... Treatment Group"? I have painful peripheral neuropathy from chemotherapy and have been using Gabapentin and Lyrica for four years. I used Cymbalta but now have urination problems (can't urinate easily) so I discontinued it.
Peripheral Neuropathy - Has anyone tried "Neuropathy Support Formula" sold by the Neuropathy?
- Asked
- 8 Jun 2011 by paindolly
- Updated
- 10 March 2018
- Topics
- cymbalta, lyrica, peripheral neuropathy, gabapentin
20 Answers
Inactive
17 Jun 2011
I have never heard of "Neuropathy Support Formula". Did the gabapentin help you any at all?
paindolly
19 Jun 2011
The Neuropathy Support Formula is advertised on the Drugs.com pages. The gabapentin does help with the neuropathy but it makes me dopey and sleepy and I am now having other side effects -- increased blood sugar for one. I'd love to find something else but there is really nothing else at this time.
Inactive
19 Jun 2011
I am getting ready to stop the gabapentin myself. It will be 1 month that I have been on it Tuesday and no change in migraines.
Side effects, I am very weak physically and sleepy.
paindolly
20 Jun 2011
I hope you find a better medicine for your migraines. Gabapentin's side effects are not worth not getting relief from pain!!!
Kylie1951
17 Jan 2012
I just read their ad - sounds interesting. I take Alpha Lipodic Acid 200mg once in the morning and once at night and it helps... I'd like to try the Neuropathy Support Formula once I hear it actually works. I've never taken prescription drugs just the above. No side effects. It's fairly inexpensive - I order it from Walgreens online.
metonto2
26 Jun 2012
My wife has migraines and she uses what I guess to be a "Holistic vitamin " called BUTTERBUR with feverfew. This is a product of NOW, AND IS FOUND AT WHOLE FOODS MARKET. RW
kharadite
5 Jun 2013
Try the Neuropathy Support Formula. I've been on it now three weeks, with my own added 300mg of R-factor Alpha Lipoic Acid in the morning (theirs is too expensive, far cheaper to buy your own). It's working great and I'm really happy with it. I have Type II DB and have the "electric spiderweb" thing going on in my feet and ankles. It's slowly but surely dissipating. No I don't work for those people. I just know from personal experience how lousy the neuropathy can get and mine isn't eve a worst case scenario.
kharadite
5 Jun 2013
For migraines, try Migrelief. You can buy it at most GOOD health food stores. Feverfew extract and Magnesium. I took it for six months after suffering with migraines for years, using all the drugs they could stuff down my throat or up my nose. I took the combination of the two and after six months, I tapered off, that was 7 years ago, off completely and I have never suffered another migraine. Pretty cool, inexpensive, and it works!
Ninee
4 Oct 2011
I have peripheral neuropathy due to chemotherapy... at least thats what my oncologist said... my regular physician has been prescribing Gabentin for about three years now... I am now up to 1200 mg per day... I don't see that it does anything at all for and never have seen any change other than my pain keeps getting worse... my feet are pretty much numb and tingly halfway up my calves... I do feel it when I stub my toes, but otherwise the best way to describe my feet are that they mostly just feel like clubs... sometimes I walk like I've had a stroke because I can't feel my feet like I should... I have muscle pain (charley horses) all over my body all the time... I have to get up several times a night to walk them off, and during the day the same... I not only get the painful cramps in my legs and feet, I get them in my ribs, my sides, my lower stomache, all over my back, my neck, my fingers and hands, and my face...
I have difficulty walking a lot of the time, and it hurts to sit for long periods of time... I have been told that I should be getting disability but I applied last year and never got a reply... I believe its because I didn't send in any letters from my doctors...
I no longer have my oncologist because I don't have insurance and I can't afford him... I no longer have my ENT for the same reason... and my general physician is actually a PA and says that she is not allowed to write a letter on my behalf for disability... I have no idea where to go for help to get disability because I can't afford the high fee's of these doctors...
The Gabapentin hasn't done anything for me as far as I can tell... all I know is that my pain seems to keep getting worse...
druganswers
4 Oct 2011
I'm so sorry for all of your pain. Damn that chemo!!! My neurologist has diagnosed my neuropathy pain condition from chemo as "monoclonal gammopathy unknown signifcance" or MGUS. My oncologist monitors a protein in my blood that could signify Multiple Myloma which can occur from MGUS. You may want to try Lyrica if you can afford it. Gabapentin alone did not work for me but the Lyrica/gabapentin combo works much better for body pain as well as neuropathy pain. It is prescribed for people with fibromyalgia and rheumotoid arthritis. The side effect is a "foggy brain but is worth the fog if it relieves at least some of the pain. I wish you the best!!!
