User Reviews for Arimidex to treat Breast Cancer
Arimidex has an average rating of 5.7 out of 10 from a total of 59 ratings for the treatment of Breast Cancer. 37% of those users who reviewed Arimidex reported a positive effect, while 31% reported a negative effect.
“I have been on Arimidex for one year now. Side effects like everyone else is the bone and muscle pain, hot flashes, insomnia and just Now taking B-6 for the muscles, vitamin D and Calcium for the bones and a probiotic for the stomach/gastro issues. Bought a new bed, see a chiropractor once a month, etc. So many life changes just to be able to tolerate this med. As a person with high blood pressure to start with and on a HBP med, about 10 months in my BP started to climb. I was doing all the same things everyday. Walking, green tea, beet juice, limiting caffeine and alcohol and by the time I was 11 months in it was 179/109. Stopped the arimidex for 2 weeks and its down to 135/81. I am NOT crazy...I really think it is increasing my blood pressure. Going to start the arimdex again for a week and see what happens. Hoping for the best! Stay strong everyone, this too shall pass :)”
“Stage 1 grade 2 invasive ductal carcinoma. Lumpectomy and radiation. The last 6 months of the 5 years on anastrozole I began to have hip and back pain. I stopped taking it October 1st and today is November 18th. I want to get back to my daily walk but have not been able to due to the difficulty walking. I do still walk the dog at night but it isn't easy. I have tried stretching and in some cases I felt it aggravated it. I even limp some days. It is very discouraging. I am taking 1 aleve morning and night but don't really like doing that either. I am hoping it gets better enough to walk which may make me feel better. I am 60 yrs old.”
“I was diagnosed with breast cancer Stage 1, Grade 1. Lumpectomy and radiation no chemo. I am 7 months into taking Arimidex and joint and muscle pain horrible. I am a very active person with running all my life and hiking. I am sore from head to toe in both the muscles and joints. Also fatigued way more than usual. I just told my oncologist that I was stopping the Arimidex for now. My onc said to stay off the Arimidex for a month. I will then call back and let them know my status. May then put me on another AI.”
Frequently asked questions
- How do I take Arimidex on a cycle and how much?
- What happens when you stop taking Arimidex?
- Does anastrozole cause weight gain?
- How soon do the side effects of Arimidex start?
- Does anastrozole cause hair loss?
“Taken anastrazole for 4 years. Having debilitating joint pain, difficulty walking. Will definitely need to consider stopping this medication. Need quality of life. Don’t let the physicians make you feel like your crazy!”
“I was diagnosed stage 1b Lumpectomy, 4 weeks of radiation then Arimidex. Well the side affects are too much for me. The bone pain was excruciating, it woke me up at night. Fatigue, headache, nausea, foggy brain, I do yoga and walk 3 days a week. I have decided to go a natural path. Do the research for yourself before you make your on decisions. I just want a good quality of life back! I wish you all well.”
“I took Arimidex for 6 months. I have been off it for almost a month. My hands ache and I have trigger finger in both hands. I have joint pain in both my upper and lower extremeties. I have had weight gain and my blood pressure stays high. My doctor change my prescription to tamoxifen. My side effects from the Arimidex are not going away. I can barely use my hands. My job is very physical and hands on. I am 57. Too young to retire and all my back up skills require my hands. This medication is what will kill me, not the cancer.”
“I took it for 5 years and just stopped on October 31st. This drug is TERRIBLE. It destroys your bones, causes hip joint pain so bad that you lose your balance, causes hot flashes, night sweats, insomnia, constipation, heart palpitations, spinal pain, loss of bone density which causes OSTEOPENIA which can lead to OSTEOPOROSIS and more. Its disgusting that this is basically the only one you can take other than tamoxifen. Your oncologist SHOULD tell you what the side effects are going to do so that you can somehow prepare for them. Mine prescribed GABAPENTIN for the hot flashes, night sweats and insomnia. Arimidex has to be taken for only 5 years and no more. Hopefully the weakness in my hip joints will ease, the pain in my bones, the constipation, heart palpitations. You will never get back the bone loss. I'm taking high doses of OTC vitamin C & D.”
- How much does Arimidex increase survival?
- How long do side effects last after stopping Arimidex?
- How do I take anastrozole on a cycle and how much?
- What does anastrozole do to your body?
