Ocrevus for Multiple Sclerosis User Reviews (Page 5)

• Bec...
• July 8, 2021

"It's been 20 hours since my first infusion. My ears and hair follicles itched, and Benadryl knocked this out. I also had a slight difficulty swallowing. My calves started having severe spasticity and pains, but after 30 minutes, this was gone. Had some throat scratchiness, like that of starting to get a cold, but this was gone in 2 hours. I was diagnosed in 2003 with RRMS. I was in high school. Lost feeling in all fingertips and toes. I experience optic neuritis daily (have lost some sight in right eye). Balance, gait, thinking, depression, FATIGUE. I am 36. I have PPMS now. Been on Copaxone, Avonex, Plegridy. I quit working in March 2020. Then Covid, and I went into isolation. I take primatene meant for intermittent asthma but it's ephedrine. It really helps with FATIGUE. Give it time. Remember MS is a beast, and not every drug will help everyone. My best advice for MS: comedy, sleep, and acceptance. It stinks, but remember. You choose how you can react."

• Diz...
• Taken for 2 to 5 years
• November 17, 2019

"On Ocrevus, I feel terrible. Very dizzy, can't leave the house or do anything, my head feels very heavy. I feel awful vertigo."

• Jun...
• Taken for 1 to 2 years
• November 2, 2019

"I have secondary progressive multiple sclerosis, and I have gotten 4 doses, and Ocrevus hasn’t helped my SPMS. I have noticed that every injection I’ve had, my hair is getting thinner, and my hair falls out quite a bit. I’m going to talk with my neurologist about the problems I’m having and not feeling it’s helping me. My first 1/2 dose, I felt great and wasn’t so tired."

• Ano...
• Taken for 5 to 10 years
• April 9, 2025

"I experience extreme fatigue 6 to 8 weeks prior to my second infusion each year. Along with the fatigue, I have numbness in my and intense itching. Impacts ADLs, travel, and socializing. Prior, I was fine, felt very well once I had the infusion, my only issue is the effect just prior to the second dose."

• Lau...
• Taken for 5 to 10 years
• August 29, 2024

"Been on Ocrevus for 7 years. It stopped relapses, however, now my immune system is shot. Shingles at a young age of 34, followed by cellulitis. Neurologist says it’s all due to using it for more than 5 years. Now on to the next drug."

• Joa...
• Taken for 5 to 10 years
• May 28, 2024

"I was the first person on the second Ocrevus trial eight years ago. It's been a real game-changer. No new lesions, maybe some exacerbations of old symptoms at times, especially if I get an infection. I'm grateful that I was chosen to trial this drug. It's my third drug. Copaxone was first, I reacted badly with my skin. Tecfidera was second, that lowered my white lymphocyte count dangerously low and I felt awful, had rashes all over my body, and itching. My disease was bordering onto primary, my neurologist was running out of options, then he mentioned this new drug trial and my ears pricked up immediately. Ocrevus has definitely changed my symptoms for the better, so I have no regrets."

• Gra...
• Taken for 1 to 2 years
• May 18, 2022

"My fiancée has had MS since 2007. She was diagnosed with RRMS and was on a couple of the other MS medications and was on Tecfidera for 8 years, and in early 2020, she said she was feeling off, like the Tecfidera wasn't working anymore. Shortly after telling me that, she had a really bad relapse that lasted about three weeks. During those 3 weeks, I tried desperately to reach her previous neurologist, but he would not return our phone calls. She got to the point where her health was deteriorating so severely I had to get her admitted by ambulance to the hospital BECAUSE that's the only way they would help her. When I finally got her in the hospital, her absent doctor shows up at her room in the hospital and proceeds to tell us that she was fine and Tecfidera was still working. Got her another doctor and got her on Ocrevus, and we definitely have seen some positive results. Her daily life has improved 100%. We are happy it is working for her. ❤"

• Anonymous
• Taken for less than 1 month
• September 9, 2021

"I was diagnosed with MS around the time of Hurricane Dorian, although I had had the leg numbness for years. Never thought anything of it. But yeah, I couldn't walk. I was 20. Took both of my parents to lift me, dead weight. Drive me out near Baltimore for an MRI. Couldn't stop vomiting, so they had to hold me for five days. Medical Center's final prognosis? Multiple Sclerosis. Had been on Tecfidera because my mother, who also has MS, was on it. It didn't really help. Would get MRIs every few months. More lesions on my brain and spine, and it's like they kept popping up, like acne. I believe I have PPMS right now. About a month ago, my neurologist was tired of all my symptoms getting worse. The back pain, the lack of coordination, dizziness, memory loss, vision problems, so she switched me to Ocrevus. As of yesterday, I have had two half doses, and although at first it seems like it's getting worse, I can only wait. Next dose? March 1st of next year. My birthday."