75thrangers
16 Dec 2011
It is a bit interesting that noone notices ,no answer to the question have you taken neuropathy support formula and what was your experiences .THIS was never ANSWERED duhhhhhhhhhhhhh?
metonto2
8 Jun 2012
I just read this in the book; NUTRITIONAL HEALING BY James E Balch MD.This book has been the closest answer to having a doc in your book-case.On the chapter about cramps it describes the stuff you need to overcome cramps, or you may be short on; Calcium 1,500mg daily.Magnesium 750mg." ''. Vit.E-400 to 1,000 IU. Potassium 100 m,g. Try these pills and let me know how you feel.RW
metonto2
8 Jun 2012
The answer is no. How much does the formula cost, or have you tried it yet?RW
jimwheel
13 Nov 2012
I tried the neuropathy treatment formula as suggested by the company, for 4 months. It did nothing for me. I have neuropathy in my feet. I also tried acupuncture with no success.
kharadite
5 Jun 2013
I have been using Neuropathy Support Formula for approximately three weeks, and have just added 300mg of R-factor Alpha Lipoic Acid (purchased on my own, far cheaper than The Neuropathy Group's "additional" supplement. I did price out all the ingredients, how long they would last if I purchased them all separately and took about 15 more capsules than I do right now (on a vitamin regimen), and it was far cheaper at the $50 a month. Back to results. I have had really good improvement in the "electric spider webs" in my feet and ankles. It was "crawling" up my legs, which is what made me research a bit further. I have Type II DB. Since adding my own ALA supplement, 300mg per day in the morning, it's getting even better. The ONLY drawback of the neuropathy supplement AND ALA is that it gives me a slight upset stomach, almost like you're coming down with the flu. So I countered it with Marshmallow Root capsules.
I take four with the supplement in the morning (don't need it in the evening because I go to sleep). Suffice it to say, I am VERY pleased right now. If you are getting cramps in your body and legs, get HYLAND's Leg Cramp dissolvable tablets. They're amazing. I use them for restless legs, but they are specifically for leg cramps. They works great. Try Swanson's Vitamins online, inexpensive.
FrankMeans
11 Jun 2013
nobody answered the question because they figured you are just promoting the product, not trying to find out about it.
kharadite
11 Jun 2013
Dear FrankMeans: I don't sell the stuff. If you had read the post you would see that I wouldn't buy their hawked R-ALA because the pricing was too high. THE STUFF WORKS. PERIOD. I'm on week five. INCREDIBLY better. Hey, let them go out and buy the ingredients, I priced them out. VERY expensive for one month, the neuropathy price is much better (AGAIN, not selling this product), just it's effectiveness.
cbparham
28 Nov 2017
I was diagnosed with peripheral neuropathy in 2010. My Environmental Medicine specialist told me to take Alpha Lipoic Acid. I used Walmart brand but it was only 200 mg of S form ALA. I found out by doing research that there are 2 kinds of ALA, R form and S form. Just about everyone sells the cheap S form which doesn't work very well. I am Celiac so I require the most pure form of supplements that I can get, free of gluten. Neuropathy Support has the purest form that I could find when I started using it about 5 years ago. I buy the product that is called Nerve Repair Optimizer, 300 mg Standardized R-ALA per capsule, it is 100% Pure R form ALA. It is expensive, but if I take one in the morning and one in the evening, I HAVE NO SYMPTOMS! What's that worth to you? It is also great for your skin! My wrinkles melted away after I went on ALA. What's that worth to you? I'm just glad that one product has 2 major benefits. You can probably find less expensive form R ALA products. I'm sticking with what I found works for me.
Aardvark19
5 Dec 2011
I am just starting my second bottle. I have diabetic neuropathy in my feet, legs and fingertips. I used to cry myself to sleep at night because the pain in my feet was so intense. I tried Neurontin but I really didn't want to add to the side affects that I was getting from my other meds so I decided to try Neuropathy Support Formula after researching for an alternative to medicines. After just 3 days use of this product the pain went away in my feet, legs and fingertips. Before I couldn't even wear shoes for very long because of the pain and had to put my feet up often and wear slippers at work. I have been taking this formula for 6 weeks now and have been noticing that my legs and fingertips are less numb and just today I was testing the feeling in my toes and have noticed more feeling in them as well. The company suggests taking it for at LEAST 3 months, 4 is best, to see results. I have no regrets using this product and have been suggesting it for others as well. Hope you give it a try and that it works well for you.