“Finished my 5 years of therapy May 6th & was counting down the last 6 months leading up to that date! I would sweat so bad while on it, very intolerant of heat & now that I am off it I feel pretty warm sometimes but the sweat doesn't drip like it used to, thank goodness! Have been getting a little more sleep since stopping it (was only sleeping at the most, 4 hours at a time, while on the anastrozole), I am noticing much less hair loss in the shower, I don't get the odd, slight queasy feeling in the mornings anymore & my general mood has improved- at least, I think so! ”
“Diagnosed at with Invasive Ductal Carcinoma, Stage 1-no lymph nodes involved. Had Lumpectomy, Brachial Therapy Radiation and 5 rounds of chemotherapy. I was ER-Positive, therefore, chemo was recommended because after Oncotype DX done, it showed I had a 16% chance of cancer coming back. I have been on Arimidex going on 7 seven years. Initially, lots of stiffness, but I hired a personal trainer, I weight train, run, and do yoga. Praise GOD, I'm doing very well and no stiffness!! Don't settle for what the drug is doing-work on you and you may be surprised how much better you will feel if you incorporate some exercise into your routine! God Bless!”
“I lasted 5 weeks on Armidex for my breast cancer. I stopped taking it because of the side effects. I’ve been off it 5 weeks while I research & decide what to do before discussing with my oncologist. I’m 58 years old & had no significant medical history. I have occasional neck pain a physically active job from which I am retired. This drug caused extreme joint & bone pain. Before surgery I was flipping tires & doing box jumps at the gym. This drug made me feel too bad to go for a walk. Other side effects included all over itching, dry hair, dry skin, dry eyes, insomnia, nightmares, nausea. The pharmacist told me the only side effect would be dizziness which I did not have. I didn’t research further. I was so happy the radiation was done & thought taking a pill would me no big deal. I’d experienced hot flashes and night flashes for years so those were not new. When I googled the drug I found many women had the same side effects. The bone density issue is alarming.”
“I’m finally off Arimidex. Every time I mentioned one of the many side effects I was experiencing, my oncologist said it not from the drug. Read the flyer that comes with it. I’m hoping my joints and bones will stop hurting, that I won’t sweat through my insomnia and that my hair will come back. What a miserable 5 years.”
“I am 60 and have been on Arimidex going on 4 years now for stage 2 invasive lobular breast cancer. Initially I experienced trigger finger but that went away after a few months. I have also experienced slight weight gain (5 lbs), insomnia & hot flashes regularly. I exercise everyday to keep my bones strong and luckily I have no joint or bone pain. I just noticed recently thinning hair after 4 years on this. My Dr. says they recommend another 5 years after next year so it will be 10 years total. I think for me the worst side effect is the hot flashes but it’s ok! I’m still here! :)”
“Taking Arimidex for just short of four years. Horrible bone and joint pain. Pain meds leave me unable to function. Insomnia, shortness of breath, chest pains. Thousands of dollars on tests that show nothing. Treated like a nut case. Oncologist finally said stop taking it, but gave me nothing for pain. Trip to ER , prescribed oxycodone which works, but knocks me out and grog continues for two days after taking it! Oncologist says recurrence is 8% without Arimidex, 5% with it. I will not continue this torture for a mere 3%! This is no way to live.”
“I only took Arimidex for 1 month, after having a mastectomy. During that month I experienced severe joint pain, nausea, headaches, shortness of breath, and finally, a severe asthma attack which convinced me that I needed to stop this drug. Almost immediately, all side effects disappeared. Now, eight months after stopping Arimidex, and taking nothing else, I have quite severe Rheumatoid arthritis. I was previously fit and active. I am 70 years old. I would rather take my chances with the cancer returning than take this drug again.”
“I have been taking Arimidex for six months. Insomnia is the worse part for me. Some hot flashes and moodiness. Weight gain of ten pounds due to fatigue and pauses in working out. Just recently I up my walking to 80 minutes a day a cut out all sugar. This has helped me with the insomnia. Some joint discomfort, but not bad. Just trying to figure out what is best way to help with side effects.”
“I took Arimidex for 5 years and only recently stopped. I had quite a few side effects, however, the joint pain and stiffness was the hardest. I heard about something called Ubiquinol, which is apparently something that is naturally produced in your body, but slows down quite a bit as you age. I've been taking it daily now for a few months and I have to say, the stiffness and joint pain has mostly subsided. I say mostly because I forget to take it some days. I'm trying to get better about taking it daily with a multivitamin. It's kind of expensive but it's way cheaper and better than any of the medicine alternatives I was offered by my doctors. I don't like taking medicine for every little thing. Plus there's a hundred side effects to worry about.”
“I took it for 5 yrs. and 2 months. I cannot say if the changes were from chemo or from Arimidex. Changes in taste and smell persist. Frontal headache, blurred vision, cough, calcium loss - osteopenia. Stiff joints, long bone pain, sciatica pain of right leg, fatigue, wicked insomnia, hot flushes & flashes. Neuropathy in hands and feet, specially balls of feet and very sensitive tips of toes. Very dry skin, aged face, hair is very thin and breaking easily. Never got back full eyebrows, very SAD! I loved my eyebrows.”
