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Congenital Hypothyroidism in Children


Congenital hypothyroidism is a condition that is present at birth. Your child may be born without a thyroid gland, or the thyroid gland may not make enough thyroid hormone. Thyroid hormones help control body temperature, heart rate, growth, and gaining or losing weight. In children, thyroid hormones play an important role in normal growth and development.

Thyroid and Parathyroid Glands


Informed consent

is a legal document that explains the tests, treatments, or procedures that your child may need. Informed consent means you understand what will be done and can make decisions about what you want. You give your permission when you sign the consent form. You can have someone sign this form for you if you are not able to sign it. You have the right to understand your child's medical care in words you know. Before you sign the consent form, understand the risks and benefits of what will be done to your child. Make sure all of your questions are answered.


Let your child rest. For infants, sleeping long hours and napping are normal. Ask your child's healthcare provider when your child may return to normal activity.

Emotional support:

Stay with your child for comfort and support as often as possible while he is in the hospital. Ask another family member or someone close to the family to stay with your child when you cannot be there. Bring items from home that will comfort your child, such as a favorite blanket or toy.

Heart monitor:

This is also called an ECG or EKG. Sticky pads placed on your child's skin record the electrical activity of his heart.

Intake and output:

  • Your child's healthcare provider may need to know how much liquid your child is getting and urinating. Healthcare providers may also want to know how much your child eats and if he or she had a bowel movement.
  • You may need to save your child's diapers so a healthcare provider can weigh them. A urine bag may be used to collect and measure the amount of urine, or your child may need to urinate into a container in bed. Do not throw away diapers or the urine bag, or flush urine down the toilet before asking your child's healthcare provider.


Your child may need one or more of the following medicines:

  • Heart medicine may be given to make your child's heart beat stronger or more regularly. There are many different kinds of heart medicines. Talk with healthcare providers to find out what your child's medicine is and why he or she is taking it.
  • Thyroid hormone medicine may be given to bring his or her thyroid hormone level back to normal.


Your child may need to have any of the following tests:

  • Blood tests are used to learn how well your child's thyroid gland is working. These tests tell his or her healthcare providers how low his or her thyroid hormone levels are in his or her blood. Blood tests may also show how well any treatments are working.
  • Thyroid scan shows healthcare providers how your child's thyroid is working. Radioactive dye may be put into your child's IV or given to him or her to drink. The working part of the thyroid gland absorbs (soaks up) the dye. Two to 48 hours later, healthcare providers put a machine called a gamma camera over his or her neck. The machine takes pictures showing the areas of his or her thyroid that absorbed the dye. This test should not be done in newborns.
  • Thyroid ultrasound is used to see the inside of your child's thyroid gland. Sound waves are used to show pictures of his or her thyroid gland and tissues on a TV-like screen.


Without treatment, your child may have learning problems, poor growth, or delayed development. Your child may also develop myxedema, which is a dangerous condition. Myxedema may cause swelling in your child's legs, ankles, lungs, or around his or her heart. He or she may have seizures, or go into a deep coma and die if he or she does not get medical care quickly.


You have the right to help plan your child's care. Learn about your child's health condition and how it may be treated. Discuss treatment options with your child's healthcare providers to decide what care you want for your child.

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The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

Learn more about Congenital Hypothyroidism in Children (Inpatient Care)

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Further information

Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circumstances.