 2022
"Been on azathioprine for over 20 years. Keeps my ALT/AST numbers in the normal range."
- onl...
- Taken for less than 1 month
- October 31, 2022
"Just started 2 days ago. Reading reviews is very helpful. Thank you."
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Azathioprine "I have chronic autoimmune hepatitis and have been taking Imuran for four years. It has prevented further flare-ups (which I have taken as much as a year to recover from). It enables me to live my life feeling well with mild side effects (some nausea)."