“I've been on Arimidex for 10 weeks. Although I had arthritis prior to taking Arimidex, my joint discomfort has increased substantially and now I find that my joints (especially my hands and hips) are swollen and always painful. My fingernails have thinned and continually split and tear off, often below the quick (ouch!). I'm also disheartened to notice that my eyebrows and eyelashes, which had just grown back after my last chemo session, have started to either break or fall out again. Bone and muscle pain are always with me now.”
“I have had the hot flashes, and the weight gain. Not much of the other side effects so far. Not willing to keep gaining the weight, talked to my oncologist but he says the weight gain is not from the Arimidex. I know better, I have always been very very careful with my weight and going on this medication is the only time I have had the weight gain. I stopped it for 5 weeks and lost, went back on the Arimidex and the weight came back. I work out 5 to 7 days a week so I am very active. ”
“I've been on Arimidex for 4 years. Side effects are insomnia, joint pain, painful sex or no interest in sex, forgetfulness, anxiety and depression. One year to go and hopefully I will not have to take it. Maybe still on it because of a family history of breast cancer.”
“Started taking Arimidex in June and have lost 45lbs. Vomiting and diarrhea have left me homebound. I keep starting and stopping this pill. Oncologist thinks I'm crazy, but when I stop the pill the vomiting and diarrhea stop. Just stopped taking it before Christmas and I'm feeling so much better. Have had two lumpectomies and a mastectomy. Don't want the cancer to return, but the side effects are too much for me.”
“I took the Arimidex for five years, three years in I began having serious issues in my hands. Trigger finger in both hands. Two years after stopping the medication, I am still having serious issues with my hands. The side effects are accumulative, and I decided to discontinue taking it.”
“fine initially but within 2 weeks, severe ankle pain, insomnia, hot flashes and severe sweating. Thinning hair just after it just all grew back beautifully. Difficult eye prescription, moody, tingling nerve pain in right thigh, tired and now have a hiatal hernia. Lack of interest in sex, which has still not returned :( I just wonder what the long term effects could be. This med was one I loved to hate. But my cancer is gone and it has been 6 years that I am cancer free”
“Im on year 12! Large weight gain. Horrid bone pain...especially bottom long bones in legs and right arm. Neuropathy. Weak hands as far as gripping. Getting up and moving after sitting awhile is not fun. Headaches. Walk the floors at night, because being up ON my legs, makes the pain a little better. I was stage 3c, ER+, scared too death to come off it. I'm 45 and want to stick around, but wish I didn't feel so crappy.”
“The first year of taking anastrozole, I experienced hair loss, weight gain even though I was having difficulty keeping food down. It wasn't really nausea, it was more like a reaction. Itchy skin, foggy head, aches and pains. During the second year , i found one morning that I could barely walk, severe knee pain, sore legs, sore bones...this is still the case, but I started gradually to start a yoga routine, which helps some days, it doesn't erase the pain, but seems to make it more manageable. It's like a different set of side effects every few months.i will stick with it, as much as I cont want to. The surgery and radiation are two things I never want to deal with again. Good luck to all of you, keep strong!”
“I have been taking arimidex for 2 months. Within the first two weeks my osteoarthritis has deteriorated from tolerable to barely able to walk. I can not stand for long periods. My knees get stiff each time I sit. I have received a series if Ortho visc injections and am hoping for a miracle. I must keep working for insurance coverage. I have vision changes, chest and muscle pain,also. I have added fosamax due to the risk of calcium loss since I was diagnosed with osteopenia at the same time as stage 1 breast cancer. I am expertiencing more fatigue with arimidex than after radiation. I am not sure if I can tough this out for five years!”
“I have been taking Aridimex for 4.5 years, coming up on my 5 year post treatment check up. Side effects for me have been; hot flashes, neuropathy, intense joint pain, insomnia and 30% loss of bone density. I take 2 ibuprofen daily to manage pain and power through. New clinical data indicate staying on longer may reduce risk further. I was so looking forward to getting off this drug, not sure how I feel about that.”
“Initially, I tolerated the drug well. About 4 months into treatment, I had a lot of problems: dizziness, disorientation, joint and muscle pain and stomach upset. Also, my hair started to thin, and nails cracked due to dryness. Within a week of stopping the drug I was feeling better. One month out and I was very well.”
This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.
Learn more about Breast Cancer
IBM Watson Micromedex
Symptoms and treatments
Drugs.com Health Center
- Breast Cancer Guide: Causes, Symptoms & Diagnosis
- Breast Cancer: Treatment and Prevention Options
Mayo Clinic Reference
More about Arimidex (anastrozole)
- Side Effects
- During Pregnancy
- Dosage Information
- Patient Tips
- Drug Images
- Drug Interactions
- Compare Alternatives
- Support Group
- Pricing & Coupons
- En Español
- 65 Reviews
- Generic Availability
- Drug class: aromatase inhibitors