Tocilizumab for Still's Disease User Reviews
Brand names: Actemra, Tyenne, Tofidence, Avtozma
- Min...
- Taken for 1 to 2 years
- June 17, 2020
"I started initially with IV tocilizumab a year ago for Still's disease, then changed to weekly injections at home. Seemed to work well, although my knees still needed to be drained regularly. After six months, it appeared to stop working, so switching to Anakinra soon, which I hope will help more. Still taking steroids, though hope to taper them as soon as I can."
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Actemra, Tyenne, Avtozma, Tofidence
"I have Adult Onset Still's Disease, and Actemra has been a miracle for me. I can't imagine my life without it. I have not had side effects, and this drug enables me to keep in great physical shape. Yes, I still have flares when I am close to my next infusion, but I feel much better the next day and can continue living my life to the fullest, and I do. Much better than packets of Prednisone and Motrin, I'm pleased!!!"