User Reviews for Arimidex
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Arimidex.
Reviews for Arimidex to treat Breast Cancer
"Taking Arimidex for just short of four years. Horrible bone and joint pain. Pain meds leave me unable to function. Insomnia, shortness of breath, chest pains. Thousands of dollars on tests that show nothing. Treated like a nut case. Oncologist finally said stop taking it, but gave me nothing for pain. Trip to ER , prescribed oxycodone which works, but knocks me out and grog continues for two days after taking it! Oncologist says recurrence is 8% without Arimidex, 5% with it. I will not continue this torture for a mere 3%! This is no way to live."
Tekteacher (taken for 2 to 5 years) October 24, 2016
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"I took arimidex for five months after a mastectomy. The first few months I had very little problems apart from a severe farty bottom and abdominal pain. Then it hit me that awful debilitating pain so many people talk about. I couldnt close my hands in the morning and when I got out of bed I could barely walk my legs were so stiff. I tried physio, dry needling, glucosamine, tumeric and various rubs to no avail. I developed huge knotty muscle lumps on my legs and tummy. My oncologist advised me to have a short break and I noticed differences almost straight away. I could actually walk again and after two weeks everything settled. I have just started tamoxifen and I am crossing my fingers that all goes well. I really want the insurance."
Unhappy chappy (taken for 1 to 6 months) October 17, 2016
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"6. months into taking this drug, I had to stop. Side effects, painful weakness in both hands, hurt to grip, Trigger thumbs- bad when waking up in am. Took med in morning. Dizzy, nausea, headache, heartburn,, discomfort in center of chest.Exhausted mid day, bone pain Lost sex drive. 62 yes old. Since stopping 2 wks ago- hoping hands & sex drive return, other problems have stopped. Feeling more normal , weakness & pain in hands still bad."
keytalk (taken for 1 to 6 months) October 16, 2016
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"Im on year 12! Large weight gain. Horrid bone pain...especially bottom long bones in legs and right arm. Neuropathy. Weak hands as far as gripping. Getting up and moving after sitting awhile is not fun. Headaches. Walk the floors at night, because being up ON my legs, makes the pain a little better. I was stage 3c, ER+, scared too death to come off it. I'm 45 and want to stick around, but wish I didn't feel so crappy."
Anonymous (taken for 10 years or more) July 24, 2016
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"I have been using Arimidex for approx. 6 months. I have had some side effects, mostly hot flashes, and some insomnia. The hot flashes have gotten better, and the insomnia I just switched the time of day in which I took the medication."
Beatlebear (taken for 6 months to 1 year) June 22, 2016
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"I have been taking arimidex for 2 months. Within the first two weeks my osteoarthritis has deteriorated from tolerable to barely able to walk. I can not stand for long periods. My knees get stiff each time I sit. I have received a series if Ortho visc injections and am hoping for a miracle. I must keep working for insurance coverage. I have vision changes, chest and muscle pain,also. I have added fosamax due to the risk of calcium loss since I was diagnosed with osteopenia at the same time as stage 1 breast cancer. I am expertiencing more fatigue with arimidex than after radiation. I am not sure if I can tough this out for five years!"
Nijimon (taken for 1 to 6 months) June 3, 2016
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"I only took Arimidex for 1 month, after having a mastectomy. During that month I experienced severe joint pain, nausea, headaches, shortness of breath, and finally, a severe asthma attack which convinced me that I needed to stop this drug. Almost immediately, all side effects disappeared. Now, eight months after stopping Arimidex, and taking nothing else, I have quite severe Rheumatoid arthritis. I was previously fit and active. I am 70 years old. I would rather take my chances with the cancer returning than take this drug again."
Angry Nana September 20, 2015
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"fine initially but within 2 weeks, severe ankle pain, insomnia, hot flashes and severe sweating. Thinning hair just after it just all grew back beautifully. Difficult eye prescription, moody, tingling nerve pain in right thigh, tired and now have a hiatal hernia. Lack of interest in sex, which has still not returned :( I just wonder what the long term effects could be. This med was one I loved to hate. But my cancer is gone and it has been 6 years that I am cancer free"
oma bama August 10, 2015
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"I've been on Arimidex for 10 weeks. Although I had arthritis prior to taking Arimidex, my joint discomfort has increased substantially and now I find that my joints (especially my hands and hips) are swollen and always painful. My fingernails have thinned and continually split and tear off, often below the quick (ouch!). I'm also disheartened to notice that my eyebrows and eyelashes, which had just grown back after my last chemo session, have started to either break or fall out again. Bone and muscle pain are always with me now."
