Octreotide for Carcinoid Tumor User Reviews
Brand names: Sandostatin, Sandostatin LAR Depot, Mycapssa, Bynfezia Pen
Octreotide has an average rating of 7.7 out of 10 from a total of 7 reviews for the treatment of Carcinoid Tumor. 71% of reviewers reported a positive experience, while 14% reported a negative experience.
Reviews for Octreotide
- BruceZA
- Taken for 10 years or more
- September 9, 2021
Sandostatin LAR Depot (octreotide) "Been on Sandostatin LAR for 19 years now and has definitely kept me going. Side effects were almost non-existent, a bit uncomfortable being administered due to the thickness of needle and consistency of mix, but over quickly. In the last 18 months, it's battling to hold back my markers (Chromogranin). Last 12 months up'd dose to every 3 weeks (from every 4 weeks), with little change. You'd think after 19 years, Novartis would drop the cost and also develop the next level.... sadly not!"
- Beepsie
- Taken for 5 to 10 years
- April 16, 2017
Sandostatin (octreotide) "After about 18 months of 28 day LAR injections, I started having joint and back pain. I believe this is actually fairly common. I've asked who has this on various support group web sites.... lots of people! One person had it start up after their first injection. However, more respondents had it start after a year or more. The main location of my pain is in the hips. I've been to several ortho doctors who say I do not have but a slight bit of arthritis in my hips- certainly not enough to warrant hip replacement & in the range of an average amount for my age..... the lower back pain started prior to hips. It has been deduced that the pain must be a side effect of the Sandostatin- after x-rays, bone scans, MRI's, CT-etc.. nothing looks abnormal"
- justvip
- Taken for 1 to 6 months
- June 15, 2019
Sandostatin LAR Depot (octreotide) "Is it Sandostatin?! It's impossible After about two years of dealing with HCC [hepatocellular carcinoma] , I had my first dose of Sandostatine LAR IM every 4 weeks Now I going to have my fourth dose But ... The FDG PET scan & DOTA PET scan, both showed no more of liver (3) tumors no more of (multi) bone metastasis, also lungs is clear, whole the body no lesions no metastasis. I have to wait it's impossible to believe that, grade 4 liver cancer gone I just 2 months."
- sickly
- May 3, 2018
Sandostatin LAR Depot (octreotide) "I lost weight over period this medicine was taken. I also needed to make too many trips to bathroom. I can't regain the lost weight or strength. I'm very tired. The doctor can't tell me if it helps the tumors secretion, or will I ever be right."
Are you taking this medicine?
- Barn
- Taken for 2 to 5 years
- April 30, 2021
Sandostatin LAR Depot (octreotide) "Has slowed tumor progression, covered by insurance and Novartis has a copayment program that made my $50 copayment $25. Haven’t really had any side effects that I can say were caused by this drug. My life feels pretty normal to what it was before getting cancer."
- lipso...
- December 17, 2009
"I was started on Octreotide for 2 weeks, did not have carcinoid syndrome before taking the short acting octreotide but as I continued to give myself the injections the diarrhea began and got worse. No other complaints except of slight itching at injection site. The oncologist was having me take them to keep tumors from growing and metastasizing. She did, however, take me off of them because they were causing more problems than she thought it was worth for me."
- Bee
- April 11, 2020
"octreotide helps with watery stools. After second monthly injection, I am pretty miserable. I have, loose, pale, foul, chemical, smelling stools that float, bad pain at the injection site which makes it difficult to climb stairs, or walk, exhaustion, abdominal cramping, strange pain throughout body that comes and goes, some nausea that comes and goes, bad, lingering headache, Depression, and heavy anxiety. I hate it. I think I would rather just have the diarrhea."
- justvip
- Taken for less than 1 month
- April 1, 2019
Sandostatin LAR Depot (octreotide) "I have Liver cancer HCC with high level of CgA and I just started my Sandostatin LAR therapy yesterday! As I heard Sandostatin LAR Depot, is so effective and it will help to control both liver tumors and bone metastasis.. I hope so"
- gthomp
- August 10, 2009
Sandostatin (octreotide) "This medicine has been a life saver for me, nothing else worked. In a couple of days I felt improvement - no uncontrollable diarrhea. "
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Sandostatin, Sandostatin LAR Depot, Bynfezia Pen, Mycapssa
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Sandostatin, Bynfezia Pen, Mycapssa
Sandostatin (octreotide) "I agree with the other review. This product has been a life saver for me. It has completely taken away my other symptoms. The only drawback for me is fatigue, but honestly I can live with it considering everything else that I am dealing with prior to taking this medication."