75thrangers
16 Dec 2011
well thank you someone whom actually does answer the question, are the rest of you having brain neuropathy, because this id is the only person that answered the question,the rest of you should run for public office,because you evade the true question at hand!?
Mrs Claus
28 Feb 2012
Are you still takeing the Support Formular? If so have you experanced any side effects. If not why?
Aardvark19
29 Feb 2012
I am about 4-5 months into taking Neuropathy Support Formula. I still have numbness but not as much as before taking it. I recommended this product to a friend of a friend who has HIV and has to take many, many medications including Neurontin. His medications left him in so much pain for so many years that he was willing to try the Neuropathy Support Formula. I was just recently told that after just a months supply he is free of pain. He went from taking 4 pills a day to 6 pills a day fairly quickly. It was suggested to me that if I can tolerate it then I should up my pills from 4 to 6 a day. My stomach gets queasy when I take 6 a day. I try to take 2 in the morning, 2 late afternoon then 2 before bed but still get queasy so for the time being I will be taking 5 then slowly add another to make it 6 a day. I am no where near the pain I used to feel but since I still have a little pain in my feet and still have numbness I will increase my dosage and hopefully see more results.
Other than a queasy tummy I have NO other bad side effects from this medication..only good side effects.
treeves1
22 Jun 2012
Hey paindolly,I to have "very painful " peripheral neuropathy.I looked up that neuropathy support formula and all it is the B vitamins (b12,b6 b1 ) ands a few others you can get at any store (walgreens,GNC,cvs... ) but when you add it all up ($) it is alot more $ than the "formula " I hav'ent tried it but check the Mcg's on it.I was given vitamin B12 in a prescription form called FOLIC ACID a more stronger B12 which over time if taken every day can help repair "some" of the nerve damage not all complete.Go on line and bring up that formula and check the mcg and mgs and check the stores and do the math. I myself get the vitamins and other stuff thats in their formula at the stores I mentioned. I see their ads all over the internet saying :92% cure. D'out it. Hope this info will help. Respone to me and let me know status.I take Lyrica day and night ( can'nt sleep cause of the pain) and it helps alot but not near 100%.Even sleeping pills do'nt do it feel alittle better , Treeves1.
Wh1tey75
27 Dec 2016
B-12 also comes in two forms cyanocobalamin and methylcobalamin (check my spelling). The Neuropathy Formula has the latter. The over-the-counter vitamins contain the cyanocobalamin. This type is made in a lab and contains a trace of cyanide that won't harm you but must be filtered by your liver before you body can absorb the B-12. The methyl type is in its natural form. Over-the-counter vitamins can be lower in cost because they are sometimes artificially made which is cheaper to produce than the natural ingredients. You should read the ingredients are the back of your vitamin bottles to know their content. But without doing your research you wouldn't even know that 2 different types of B-12 exists.
I have idiopathic peripheral neuropathy and have for 10 years. I have taken this formula for about 3 years and am finally getting some relief. The time element is directly related to the severity of your problem and if the causes are still present, i.e. if you are diabetic and still diabetic the causes remain present and the formula will take longer to be effective. I have had no side affects from the formula and believe that the B-12, D and Alpha Lipoic acid and other benefits. Dr friends of mine looked at the composition of the formula and said that most people could probably benefits from it.
Hopes this helps. Good luck
Aardvark19
22 Jun 2012
Don't forget to add in the cost of the R-Alpha Lipoic Acid which is different than your average Alpha Lipoic Acid. R version can be hard to find and is more costly than regular ALA. I've done the research to dissect the formula and set out to buy each ingredient separately and I found it to be more costly than the Neuropathy Support Formula. You will be wasting your money and your health if you think regular ALA is going to the job of R-ALA. Read up on it before making a decision. Also, just about any health advocate will tell you that most formulas are much better and less costly than buying separately. I've been taking NSF for quite a while now and swear by it. More feeling is in my toes and fingers and I rarely have any pain now. I don't take any other medications for my neuropathy other than the NSF..not Neurontin, Lyrica or any other prescribed medicines and no other vitamins or minerals.
metonto2
26 Jun 2012
Never heard of the stuff. If it were me,I would continue the Gabapentin, then purchase a vitamin;ALPHA-LIPORIC-ACID. You may buy it at any drug store, or at WALLEYWORLD. It helped me a lot, you may have to try two pills a day at first, to experiment, but this is the cheapest answer to my pain/nerve problems. RW
FrankMeans
27 Aug 2012
The thing that needs to be checked is not the B vitamins, but the herbs they put in the formula. I checked on feverfew because I couldn't figure out why it was in the formula. Found that you're not supposed to take it more than 4 months. That stopped me from using it.