• The...
• Taken for less than 1 month
• August 20, 2021

"I am a 33-year-old male who has had MS symptoms for 4 years now, but didn't know what the symptoms were caused by until recently getting diagnosed 3 months ago with MS after seeing different doctors this last year and getting tests done to figure out what was wrong with me. After getting diagnosed, my neurologist offered me Ocrevus. It took a little over a month to get my insurance to cover the costs of the infusion. Once that was said and done, I just got my first half-infusion a few days ago and go back to get my second half-dose in 2 weeks. The first half-infusion went well and had no worsening symptoms. It's still too early to tell, but I'm hoping for positive outcomes with the future infusions ahead. I'll let you know how it goes."

• Car...
• Taken for 1 to 2 years
• October 20, 2020

"Please read this if you are thinking of stopping your Ocrevus treatment. First half infusion (pre-COVID): slight fatigue after it, had to work from home for a few days and sleep a lot. Second half infusion: horrible side effects: off work for 10 days as a result. Spent my birthday in bed :( I told myself I would never use this drug ever again. Was not possible to switch, so did not have any other choice than to stick to it. First full dose infusion (about 10 months later due to COVID): I went to the hospital reluctantly, expecting the worst again... but to my surprise, I did not need any time off work after the infusion, I have felt more tired for sure, but nothing unbearable. So give it another try if you are hesitant. My MRI shows no new lesions and some have shrunken..."

• Anonymous
• Taken for 1 to 2 years
• September 24, 2020

"I was diagnosed with MS at age 53, started with Ocrevus 2 years ago (my first and only medication for MS). Infusions always go well, just tired from Benadryl. I do have some dizziness day 3 and 4 after infusion. I lost hair after the initial dose, but none since. I get more fatigued with each infusion. It took me a month after the June infusion to function. The improvement of my leg and body numbness is 100 percent, lesions same but not worse. My body does know after 4 1/2 to 5 months I'm due for it again. I get head and arm pains, but that's MS, not the Ocrevus. Not having drop foot, electrical sensation down my back, or numb from almost half my body is worth it any day. The cost is 6 figures, insurance always covers 100 percent. I have new insurance since I lost my job, so we will see. Lowers immune system, so with COVID, not seeing family and being social is a sacrifice, hopefully that's temporary."

• Anonymous
• Taken for 1 to 2 years
• September 19, 2020

"I have been on Ocrevus for 2 years for MS. I have not had any side effects. MRIs have consistently shown no new or active lesions."

• Gre...
• Taken for 1 to 6 months
• January 15, 2020

"People need to stop being so negative on here. It isn't helpful to anyone. We all have MS, it is never going to be easy. Moaning all the time, look for positives in your life. I have had MS for 10 years, 7 years on Tysabri. Now switched to Ocrevus, had first 2 doses. Not doing great, but it is early days. It is the long-term effects of this treatment that you will notice. It is 5 years + to notice any great benefit. Hang in there, all of you, it will improve. Be patient."

• Anonymous
• Taken for 1 to 6 months
• February 21, 2019

"I just had my first injection and noticed improvement the same day! My MS has caused chronic fatigue for years, but I never knew what caused the fatigue until this last August when I had my first MS attack and was diagnosed. I didn’t give Ocrevus 10 stars yet until I get my MRI in December. But just based on how I feel, I think it is working wonders."

• JET...
• Taken for 2 to 5 years
• October 2, 2024

"My experience with the medication was very good. The only problem I had is I fell in between the cracks. I make a little too much money to get help, but not enough to be able to afford it. Since I could not receive my treatment anymore, I had a flare-up, which is very frustrating to me. Know that the company that produced the medication did not care any more than that to try to keep me going. I hope that whoever else gets on this has good insurance. The company is not concerned with the health of their patients."

