Skip to Content

User Reviews for Xyrem

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Xyrem.

Filter by:

Reviews for Xyrem to treat Cataplexy

"I am 57 years old and have had some version of narcolepsy since age 30 or 35. I tried Nuvigil and then added Adderal but still had breakthrough narcolepsy and cataplexy. The cataplexy broke my foot a year ago and my wrist six months ago. This is the most amazing medication! I would go to bed at midnight and awaken at 10 or 11 in the morning. I would fall asleep for a cumulative 2 to 3 more hours during the day. I awaken between seven and 8 o'clock bright eyed and bushy tail to use my parents phrase. I am fully alert and have no further problems with sleepiness throughout the day. I am still experiencing occasional morning nausea and inappropriate diaphoresis or sweating for no reason. An ice pack at the back of my neck will break it."


Surreal2000 July 5, 2016

3 users found this comment helpful.

Did you?  Yes  No  |  Report inappropriate

"I've been taking Xyrem for about 6 yrs at 4.5gms 2 x a night. My doctor said I had the worst case of Cataplexy he'd seen in his career! Xyrem with 40mgs of Desoxyn and 150mgs of Effexor during the day I have a life again! I still have to nap about midday and I still won't chance a comedy club (the Cataplexy still sneaks in once in a while) but I hope to some day. I found out the hard way to make sure you don't drink anything before taking because you will NOT wake up to pee until the dose wears off! A small price to pay when I consider what it was like before Xyrem. "


Anonymous January 26, 2012

21 users found this comment helpful.

Did you?  Yes  No  |  Report inappropriate

"I have had a great improvement in my mental function. I can now pay attention and follow along with what is going on around me. With a switch to Desoxyn as a daytime medication wow I feel like a normal person at least for me. Get a safe to keep it in as the ramification of having it stolen are great. And the paperwork long. The number of agency's involved boggled my mind. "


bluhat November 5, 2011

17 users found this comment helpful.

Did you?  Yes  No  |  Report inappropriate