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User Reviews for Octreotide to treat Carcinoid Tumor

Also known as: Sandostatin, Sandostatin LAR Depot, Mycapssa, Bynfezia Pen

Octreotide has an average rating of 7.5 out of 10 from a total of 6 ratings for the treatment of Carcinoid Tumor. 67% of users who reviewed this medication reported a positive effect, while 17% reported a negative effect.

Octreotide Rating Summary

7.5/10 average rating

6 ratings from 9 user reviews.

Compare all 8 medications used in the treatment of Carcinoid Tumor.

10
33%
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17%
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17%
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17%
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brauny · Taken for 1 to 6 months January 4, 2013

Sandostatin (octreotide): “I agree with the other review. This product has been a life saver for me. It has completely taken away my other symptoms. The only drawback for me is fatigue, but honestly I can live with it considering everything else that I am dealing with prior to taking this medication.”

10 / 10
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Beepsie · Taken for 5 to 10 years April 16, 2017

Sandostatin (octreotide): “After about 18 months of 28 day LAR injections, I started having joint and back pain. I believe this is actually fairly common. I've asked who has this on various support group web sites.... lots of people! One person had it start up after their first injection. However, more respondents had it start after a year or more. The main location of my pain is in the hips. I've been to several ortho doctors who say I do not have but a slight bit of arthritis in my hips- certainly not enough to warrant hip replacement & in the range of an average amount for my age..... the lower back pain started prior to hips. It has been deduced that the pain must be a side effect of the Sandostatin- after x-rays, bone scans, MRI's, CT-etc.. nothing looks abnormal”

8 / 10
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sickly May 3, 2018

Sandostatin LAR Depot (octreotide): “I lost weight over period this medicine was taken. I also needed to make too many trips to bathroom. I can't regain the lost weight or strength. I'm very tired. The doctor can't tell me if it helps the tumors secretion, or will I ever be right.”

6 / 10
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justvip · Taken for 1 to 6 months June 15, 2019

Sandostatin LAR Depot (octreotide): “Is it Sandostatin?! It's impossible After about two years of dealing with HCC [hepatocellular carcinoma] , I had my first dose of Sandostatine LAR IM every 4 weeks Now I going to have my fourth dose But ... The FDG PET scan & DOTA PET scan, both showed no more of liver (3) tumors no more of (multi) bone metastasis, also lungs is clear, whole the body no lesions no metastasis. I have to wait it's impossible to believe that, grade 4 liver cancer gone I just 2 months.”

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lipsofscarlett December 17, 2009

“I was started on Octreotide for 2 weeks, did not have carcinoid syndrome before taking the short acting octreotide but as I continued to give myself the injections the diarrhea began and got worse. No other complaints except of slight itching at injection site. The oncologist was having me take them to keep tumors from growing and metastasizing. She did, however, take me off of them because they were causing more problems than she thought it was worth for me.”

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Bee April 11, 2020

“octreotide helps with watery stools. After second monthly injection, I am pretty miserable. I have, loose, pale, foul, chemical, smelling stools that float, bad pain at the injection site which makes it difficult to climb stairs, or walk, exhaustion, abdominal cramping, strange pain throughout body that comes and goes, some nausea that comes and goes, bad, lingering headache, Depression, and heavy anxiety. I hate it. I think I would rather just have the diarrhea.”

2 / 10
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justvip · Taken for less than 1 month April 1, 2019

Sandostatin LAR Depot (octreotide): “I have Liver cancer HCC with high level of CgA and I just started my Sandostatin LAR therapy yesterday! As I heard Sandostatin LAR Depot, is so effective and it will help to control both liver tumors and bone metastasis.. I hope so”

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Barn · Taken for 2 to 5 years April 30, 2021

Sandostatin LAR Depot (octreotide): “Has slowed tumor progression, covered by insurance and Novartis has a copayment program that made my $50 copayment $25. Haven’t really had any side effects that I can say were caused by this drug. My life feels pretty normal to what it was before getting cancer.”

9 / 10
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gthomp August 10, 2009

Sandostatin (octreotide): “This medicine has been a life saver for me, nothing else worked. In a couple of days I felt improvement - no uncontrollable diarrhea. ”

10 / 10
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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.