I'm wondering if those that say how great it is and it worked right away aren't here just to promote the product. Funny, I keep finding this type of thing when looking for neuropathy relief. Nothing but a drug will give you instant relief.
deeknee
8 Apr 2013
Hi Frank means you know PAIN is very unique to the individual, as well as the treatment. Could u be a little less negative... how about a dose of hope!
FrankMeans
11 Jun 2013
There are plenty of good B vitamin solutions to neuropathy without having to resort to trying to cover up the symptoms with herbs, and a lot of herbs.
You love this stuff, are you one of those that work with the company and try to promote it. Sounds like it.
kharadite
11 Jun 2013
I concur with Mr. "Mean"s (well-phrased name) being so negative. Those of us who use it and get results, well, we think it's a good thing. Think what you want. I am a medical office manager, not a pill pusher. No I don't work for them. Oh, and I'm using it every other day now five weeks into the regimen. Naw, it doesn't work.
jcmso3cd
5 May 2017
For pain management and inflammation try CBD oil. It is legal in all 50 States and over 50 Countries. It is non-psychoactive, meaning it does not get you high and there is no reports of CBD oil causing harm. I had arthritis of the hip joints (chronic inflammation) and now I have been pain free for just over 1 year. CBD oil relieves pain and inflammation for many ailments and the results are quicker than vitamins which usually takes at least 3 weeks to show any effect. My arthritis pain was gone in 2 days and never returned. Many Health food stores are now carrying it.
Somps
22 Oct 2012
I have neuropathy. Mine is not diabetic or genetic. I have been taking the formula for almost 5 months now. There are 4 extracts that I have researched. They all have good things. The comment on the feverfew was incorrect. Some report that long term studies haven't been done. Other parts of the world show it being used on a long term basis. I saw where the previous poster got the information and actually developed a conclusion on it as to where the actual information did not state that it shouldn't be taken for more than 4 months. Please search medicinal + feverfew and you should find the actual verbage.
Long story short, when I stopped taking the formula, my pain surged back within days. I am not experiencing side effects. It seems to also help with arthritis.
Ugatuck
7 Nov 2012
I doubt you will read this because you left this a long time ago, but I have Peripheral Neuropathy as well. I have a lot of other things as well, like arthritis in my spine, and elsewhere. Spinal stenosis, broken bones in the past I didn't know of and a lot of other stuff. My point is that I haven't tried this stuff, but have a lot of other stuff. I am now on a fentanyl patch, cymbalta, lidoderm patches, and so much more pills I don't have time to list. My neuropathy was caused by exposure to heavy metals, some nasty chemicals and other stuff. They are sdtill working on ways to attack it.
Candle dancer
31 Jan 2013
I use roll on Capsaicin on my feet and it helps some in combination with other meds. I also find that putting water bottle in the freezer and rolling my feet on that alleviates it to. Also try 3 drops of peppermint oil in a paper cup of water and freeze it and rub on my legs It's like a Pain Popsicle! But don't eat it. Lol!
deeknee
8 Apr 2013
Candle dancer, you are quite the innovator!
Rob45
6 Jan 2013
I've used Neuropathy Support Formula for six months along with their Nerve Repair Optimizer. I have moderate PN of unknown cause. I've had it for 20+ years. I'm discontinuing the NSF and NRO for lack of results. There seemed to be a small improvement in the first five days, but nothing more as time went on.
I started with a fully refundable 3 month trial. But with the product came a sheet advising that results might take 4-5 months. Right away I felt baited and switched. Nevertheless, given the potential benefits, I had to try this and give it a full trial.
So after three months and minimal results, I purchased another three months' supply. I saw no improvement at all in the second three months. (And I can get a refund on my second order only.) Your mileage may vary, but that's my experience with Neuropathy Support Formula and Nerve Repair Optimizer.
Nora63
22 Jan 2013
Hi
I have used it for four months. Got great results after just one week, but after four months I was amazed. It was like I was normal again. I then went off of it because of unrelated surgeries, (had to go off all pills during that month). I didn't seem to need the pills for another month or so after that, but since my neuropathy problem is on going, recreating the nerve damage (eating the coating off the nerves), so I have recently gone back on the formula as the symtoms were slowly returning.
It isn't baiting as to why they say it takes four months. It really seems to take that long to repair the damaged nerves. Did for me.
Anyway, it is worth the cost to me. :) It gives me back quality of life and I am VERY greatful for that.