• Anonymous
• Taken for 2 to 5 years
• July 3, 2024

"Since receiving OCREVUS two years, MRI scans show no increase in lesions, nor have I experienced any increase in MS symptoms. Injections 2x/yr are much easier to manage and with few side effects."

• Geo...
• Taken for 2 to 5 years
• June 22, 2024

"I got healthier. Mild allergies I didn't even know I had went away. My eyesight got better, memory, stamina, math abilities, playing games got better. I got a new neurologist, and after two and a half years improving on this drug with no bad side effects, he overreacted to a false positive for hep B. I got no MS medication. I was given Entecavir which gave me headaches and made me sleepy to the point all I could do was exercise, bus shopping, and sleep. I couldn't clean, eat right, or interact with people much. I quit when I almost passed out. The doorknob, which is the last thing people see before going unconscious. Been about a year since I had any MS drugs. I'm looking for information now."

• LB ...
• Taken for 6 months to 1 year
• April 3, 2024

"So far I have received 2 (600mg) infusions; the first infusion was split into two half (300mg) doses, which were run at a very slow drip rate. Each infusion took approximately 4 hours to complete. I did not have any side effects immediately after the infusions. After the second (first full 600mg dose) infusion, I did feel pretty 'wiped-out' – I was extremely fatigued (more so than usual), and I had headaches for a few days. I slept and took it easy during that time to prevent escalation of symptoms, or the beginning of a true illness. Other than those few days, I have felt essentially 'normal' for me. I haven't had any exacerbations since beginning Ocrevus in April 2023. I would recommend this treatment to anyone with Relapsing-Remitting MS, Secondary-Progression MS, or Primary-Progression MS, if so suggested/advised by their Neurologist."

• Anonymous
• Taken for 2 to 5 years
• March 29, 2024

"The six months for every infusion is really a good thing for me."

• Ben...
• Taken for 2 to 5 years
• November 4, 2023

"Ocrevus has helped me out big time, after three years no signs of new or enhancing lesions and a disability score of 1.0."

• Nat...
• Taken for 1 to 2 years
• August 18, 2023

"It is very easy and comfortable to use and mostly doesn't have any hard or scary reactions. I think it has a positive effect, and I'm sure I already feel benefits. I'm also sure it would be much harder without it, and I can feel that I started using it at the right time. My MS is RR type (we have been together for over 25 years), but knocking on the Secondary Progressive door. I'm positive that Ocrevus managed to keep that door closed."

• Anonymous
• Taken for 2 to 5 years
• August 10, 2021

"I have been on Ocrevus for about 3 years, no complaints but for the infusion reactions. I am living my life as close to normal as I can imagine. Lord willing... I will keep on it... living life."

• eye...
• Taken for 1 to 2 years
• June 16, 2021

"I have had very minor side effects while taking Ocrevus for the past year and a half. The only side effects I have experienced have been redness at the infusion site and itchiness, which does not bother me as much as losing my vision for a week, my sense of smell, or taste. Since I have been on Ocrevus, I have been fine, no relapses, nothing. I am a happy patient. I have not had a relapse since 2019 and have no new lesions or worsening of current lesions. That sounds like remission for me, but unsure until July 27, 2021, when I see my neurologist."

• Loz...
• Taken for 1 to 6 months
• February 17, 2021

"I was diagnosed with PPMS last year following a seizure. Got caught up in the healthcare hole from Covid and was really worried about my symptoms. Had my first 2 1/2 doses in Oct 2020, and it was fine. No side effects at the time. Had terrific left thigh pain for about 3 weeks, then started to feel good. Balance/speech, etc., all improved, and now it’s due again in April. I’m starting to feel symptoms again. Warning - I have developed 2 genital warts from Ocrevus (had them when I was 21 and treated then), and I’m mortified! Going to a private clinic tomorrow as no treatment for warts available on the NHS right now. But I would recommend Ocrevus as it’s definitely slowing things down for me."

• jba...
• Taken for 1 to 6 months
• December 10, 2020

"I just started taking Ocrevus in September. I was diagnosed with MS later in life at 52 after 5 years of not knowing what was wrong with me. The doctor said Ocrevus was the best option on the market. I have had no real issues, and I am hopeful that in time I will see benefits. I would say I am more tired and there are no real changes that are significant. Most doctors in this area I am finding are just good at guessing. Neurologists seem to be very cold in their help to patients. Good luck to everyone, and have a safe holiday season."