WV lady April 10, 2014
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"I took Arimidex for 5 years and only recently stopped. I had quite a few side effects, however, the joint pain and stiffness was the hardest. I heard about something called Ubiquinol, which is apparently something that is naturally produced in your body, but slows down quite a bit as you age. I've been taking it daily now for a few months and I have to say, the stiffness and joint pain has mostly subsided. I say mostly because I forget to take it some days. I'm trying to get better about taking it daily with a multivitamin. It's kind of expensive but it's way cheaper and better than any of the medicine alternatives I was offered by my doctors. I don't like taking medicine for every little thing. Plus there's a hundred side effects to worry about."
Frenchgirl52 (taken for 5 to 10 years) March 5, 2014
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"I took it for 5 yrs. and 2 months. I cannot say if the changes were from chemo or from Arimidex. Changes in taste and smell persist. Frontal headache, blurred vision, cough, calcium loss - osteopenia. Stiff joints, long bone pain, sciatica pain of right leg, fatigue, wicked insomnia, hot flushes & flashes. Neuropathy in hands and feet, specially balls of feet and very sensitive tips of toes. Very dry skin, aged face, hair is very thin and breaking easily. Never got back full eyebrows, very SAD! I loved my eyebrows."
Lealmck (taken for 5 to 10 years) February 26, 2014
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"I've been on Arimidex for 4 years. Side effects are insomnia, joint pain, painful sex or no interest in sex, forgetfulness, anxiety and depression. One year to go and hopefully I will not have to take it. Maybe still on it because of a family history of breast cancer."
Jacklink (taken for 2 to 5 years) October 5, 2013
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"Took tamoxifen 9 months. Extreme bruising. Switched to Arimidex. After 4 weeks, extreme pain in hand. Next severe headaches. Each month brought increased pain in thumbs, hand, feet, long leg bones. Joints hurt, wrists weaken every month. After 10 months became depressed and had insomnia. Finally, had enough and stopped. Within, 2 weeks long bone pain went away. I still have some knee pain, trigger finger, and wrist weakness and its been 3 months. Doctor switching to Aromasin next month."
sissyy June 19, 2013
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"I started taking the medication in March 2013 after chemo on the fall of 2012 and then radiation in Jan-Feb of 2013. I am experiencing joint and muscle pain. But as a migraine sufferer, it's a walk in the park. Whatever works to cure this cancer, I'm up for everything and anything."
Roxanne&Philo (taken for 1 to 6 months) June 7, 2013
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"Been taking Arimidex for nearly 6 years now. Side effects for me are joint & bone pain, weird feeling in my chest that wakes me up. Weight gain, hair thinning & occasional hot flushes. I take calcium tabs and alendronic acid for my bones. Apart from that I'm grateful to be alive."
annie K May 30, 2013
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"I have had the hot flashes, and the weight gain. Not much of the other side effects so far. Not willing to keep gaining the weight, talked to my oncologist but he says the weight gain is not from the Arimidex. I know better, I have always been very very careful with my weight and going on this medication is the only time I have had the weight gain. I stopped it for 5 weeks and lost, went back on the Arimidex and the weight came back. I work out 5 to 7 days a week so I am very active. "
Oregon 2013 March 20, 2013
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"Started taking Arimidex in June and have lost 45lbs. Vomiting and diarrhea have left me homebound. I keep starting and stopping this pill. Oncologist thinks I'm crazy, but when I stop the pill the vomiting and diarrhea stop. Just stopped taking it before Christmas and I'm feeling so much better. Have had two lumpectomies and a mastectomy. Don't want the cancer to return, but the side effects are too much for me."
McD333 January 9, 2013
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"I've been on Arimidex 4 years and 1 month, prior to which I took Tamoxifen for 5 months. During the first year I developed a frozen shoulder, which my oncologist said could be due to the Armidex, extreme joint stiffness which gradually subsidized and ended after 9-12 months, intense hot flashes which as of this year are lessening, insomnia, vision issues (detached retina - but am also very myopic), pronounced facial aging, dry skin (am 57 years old) and thinning hair. I also experienced depression and mood swings beginning 3 months after the start of Arimidex. I never took medication for it but am finding that it has also gradually lessened over the last 1 1/2 yrs."
Anonymous October 15, 2012
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