But check with your Doc to make sure there isn't anything in it that might not mix well with your meds. What's good for me might not be good for you.
God bless
Nora
chuckmasterson
28 Mar 2013
I am a 66 yr old who began developing Neuropathy pain a yr ago. My doc has tried several tests to identify the source with no success. My neurologist believe it to be results a a knee replacement or the fact that have developed Parkinsons. Either way I needed help. I tried prescriptions but they bothered my thinking and how I felt and with little success. I have been on tramadol 50 mg and it helps for a short time. I also came across Neuropathy Support Formula and have taken it for 6 months. The pain and burning has worsened during this time. So I'm going off NSF to see if it gets worse quickly or stays the same. I've also used Diabetic Neuropathy foot cream with some success (Magnilife) carries it, just google it. But I now am using (not a joke) a lotion called "Two Old Goats" also on line. I've purchased 4 bottles and was so excited with the results, the burning intensity goes away for 3-4 hrs.
I've given 2 bottles away to family members , my mom and daughter in law. I've used one bottle and it lasted about a month. Cost is 17.95 plus shipping 4.95.
Good Luck
sweetnana
5 Jul 2013
Check your feed stores for Two Old Goats. There are 2 in my city that carry it. No shipping charges.
Fonziesucks
13 Apr 2013
Hi, I ordered it for my husband who is diabetic. They recommend 4 months, so that person who said 5 days is prob spam. He's been on it for app 3 mos and today I noticed his feet were actually warm, not cold and brownish like before. We're hoping he's turning the corner. He has no feeling in his feet, yet they hurt. I sure hope this is the alternative answer we've been looking for. Hope this helps.
Desperate 4 answers
27 Feb 2017
I have the same issue with my husband. Did this help your husband?
Peetibugs
25 Apr 2013
I have had peripheral neuropathy for 5 years, due to pressure on a nerve in lumbar region of my back. A fusion (L2-L5) did not relieve the initial numbness, and I have been on Gabapentin ever since.The pain, numbness, and burning have been getting worse, despite taking 600 mg. 6-7X/day. My neurologist has been trying different vitamins (B6, B12, R-Alpha Lipoic Acid. CoQ10,) individually, with no improvement. Incidentally, the R version of Alpha Lipoic Acid is more readily absorbed. I'm considering taking NSF and am interested in others' experience with this product.
paindolly
18 May 2013
I stopped taking NSF after a month. I think it depends on the type of neuropathy you have. If you read the rest of the comments, you'll see that some have had success. I wish you the best!!!
ArnieMc
21 May 2013
I have diabetic peripheral neuropathy. The pain was so bad that I had to cover my feet with Vaseline and thick socks to walk. I tried alpha-lipoic acid, and, after 2 months, the pain went away, leaving only some tingling and numbness. Just to make sure it was the ALA, I stopped taking it. After a week, the pain was back, so I started taking it again. After another 2 months, the pain was finally gone again. I'll never stop taking it!
Although I've never taken NSF, the primary ingredient is ALA, and it is very effective but only after 2-4 months. The other ingredients may give some more immediate relief.
Peetibugs
22 May 2013
Be sure to get the R form of Alpha Lipoic Acid. It is a form that is more readily absorbed by the tissues. There is medical research that supports using R-ALA rather than ALA. You probably won't find it in a drug store, but it is available through Life Extension.
ArnieMc
22 May 2013
I ordered Doctor's Best Stabilized R-Lipoic Acid yesterday to replace my ALA.
KENDUDE90
27 Jun 2013
I am a severe NEUROPATHY sufferer. I have had it for 13 years now, and am totally disabled from it. I started on the NSF 6 weeks ago , and the results is nothing short of a miracle. The last years progression of the disease has reversed. If this keeps up, I may can go back tpo work. I was unable to even use my left hand , it was useless. Now it is at least 90 % back. Still some numbness, but it was totally filled with pain, and unable to flex fingers. Almost as if the whole hand was asleep. . I still have 0 feeling in my feet but it started itching yesterday in places. We will see what happens. This has me so thankful. I am amazed!!!
annoranna
22 May 2013
I am just starting my eighth bottle. I have PN in my feet and lower legs. I have slowly taken myself off of gabapentin and cut my cymbalta to 30mg since starting the formula. It seems to help with all the tingling and burning but I still have problems with severe shooting pains in my big toes. I usually have these shooting pains every other day. I take lyrica and hydrocodone for these pains. What a mess. Anyway, I would recommend the Neuropathy Support Formula. Good Luck!
Gratefulgirl22
28 Aug 2017
Where can I purchase it? There are so many different ones.
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